Gingergrrl
Senior Member
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I don't have MCAS but sometimes I get angioedema out of the blue
Thank you for explaining all of this further and it has been very helpful for me to hear about people's reactions to the vaccine, their prior symptoms & diagnoses, and then compare them to my own situation.
Has there ever been a known trigger to your angiodema (beyond histamine in the most general sense) or is completely random?
I suspect I have some type of myositis.
Have you had any blood-work or Neuro testing (like an EMG and nerve conduction test)?
All of these muscle problems are on top of the everyday pain from ME/CFS or fibromyalgia, take your pick. Some days I don't have much pain and other days I have a lot.
I am so sorry to hear this ... in light of everything, have you decided yet if you are going to get your second dose of the vaccine? (and apologies if you already said your decision and I missed it).