Phoenix Rising ME / CFS Forums

    1. Upcoming ME/CFS Events

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      17
      Latest: Personal stories request for... tatt, May 18, 2013 at 7:37 AM
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    1. General ME/CFS News

      Discuss NON-RESEARCH related ME/CFS News here in this forum.
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      1,675
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      34,071
      Latest: ME Research UK - Breakthrough... LisaGoddard, May 18, 2013 at 8:40 PM
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    2. Latest ME/CFS Research

      Post links to news articles, abstracts, etc about PUBLISHED RESEARCH SPECIFIC TO ME/CFS.
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      725
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      Latest: 5-HT autoimmunity associated... alex3619, May 19, 2013 at 3:44 AM
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    3. Phoenix Rising Articles

      Comment on the full length articles on the Front Page...This is the best and easiest way to comment on those articles.
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      13,164
      Latest: Patients to DHHS: Fix the... snowathlete, May 18, 2013 at 11:32 PM
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    4. Other Health News and Research

      Find health news/research on another topic that you feel has implications for PWCs? Post it here.
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      1,898
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      Latest: The genetic age could be the... Waverunner, May 18, 2013 at 10:20 AM
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    5. Active Clinical Studies

      Post information about clinical research projects currently seeking patient participants. Share your experiences.
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      1,356
      Latest: Brisbane/Goldcoast - Looking... Allyson, May 19, 2013 at 3:48 AM
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    6. Miscellaneous ME/CFS Discussion

      A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
      Discussions:
      102
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      2,158
      Latest: Is ME due to Ehlers-Danlos... GcMAF Australia, May 19, 2013 at 7:25 AM
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    1. Action Alerts and Advocacy

      THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
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      1,371
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      23,092
      Latest: HIV-Negative AIDS? (Sign a... heapsreal, May 19, 2013 at 7:37 AM
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    2. Advocacy Projects

      A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
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    3. Petitions

      Post petitions relevant to ME/CFS here.
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      16
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      215
      Latest: Please sign this petition tatt, May 18, 2013 at 7:47 AM
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    4. Fundraising

      Ways to financially support Phoenix Rising and other ME/CFS organizations worldwide through fundraising appeals, campaigns, online funding contests, etc.
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      50
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      Latest: Vote for MEandYou (Rituximab... Maria Gjerpe, May 14, 2013 at 3:30 PM
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    1. Symptoms

      Sleep problems, pain, difficulty standing, rapid heart beat, blood pressure problems, flu-like symptoms, fever, irritable bowel syndrome, vertigo, cognitive problems, sensitivity to odors, lights, sound, clumsiness, disorientation, perception problems
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      1,399
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      22,056
      Latest: Fibromyalgia and Weather... Dmitri, May 18, 2013 at 4:10 PM
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    2. ME/CFS Doctors

      Here's the place to ask for doctor referrals and recommendations. Share your experiences of your time with your doctor.
      Discussions:
      381
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      4,545
      Latest: ME/CFS specialist in Germany? Lala, May 18, 2013 at 9:46 PM
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    3. Diagnostic Guidelines and Laboratory Testing

      What tests should my doctor order? What do my results mean? Are there special tests for ME/CFS?
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      4,294
      Latest: NK Blood test lab in UK ukxmrv, May 19, 2013 at 4:40 AM
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    1. General Treatment

      Supplements and drugs - dive in and check out what's going.
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      1,419
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      21,156
      Latest: Skyline's Journal: Progress &... Skyline, May 19, 2013 at 6:12 AM
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    2. Addressing Biotoxin, Chemical & Food Sensitivities

      Many ME/CFS patients report being unusually reactive to a variety of environmental substances -- toxic mold, gluten, household chemicals, hazardous algae blooms, pesticides, EMF's, mercury and many others. Discuss strategies for avoidance and for lowering reactivities here.
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      3,276
      Latest: MSG sensitivity Sushi, May 19, 2013 at 4:42 AM
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    3. Addressing Mast Cell Activation

      Is mast cell activation at the heart of ME/CFS? A place to post information and discuss treatment.
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      59
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      1,052
      Latest: ME/CFS is a mast cell... camas, May 14, 2013 at 9:07 PM
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    4. Alternative Therapies

      Acupuncture, massage, homeopathy, amygdala retraining, chiropractric, colonics, hyperbaric oxygen, lightning process, meditation, aromatherapy...the list goes on and on. Dig into the multi-faceted world of alternative therapies here.
      Discussions:
      355
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      6,169
      Latest: Homeopathy and other... Esther12, May 19, 2013 at 1:00 AM
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    5. Antivirals, Antibiotics and Immune Modulators

      Got pathogen problems? Discuss how you're trying to get rid of them. Antibiotics, Ampligen, Interferons, Nexavir, Valcyte, Valtrex, Vistide, Artesunate, etc. all are open game here.
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      7,131
      Latest: my famvir trial Rrrr, May 19, 2013 at 1:23 AM
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    6. Detox: Methylation; B12; Glutathione; Chelation

      Are derangements in the detoxification mechanisms at the heart of ME/CFS? Hash that subject out here.
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      1,296
      Messages:
      24,538
      Latest: CBS success! Star-Anise, May 19, 2013 at 3:14 AM
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    7. GcMAF

      A place to discuss treatment, post questions, provide information related to GcMAF.
      Discussions:
      114
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      5,435
      Latest: MAF 878 Available - Anyone... Anna Wood, May 18, 2013 at 1:56 PM
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    8. Genetic Testing and SNPs

      Discuss genetic testing and Single Nucleotide Polymorphisms (SNPs), and treatments arising from that testing.
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      117
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      1,670
      Latest: CFS SNP Study - PubMed Allyson, May 19, 2013 at 5:20 AM
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    9. Problems Standing: Orthostatic Intolerance; POTS

      Symptoms increase when you stand or sit up? Check out help for OI/POTS/NMH, vertigo etc.
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      174
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      2,648
      Latest: Useful ergonomic laid back... Allyson, May 18, 2013 at 6:01 AM
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    10. Rituximab: News and Research

      A place to discuss news and research related to Rituximab.
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      1,870
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    11. The Gut: De Meirleir & Maes; H2S; Leaky Gut

      From Dr. Chia's enteroviruses to Dr. De Meirleir's and Dr. Maes's bacterial overgrowth to Marian Lemles H2S hypothesis, the gut is in the news. Discuss food allergies and dietary issues here.
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      355
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      4,734
      Latest: CFS Triggered by almost all... Thinktank, May 19, 2013 at 7:41 AM
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    1. Lifestyle Management

      Can lifestyle management make a big difference? Some research suggests it can. Discuss pacing, envelope therapy, sleep hygiene, diet, exercise , relationships, emotional factors and more in this forum.
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      514
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      8,324
      Latest: Learning a new language Tally, May 18, 2013 at 5:28 AM
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    2. Finances, Work and Disability

      Working and managing one's finances are two of the trickiest aspects of this disease and disability can be lifeline. Figure out how to manage these fundamental issues in this forum.
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      2,010
      Latest: LTD forms submitted roxie60, May 18, 2013 at 4:56 PM
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    3. Spirituality and ME/CFS

      Topics related to spirituality and coping with ME/CFS. Threads about how spirituality helps you, relevant experiences, useful resources, prayer lists, sincere questions, etc. Please respect other posters and do not tear down their views.
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      3,430
      Latest: The man who quit $ to live in... Seewell, May 17, 2013 at 9:31 PM
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    1. XMRV Research and Replication Studies

      Replication studies, genetics, effects, the endocrine connection, cohorts, immune system, murine viruses, cancer (!), etc.
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      25,996
      Latest: What's Happened to Dr... JayS, Mar 7, 2013
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    2. XMRV Testing, Treatment and Transmission

      Talk about test results, treatment options, transmission and personal issues.
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      12,769
      Latest: HTLV-1 Reservoir treatment! Daffodil, May 15, 2013 at 11:27 AM
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    3. Media, Interviews, Blogs, Talks, Events about XMRV

      Post interviews, blogs, talks, articles, images and events
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      18,940
      Latest: With the XMRV Results... Esther12, Apr 15, 2013
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    1. Information and Resources

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      235
      Latest: Chronic Fatigue Syndrome... Kina, May 11, 2013
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    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program

      Discuss a project to create a Comprehensive Treatment Review Program to be folded into the PR Forums
      Discussions:
      8
      Messages:
      142
      Latest: Proposal: Create a... INKY, Jun 21, 2012
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    2. Patient Data Repository & Treatment Review Project

      Patient Data Repository & Treatment Review Project
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      35
      Messages:
      284
      Latest: CFS/ME Organisations Guido den Broeder, Mar 13, 2013
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