Phoenix Rising ME / CFS Forums

    1. Upcoming ME/CFS Events

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    1. General ME/CFS News

      Discuss NON-RESEARCH related ME/CFS News here in this forum.
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      1,720
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      34,803
      Latest: Come Discuss The Blue Ribbon... Sasha, Jun 18, 2013 at 10:12 PM
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    2. Latest ME/CFS Research

      Post links to news articles, abstracts, etc about PUBLISHED RESEARCH SPECIFIC TO ME/CFS.
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      Latest: PACE Trial and PACE Trial... user9876, Jun 18, 2013 at 8:21 PM
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    3. Phoenix Rising Articles

      Comment on the full length articles on the Front Page...This is the best and easiest way to comment on those articles.
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      13,880
      Latest: "Intimidated, Frightened,... Sasha, Jun 18, 2013 at 10:16 PM
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    4. Other Health News and Research

      Find health news/research on another topic that you feel has implications for PWCs? Post it here.
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      Latest: GAO lobbying for increased... natasa778, Jun 18, 2013 at 10:27 PM
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    5. Active Clinical Studies

      Post information about clinical research projects currently seeking patient participants. Share your experiences.
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      1,395
      Latest: Mt Sinai recruiting for PEM... Rrrr, Jun 18, 2013 at 7:53 PM
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    6. Miscellaneous ME/CFS Discussion

      A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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      117
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      Latest: Question your ME/CFS... PhoenixDown, Jun 18, 2013 at 4:55 PM
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    1. Action Alerts and Advocacy

      THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
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      Latest: Psychiatric Theory in... golden, Jun 18, 2013 at 4:27 PM
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    2. Advocacy Projects

      A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
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    3. Petitions

      Post petitions relevant to ME/CFS here.
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      19
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      244
      Latest: Sign petition re. Today show... Nielk, Jun 18, 2013 at 10:37 PM
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    4. Fundraising

      Ways to financially support Phoenix Rising and other ME/CFS organizations worldwide through fundraising appeals, campaigns, online funding contests, etc.
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      1,290
      Latest: Invest in ME reach £100,000... Mark, Jun 14, 2013 at 11:11 PM
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    1. Symptoms

      Sleep problems, pain, difficulty standing, rapid heart beat, blood pressure problems, flu-like symptoms, fever, irritable bowel syndrome, vertigo, cognitive problems, sensitivity to odors, lights, sound, clumsiness, disorientation, perception problems
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      Latest: Feel awful after naps soxfan, Jun 18, 2013 at 10:07 PM
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    2. ME/CFS Doctors

      Here's the place to ask for doctor referrals and recommendations. Share your experiences of your time with your doctor.
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      395
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      4,704
      Latest: Breakspear Medical in the UK Jenny, Jun 18, 2013 at 8:58 PM
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    3. Diagnostic Guidelines and Laboratory Testing

      What tests should my doctor order? What do my results mean? Are there special tests for ME/CFS?
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      Latest: BLOOD volume testing... Allyson, Jun 18, 2013 at 11:44 AM
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    1. General Treatment

      Supplements and drugs - dive in and check out what's going.
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      22,144
      Latest: Tania's journal of drug... taniaaust1, Jun 18, 2013 at 7:14 PM
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    2. Addressing Biotoxin, Chemical & Food Sensitivities

      Many ME/CFS patients report being unusually reactive to a variety of environmental substances -- toxic mold, gluten, household chemicals, hazardous algae blooms, pesticides, EMF's, mercury and many others. Discuss strategies for avoidance and for lowering reactivities here.
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      3,414
      Latest: Sudden food allergies xxRinxx, Jun 18, 2013 at 9:11 PM
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    3. Addressing Mast Cell Activation

      Is mast cell activation at the heart of ME/CFS? A place to post information and discuss treatment.
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      1,102
      Latest: ME/CFS is a mast cell... Beyond, Jun 18, 2013 at 10:40 AM
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    4. Alternative Therapies

      Acupuncture, massage, homeopathy, amygdala retraining, chiropractric, colonics, hyperbaric oxygen, lightning process, meditation, aromatherapy...the list goes on and on. Dig into the multi-faceted world of alternative therapies here.
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      364
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      6,505
      Latest: This may sound hokey..Rife... madietodd, Jun 18, 2013 at 1:15 PM
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    5. Antivirals, Antibiotics and Immune Modulators

      Got pathogen problems? Discuss how you're trying to get rid of them. Antibiotics, Ampligen, Interferons, Nexavir, Valcyte, Valtrex, Vistide, Artesunate, etc. all are open game here.
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      Latest: My Valcyte pilgrimage RUkiddingME, Jun 18, 2013 at 6:17 PM
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    6. Detox: Methylation; B12; Glutathione; Chelation

      Are derangements in the detoxification mechanisms at the heart of ME/CFS? Hash that subject out here.
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      1,375
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      25,689
      Latest: B 12 and palpitations caledonia, Jun 18, 2013 at 9:23 PM
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    7. GcMAF

      A place to discuss treatment, post questions, provide information related to GcMAF.
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      5,459
      Latest: GCMAF Questions Sushi, Jun 18, 2013 at 12:32 AM
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    8. Genetic Testing and SNPs

      Discuss genetic testing and Single Nucleotide Polymorphisms (SNPs), and treatments arising from that testing.
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      144
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      1,975
      Latest: How to detox with this... Slicky, Jun 18, 2013 at 6:45 PM
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    9. Problems Standing: Orthostatic Intolerance; POTS

      Symptoms increase when you stand or sit up? Check out help for OI/POTS/NMH, vertigo etc.
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      2,751
      Latest: Do Antihistamines improve... ukxmrv, Jun 15, 2013 at 4:35 AM
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    10. Rituximab: News and Research

      A place to discuss news and research related to Rituximab.
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      68
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      2,007
      Latest: graphic of antibody's size... alex3619, Jun 18, 2013 at 7:06 PM
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    11. The Gut: De Meirleir & Maes; H2S; Leaky Gut

      From Dr. Chia's enteroviruses to Dr. De Meirleir's and Dr. Maes's bacterial overgrowth to Marian Lemles H2S hypothesis, the gut is in the news. Discuss food allergies and dietary issues here.
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      364
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      4,883
      Latest: Soya milk tastes rank! Sushi, Jun 18, 2013 at 8:44 PM
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    1. Lifestyle Management

      Can lifestyle management make a big difference? Some research suggests it can. Discuss pacing, envelope therapy, sleep hygiene, diet, exercise , relationships, emotional factors and more in this forum.
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      8,433
      Latest: Update And a Full Plate of a... helen1, Jun 18, 2013 at 8:34 PM
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    2. Finances, Work and Disability

      Working and managing one's finances are two of the trickiest aspects of this disease and disability can be lifeline. Figure out how to manage these fundamental issues in this forum.
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      2,079
      Latest: Turned down for ESA, got... golden, Jun 13, 2013 at 2:21 PM
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    3. Spirituality and ME/CFS

      Topics related to spirituality and coping with ME/CFS. Threads about how spirituality helps you, relevant experiences, useful resources, prayer lists, sincere questions, etc. Please respect other posters and do not tear down their views.
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      3,437
      Latest: How To Differentiate... moblet, Jun 15, 2013 at 12:47 AM
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    1. Information and Resources

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      Latest: Chronic Fatigue Syndrome... roxie60, Jun 6, 2013
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    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program

      Discuss a project to create a Comprehensive Treatment Review Program to be folded into the PR Forums
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      8
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      142
      Latest: Proposal: Create a... INKY, Jun 21, 2012
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    2. Patient Data Repository & Treatment Review Project

      Patient Data Repository & Treatment Review Project
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      285
      Latest: CFS/ME Organisations Clodomir, May 29, 2013
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