I feel like giving up on life

[Konflict]

with your xrays, if u feel like you have something which may be showing there I suggest to take to a "good"
chiropractor, they look for things such as sublaxations (not sure if I have that word right). Some of them send people to have xrays done before they will work on them.

Avoid any chiropractor who tells you before they start that they will take a set number of treatments to fix you and give u a number eg "it will take 10 treatments" (those ones Ive always found to be just out to make money), till they work on you, they wont know what your body is like or how it will respond.

Cant afford a chiropractor, all my medical care is free from my insurance but limited with where I can be seen or how's much testing they'll give me.

I was just asking if anyone knew how to interpret them, like if there was anything that looked irregular or like the joints had laxity (not sure if you can tell that on an X-ray).

 

[taniaaust1]

Cant afford a chiropractor, all my medical care is free from my insurance but limited with where I can be seen or how's much testing they'll give me. .

Unfortunately one often dont get far with completely free medical care. Many of us have had to save up for quite long periods to go and see the specialists we need to see or to have extra tests done. Im on a disability pension and had to pay out my pocket for a lot of different things including for some of my speciaists.

 

[Konflict]

It's jut sad that if I never took a supplement in my life I'd be healthy, happy, probably have a family of my own right now and could help my mom the way she deserve......I think the whole supplement industry is just like the medical industry, get sick from the treatment and spend more money for their products. Just don't forget to mention me in the "in memory of" section and BE SURE to note that I got sick from saw palmetto and methylated B vitamins.,

 

[Undisclosed]

On a side note I went to the doctor today, he gave me a referral to the UCSF genetics department in San Francisco. Said he never seen hypermobile joints in a male without estrogen issues or Ehlors Danlos. I'm pretty scared honestly as he said he never seen this before

I don't think there will be any symptom reduction for me.....who else develops osteoarthritis in 10 weeks?

I am glad you got a referral.

I am not sure why you think you have developed osteoarthritis in 10 weeks. From what I know about osteoarthritis, it can worsen quite rapidly over a few weeks or months at a stage when X-rays are almost normal (not completely normal). So that might be what is happening with you but one of the hallmarks of osteoarthritis is restricted movement of the joints and you keep stating you have hypermobility which would strongly suggest something else is going on.

Well I'm probably going to die from this, very bad osteoarthritis in 11 weeks since crash. Probably will lead to seizers and stomach failure. Super depressed....I feel I have nothing to live for and ruined mine and my moms lives

How do you even know this. What you have been saying suggests that you have something going on other than osteoarthritis. You can't know what is going to happen to you. You really need to get to the bottom of this and the way to do it is not searching the internet for conditions that match your symptoms and then making a self-diagnosis. You could be suffering from a myriad of things that you might totally be missing.

I would look for an alternative diagnosis. There is no way in hell taking some vitamin E would cause "your skeletal system to completely disintegrate". If that is really the case, then something else must be wrong. If you are blaming some vitamins, I think you are barking up the wrong tree, and missing something else important.

I am agreement with adreno here plus there are your x-rays that don't show any skeletal disintegration.

If if was that easy to see any doctor, I would. I was denied a rheumatologist referral because none of the blood work was "relevant" for it to be autoimmune according to my crappy general physician.

That really sucks because your doc shouldn't be relying on blood tests to send you to a rheumatologist. They should be considering the whole clinical picture and some symptoms are not measurable by bloodwork. Your doc sounds like a total idiot. Can't you get a new one?

I just never thought I'd experience death at age 30.....it entirely seems like my entire body system is shutting down rapidly. No cures to fix vascular connective tissue disorders, especially those that develop acutely. Wow, I can't believe how incredibly unlucky I am .

Not sure what you mean by vascular connective tissue disorders. Vascular refers to blood vessels. Did you mean vascular collagen tissue disorders?

Back in the when I was working as a Registered Nurse, I worked as a palliative care nurse. If your body system was 'shutting down rapidly', you would be getting some very specific symptoms related to progressive organ failure. What you are describing sounds like something else is going on.

Just because serum levels of hormones are normal doesn't mean they are properly being being used.

This is true and an endocrinologist could certainly sort this out. Perhaps a referral here could help.

And people self diagnosis all the time, in a way ur trying to self diagnose me by throwing my theory away and saying it can't be true.

Yes many self-diagnose, some correctly, some incorrectly. The problem is that if you are convinced of something and you are wrong, you could be missing something that might be sorted out. There could be many explanations of what is going on with you. The human body is incredibly complex and medical science hasn't even come close to finding all the answers. Specialists know a lot more than the general public when it comes to illnesses. Some here have more medical knowledge than others, either through education or their own research. I think members are trying to offer helpful suggestions.

I see a spot on my neck that looks like the vertebrae are pinched or even collapsed, and same with my spine in a few of the vertebrae. Also see some white matter in my throat and have no idea what that is at all. If anyone can help me with interpreting them if appreciate it, thank you.

I have a little experience with x-rays and to me they look normal. I think if there was an issue your doctor would have told you. Radiologists usually provide an opinion with the results. If you don't believe it, you should get a second opinion.

I've never even seen anything online or even here of all places about acute connective tissue disease, doctors have never heard of it, yet they won't go all out on testing. I think US of all countries has the shittiest health care system. It's only taken me a little over 3 months to physiologically develop into an 80'year old man. No over exaggeration either.....it's just complete bullshit, I swear to god I'd rather have cancer, at least there's a chance to survive it and they KNOW what it is.

You probably haven't seen anything about acute connective tissue disease because most are chronic. Many 80 year old men are in excellent health.

what I meant was people don't want to take into consideration what I think is wrong with me (like I am not smart enough to capable of throwing out ideas that make logical sense) and shoot the idea down or try to say why their interpretation of my health is better than my own.

Doesn't matter.....I killed myself taking saw palmetto years ago, and made it substantially worse by taking some bullshit methylated b vitamins that shouldnt even be on the market.

I think members are considering your symptoms and trying to help you. If you focus on what you think, you could be missing something helpful. We have some very knowledgeable members here .

 

[Sushi]

No cures to fix vascular connective tissue disorders

The only vascular connective tissue disorder I am aware of is vascular EDS--and it can be tested for.

 

[Konflict]

Thank you for the well informed reply @Kina . There may be something else going on, all I know is I've been tested for rheumatoid arthritis with a negative result, and I know hypermobililty greatly increases the risk for osteoarthritis, but I know where you're coming from that it usually takes years to develop. It's just how I can best describe what I'm feeling in the joints.

A lot of my replies are when I'm in a depressed mindstate, but I do want to clarify I'm not over exaggerating any of my symtyof the pain and severity of them. I mean I'm rapidly declining and am just looking for answers. I get nervous because me and another past user here who is now deceased both had side effects from saw palmetto, an alpha 5 reductase enzyme inhibitor, and both of us got drastically worse after using methylated b vitamins (all by coincidence, I've read his blog on another website), and his body declined at the same rate mine is with all similar symptoms. His stomach quit working 10'months into having side effects, and he had the same joint/connective tissue problems I'm having.

Just a few days ago I got a call from UCSF saying they want to see me third week of June, I consider this a miracle in all honesty after they previously told me just one month earlier that their entire 2017 calendar year was "booked", and because I have a free medical insurance where I don't pay anything nor have copay. I guess I'll see what comes of this. I'm 100% sure I don't have EDS, but possibly I thought maybe methylated B usage loosened up heavy metals, which caused parasites/bacteria, which is causing severe autoimmune issues. I've all three of heavy metals/parasites/autoimmune diseases go hand in hand in hand. I've read that stool parasite tests at clinics are limited though, so that's another test I'd have to pay out of pocket for.

Yes about the connective tissue disease, I've read a lot of people have been predisposed to them but somewhere down the line they had a "trigger" which set the disease in motion, I've read some have developed quite fast but not to the degree I'm experiencing. Literally sitting on my couch hardly moving my neck/spine has cracked 10 plus times. When I try to stand up each knee cap cracks several times. My hands are sore from holding my tablet and I must keep my elbows at my sides because if I hold them up for longer than a few seconds my shoulders start to scream in pain. Every joint wiggles basically, when back in November I was stiff as a board when it came to joints and ligaments.

In regards to hormones I've read saliva testing is the most accurate way to test them because they also test for enzymes in the pathways, but these can be $400-700 so it's something I'll have to put off. Maybe I should start a gofundme so I can start to get the testing I need, unemployment isn't really enough to spend on extras when I have to support my mom and I. Currently the only thing I'm doing in terms of a treatment is doing an infrared sauna session every few days. Good brand (sunlighten) with very low EMS and has a built in combination of near, mid and far infrared rays depending on what program you go with. I've had 3 sessions so far and I've chosen detox (mid, far) every time, 40 mins at around 130 degrees. Haven't felt any Improvements yet, but read it can take a month or 2 of consistent use before seeing or feeling a change. Infared is proven to detox metals, bacteria, parasites, Candida, activate enzymes, lower inflammation, can even kill cancer cells.

 

[Sushi]

I get nervous because me and another past user here who is now deceased both had side effects from saw palmetto, an alpha 5 reductase enzyme inhibitor, and both of us got drastically worse after using methylated b vitamins (all by coincidence, I've read his blog on another website),

Do you mean a member here? If so, could you say who you are referring to?

 

[Konflict]

Do you mean a member here? If so, could you say who you are referring to?

Douglasmitch

 

[Sushi]

His user name was douglasmich. It was never reported here that he died. Do you know the cause of death? Maybe it was not the result of his symptoms.

 

[TenuousGrip]

@Konflict :

I'm just SO so profoundly sorry.

I doubt there are many of us who don't feel the pain jumping off of your words. I doubt there are many of us who don't understand. I'm guessing anything resembling a solid diagnosis eluded many of us -- some for decades.

At the risk of making light of this -- NOT my intention -- nothing has served me better in my darkest days than this:

One day at a time.
One hour at a time.
One minute at a time.

And ... if need be ... one second at a time.

When things are pitch black, I do everything in my power to stay out of the future. The future brings anxiety in much the same way that the past brings depression.

While you struggle mightily to find your answers, is there something -- maybe meditation or guided visual imagery -- that you can do to help you stay more grounded in the present ?

I wish you peace, health, and strength. Truly.

 

[Konflict]

His user name was douglasmich. It was never reported here that he died. Do you know the cause of death? Maybe it was not the result of his symptoms.

He ended up committing suicide, but his body was in ruins. He had several low and displaced minerals and metals on his hair test, he had went from 225 lbs to 145 in just one year, he developed gastroparesis so he couldn't eat or drink without vomiting, he had to wear neck/back/pelvic branded becuase of the instability of his joints, he lost the ability to produce a bowel movement and had to use coffee enemas.

I have similar symptoms to everything he had and I keep getting worse as well, only difference is I'm gaining weight while he lost weight. I seem to have the exact same joint/connective tissue/collagen issues he did, I have gastrointestinal issues like constipation, delayed gastric emptying, bloating, undigested food, etc.

It's NOT a coincidence that me and him had the same symptoms after taking the SAME supplements. Some peolpe (proven studies if I really need to post them for anyone to believe me about this) that take saw palmetto and or propecia developed lasting side effects that lower gaba a expression in the brain which in turn leads to autoimmune issues.....mix that with gene expression experimentation with methylated B vitamins and you have a recipe for total body system Russian roulette.

I've already accepted my fate I'm dying, no where on this site has anyone developed acute connective tissue deterioration. It's got to be autoimmune in my opinion, I literally CURED my depression and brain fog I developed in January back in mid April from medical cannabis and or garlic pill supplementation, I mean I literally ingested 1/3 gram of cannabis and 2 garlic pills and not anymore since. People spend their entire lives experimenting with antidepressants just trying to find any bit of relief and I literally haven't felt any depression since (I've felt depressed, but there's a gigantic difference between depresion and feeling "depressed").

I have no other answers other than I have some severe cell autoimmune reaction to whatever is going on on my body. I used to think it was hormone insensitivity (which could still be part of this) but I've had some high estrogen symptoms since mid April when from January-April I had all low Estrogen symptoms.

 

[Konflict]

Could my root canal be killing me?

http://www.soho-wellness.com/infrared-sauna/

 

[Konflict]

Is feeling really fatigued, sore, depressed, light headed, brain fog.....are these symptoms of detox?

I've done 3 infrared sauna treatments in 7 days (including 1 on Saturday and one Sunday) and today I feel worse that is usually do. Is this a good sign?

 

[BFitz89]

Is feeling really fatigued, sore, depressed, light headed, brain fog.....are these symptoms of detox?

I've done 3 infrared sauna treatments in 7 days (including 1 on Saturday and one Sunday) and today I feel worse that is usually do. Is this a good sign?

My buddy had a root canal done and it cured him of his symptoms entirely.

 

[Konflict]

@BFitz89 so they had a previously done root canal crown taken out? Or he had a bad cavity which which they performed a root canal procedure on?

I'm thinking of getting my crown taken out and the tooth pulled entirely.

 

[Konflict]

Well I have my UCSF geneticist appointment next week and don't really know what to expect, or what to ask for.

I also wonde if doctors at regular physicians clinics can order me stool analysis tests (free ones) done at the clinic, anything that deals with Candida or parasites. Would they offer mold testing kits? I can't afford anything out of pocket that expensive.

I mean maybe it's common knowledge, but I'm guessing most clinics don't test for these things because they don't want you believing you can get this sick from parasites, mold, bacteria, etc. since they are treated with supplements, diet, and not antibiotics or pharmaceuticals.

What about an organic acids test, I don't quite get what they actually test for in that but have been recommended that in the past.

 

[Konflict]

No advice?

 

[antherder]

@Konflict, I don't have any advice to offer on those tests, but just hoping the appointment goes well for you.

 

[Mary]

Is feeling really fatigued, sore, depressed, light headed, brain fog.....are these symptoms of detox?

I've done 3 infrared sauna treatments in 7 days (including 1 on Saturday and one Sunday) and today I feel worse that is usually do. Is this a good sign?

Those can all be symptoms of detoxing, I've had them all. One far infrared sauna treatment left me wiped out for 3 days. I seem to have resolved my detoxing issues with the use of glycine, inositol and glutamine, but had to go slowly with these, as they all seemed to stimulate my body to start detoxing initially, especially the glycine But I now tolerate them fine.

 

[ahimsa]

No advice?

Hi Konflict,

Sometimes in a thread this long (especially given that the thread title was on such a different topic) many of the new individual posts get lost or overlooked.

If you want some specific advice on diagnostic tests or treatment then you might want to start a new thread in one of the other forums.

You could try the Doctors and Diagnostics forum. ( http://forums.phoenixrising.me/index.php?forums/doctors-and-diagnostics.106/ ) Or maybe choose one of the forums in the Treatments and Symptoms section? ( http://forums.phoenixrising.me/index.php#symptoms-and-treatments.30 )

Best of luck to you!