Phoenix Rising ME / CFS Forums

    1. Upcoming ME/CFS Events

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      17
      Latest: Personal stories request for... tatt, May 18, 2013 at 7:37 AM
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    1. General ME/CFS News

      Discuss NON-RESEARCH related ME/CFS News here in this forum.
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      1,678
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      34,190
      Latest: Spring CFSAC 2013 Meeting... akrasia, May 23, 2013 at 10:44 PM
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    2. Latest ME/CFS Research

      Post links to news articles, abstracts, etc about PUBLISHED RESEARCH SPECIFIC TO ME/CFS.
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      Latest: Staph vaccine to treat CFS?? Helen, May 23, 2013 at 10:20 PM
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    3. Phoenix Rising Articles

      Comment on the full length articles on the Front Page...This is the best and easiest way to comment on those articles.
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      13,253
      Latest: Taking Fatigue Seriously - An... jimells, May 23, 2013 at 10:22 PM
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    4. Other Health News and Research

      Find health news/research on another topic that you feel has implications for PWCs? Post it here.
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      Latest: Griffith Uni Australia new... taniaaust1, May 23, 2013 at 5:27 PM
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    5. Active Clinical Studies

      Post information about clinical research projects currently seeking patient participants. Share your experiences.
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      1,362
      Latest: Swedish trial of mercury... Mimi, May 22, 2013 at 10:18 PM
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    6. Miscellaneous ME/CFS Discussion

      A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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      103
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      Latest: DId your ME/EDS symptoms... Kina, May 23, 2013 at 6:59 PM
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    1. Action Alerts and Advocacy

      THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
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      Latest: ONE MINUTE ADVOCACY #2; and... parvofighter, May 22, 2013 at 12:48 PM
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    2. Advocacy Projects

      A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
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    3. Petitions

      Post petitions relevant to ME/CFS here.
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      16
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      218
      Latest: Please sign this petition maryb, May 21, 2013 at 3:18 PM
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    4. Fundraising

      Ways to financially support Phoenix Rising and other ME/CFS organizations worldwide through fundraising appeals, campaigns, online funding contests, etc.
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    1. Symptoms

      Sleep problems, pain, difficulty standing, rapid heart beat, blood pressure problems, flu-like symptoms, fever, irritable bowel syndrome, vertigo, cognitive problems, sensitivity to odors, lights, sound, clumsiness, disorientation, perception problems
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      1,404
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      Latest: PKU symptom after me/cfs Lou, May 23, 2013 at 5:40 PM
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    2. ME/CFS Doctors

      Here's the place to ask for doctor referrals and recommendations. Share your experiences of your time with your doctor.
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      Latest: Good Dr in London/South UK... Mark, May 23, 2013 at 8:04 PM
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    3. Diagnostic Guidelines and Laboratory Testing

      What tests should my doctor order? What do my results mean? Are there special tests for ME/CFS?
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      4,306
      Latest: Is there a service that will... caledonia, May 23, 2013 at 6:22 PM
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    1. General Treatment

      Supplements and drugs - dive in and check out what's going.
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      21,294
      Latest: Amitriptyline and fluoxetine... cosmo, May 23, 2013 at 10:36 PM
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    2. Addressing Biotoxin, Chemical & Food Sensitivities

      Many ME/CFS patients report being unusually reactive to a variety of environmental substances -- toxic mold, gluten, household chemicals, hazardous algae blooms, pesticides, EMF's, mercury and many others. Discuss strategies for avoidance and for lowering reactivities here.
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      3,279
      Latest: How can I heal my gut when it... Beyond, May 22, 2013 at 3:41 PM
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    3. Addressing Mast Cell Activation

      Is mast cell activation at the heart of ME/CFS? A place to post information and discuss treatment.
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      60
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      1,057
      Latest: Methylation, mast cells and... Beyond, May 23, 2013 at 10:02 PM
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    4. Alternative Therapies

      Acupuncture, massage, homeopathy, amygdala retraining, chiropractric, colonics, hyperbaric oxygen, lightning process, meditation, aromatherapy...the list goes on and on. Dig into the multi-faceted world of alternative therapies here.
      Discussions:
      356
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      6,213
      Latest: Has anyone tried EMDR for... Leon, May 23, 2013 at 1:17 PM
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    5. Antivirals, Antibiotics and Immune Modulators

      Got pathogen problems? Discuss how you're trying to get rid of them. Antibiotics, Ampligen, Interferons, Nexavir, Valcyte, Valtrex, Vistide, Artesunate, etc. all are open game here.
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      7,158
      Latest: Equilibrant sandy10m, May 23, 2013 at 6:04 AM
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    6. Detox: Methylation; B12; Glutathione; Chelation

      Are derangements in the detoxification mechanisms at the heart of ME/CFS? Hash that subject out here.
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      1,307
      Messages:
      24,755
      Latest: Constant tingling.. Maybe it... dannybex, May 23, 2013 at 10:13 PM
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    7. GcMAF

      A place to discuss treatment, post questions, provide information related to GcMAF.
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      114
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      5,441
      Latest: MAF 878 Available - Anyone... ukxmrv, May 22, 2013 at 5:13 AM
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    8. Genetic Testing and SNPs

      Discuss genetic testing and Single Nucleotide Polymorphisms (SNPs), and treatments arising from that testing.
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      122
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      1,713
      Latest: A few questions from the PhD... Lotus97, May 23, 2013 at 8:11 PM
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    9. Problems Standing: Orthostatic Intolerance; POTS

      Symptoms increase when you stand or sit up? Check out help for OI/POTS/NMH, vertigo etc.
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      179
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      2,687
      Latest: Does Your POTS or HR vary by... taniaaust1, May 23, 2013 at 4:06 AM
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    10. Rituximab: News and Research

      A place to discuss news and research related to Rituximab.
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      1,873
      Latest: Well.... Young&sick, May 21, 2013 at 10:06 AM
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    11. The Gut: De Meirleir & Maes; H2S; Leaky Gut

      From Dr. Chia's enteroviruses to Dr. De Meirleir's and Dr. Maes's bacterial overgrowth to Marian Lemles H2S hypothesis, the gut is in the news. Discuss food allergies and dietary issues here.
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      4,776
      Latest: Soya milk tastes rank! Gypsy, May 23, 2013 at 10:15 PM
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    1. Lifestyle Management

      Can lifestyle management make a big difference? Some research suggests it can. Discuss pacing, envelope therapy, sleep hygiene, diet, exercise , relationships, emotional factors and more in this forum.
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      515
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      8,339
      Latest: Types of personal heart rate... Mithriel, May 23, 2013 at 10:20 PM
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    2. Finances, Work and Disability

      Working and managing one's finances are two of the trickiest aspects of this disease and disability can be lifeline. Figure out how to manage these fundamental issues in this forum.
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      2,031
      Latest: Disability allowance appeal... Esther12, May 23, 2013 at 4:34 PM
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    3. Spirituality and ME/CFS

      Topics related to spirituality and coping with ME/CFS. Threads about how spirituality helps you, relevant experiences, useful resources, prayer lists, sincere questions, etc. Please respect other posters and do not tear down their views.
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      3,430
      Latest: The man who quit $ to live in... Seewell, May 17, 2013 at 9:31 PM
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    1. XMRV Research and Replication Studies

      Replication studies, genetics, effects, the endocrine connection, cohorts, immune system, murine viruses, cancer (!), etc.
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      25,998
      Latest: What's Happened to Dr... EnduringAngel, May 22, 2013 at 5:09 PM
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    2. XMRV Testing, Treatment and Transmission

      Talk about test results, treatment options, transmission and personal issues.
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      12,769
      Latest: HTLV-1 Reservoir treatment! Daffodil, May 15, 2013
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    3. Media, Interviews, Blogs, Talks, Events about XMRV

      Post interviews, blogs, talks, articles, images and events
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      18,940
      Latest: With the XMRV Results... Esther12, Apr 15, 2013
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    1. Information and Resources

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      Latest: Chronic Fatigue Syndrome... Kina, May 11, 2013
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    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program

      Discuss a project to create a Comprehensive Treatment Review Program to be folded into the PR Forums
      Discussions:
      8
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      142
      Latest: Proposal: Create a... INKY, Jun 21, 2012
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    2. Patient Data Repository & Treatment Review Project

      Patient Data Repository & Treatment Review Project
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      35
      Messages:
      284
      Latest: CFS/ME Organisations Guido den Broeder, Mar 13, 2013
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