1. Welcome to the new-look Phoenix Rising forums! You're welcome to browse the public discussions, but you'll need to sign up before you can post and join our community. You can get help with signing up and logging in here, or contact us if you still can't get in, and you can find out more about Phoenix Rising here.

Phoenix Rising ME / CFS Forums

  1. ME/CFS News and Research

    1. General ME/CFS News

      Discuss NON-RESEARCH related ME/CFS News here in this forum.
      Discussions:
      1,357
      Messages:
      25,526
      Latest: The Naked... Googsta, May 17, 2012 at 3:05 PM
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    2. Latest ME/CFS Research

      Post links to news articles, abstracts, etc about PUBLISHED RESEARCH SPECIFIC TO ME/CFS.
      Discussions:
      571
      Messages:
      9,671
      Latest: Visible and near-infrared... Asklipia, May 17, 2012 at 8:23 AM
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    3. Phoenix Rising Articles

      Comment on the full length articles on the Front Page...This is the best and easiest way to comment on those articles.
      Discussions:
      389
      Messages:
      9,127
      Latest: The 20 Years Ago Today Series... taniaaust1, May 15, 2012 at 1:57 PM
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    4. Other Health News and Research

      Find health news/research on another topic that you feel has implications for PWCs? Post it here.
      Discussions:
      1,250
      Messages:
      8,184
      Latest: Interview with Ian Lipkin oceanblue, May 17, 2012 at 10:38 AM
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    5. Active Clinical Studies

      Post information about clinical research projects currently seeking patient participants. Share your experiences.
      Discussions:
      92
      Messages:
      1,008
      Latest: MONTOYA STUDY needs more... August59, Apr 25, 2012
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  2. Advocacy and Fundraising

    1. Action Alerts and Advocacy

      THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
      Discussions:
      1,243
      Messages:
      22,013
      Sub-Forums: 1

      Action Alerts and Advocacy

      Sub-Forums

      1. Project Pages

      Latest: Medical forum making fun of... maryb, May 17, 2012 at 10:53 AM
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    2. Fundraising

      Ways to financially support Phoenix Rising and other ME/CFS organizations worldwide through fundraising appeals, campaigns, online funding contests, etc.
      Discussions:
      13
      Messages:
      121
      Latest: $5000 on Offer for Australian... Googsta, May 16, 2012 at 7:29 AM
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    3. Petitions

      Post petitions relevant to ME/CFS here.
      Discussions:
      11
      Messages:
      113
      Latest: Please sign this petition! PWCalvin, May 16, 2012 at 4:58 AM
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  3. XMRV

    1. XMRV Research and Replication Studies

      Replication studies, genetics, effects, the endocrine connection, cohorts, immune system, murine viruses, cancer (!), etc.
      Discussions:
      721
      Messages:
      24,630
      Latest: 3 New XMRV Papers! Mark, May 17, 2012 at 3:12 AM
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    2. XMRV Testing, Treatment and Transmission

      Talk about test results, treatment options, transmission and personal issues.
      Discussions:
      477
      Messages:
      12,536
      Latest: CD4 count pilgrim, May 2, 2012
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    3. Media, Interviews, Blogs, Talks, Events about XMRV

      Post interviews, blogs, talks, articles, images and events
      Discussions:
      841
      Messages:
      18,246
      Latest: Any news on Lipkin study? Mark, May 15, 2012 at 8:13 PM
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  4. Symptoms, Doctors, and Diagnostics

    1. Symptoms

      Sleep problems, pain, difficulty standing, rapid heart beat, blood pressure problems, flu-like symptoms, fever, irritable bowel syndrome, vertigo, cognitive problems, sensitivity to odors, lights, sound, clumsiness, disorientation, perception problems
      Discussions:
      1,024
      Messages:
      15,612
      Latest: Hungry/starving for protein... taniaaust1, May 17, 2012 at 3:22 PM
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    2. ME/CFS Doctors

      Here's the place to ask for doctor referrals and recommendations. Share your experiences of your time with your doctor.
      Discussions:
      271
      Messages:
      2,735
      Latest: Physician in the Netherlands cureminded, May 17, 2012 at 10:40 AM
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    3. Diagnostic Guidelines and Laboratory Testing

      What tests should my doctor order? What do my results mean? Are there special tests for ME/CFS?
      Discussions:
      250
      Messages:
      2,691
      Latest: My old Metametrix Organix... hixxy, May 17, 2012 at 12:56 PM
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  5. Treatment and Therapy

    1. General Treatment

      Supplements and drugs - dive in and check out what's going.
      Discussions:
      971
      Messages:
      14,189
      Latest: MODY Diabetes taniaaust1, May 17, 2012 at 3:09 PM
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    2. Addressing Biotoxin, Chemical & Food Sensitivities

      Many ME/CFS patients report being unusually reactive to a variety of environmental substances -- toxic mold, gluten, household chemicals, hazardous algae blooms, pesticides, EMF's, mercury and many others. Discuss strategies for avoidance and for lowering reactivities here.
      Discussions:
      150
      Messages:
      2,567
      Latest: CityChanger's Mold Avoidance... slayadragon, May 17, 2012 at 8:56 AM
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    3. Alternative Therapies

      Acupuncture, massage, homeopathy, amygdala retraining, chiropractric, colonics, hyperbaric oxygen, lightning process, meditation, aromatherapy...the list goes on and on. Dig into the multi-faceted world of alternative therapies here.
      Discussions:
      277
      Messages:
      4,794
      Latest: Have you noticed benefits... globalpilot, May 17, 2012 at 1:37 AM
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    4. Antivirals, Antibiotics and Immune Modulators

      Got pathogen problems? Discuss how you're trying to get rid of them. Antibiotics, Ampligen, Interferons, Nexavir, Valcyte, Valtrex, Vistide, Artesunate, etc. all are open game here.
      Discussions:
      328
      Messages:
      4,959
      Latest: 13th week of Valcyte undcvr, May 17, 2012 at 2:50 PM
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    5. Detox: Methylation; B12; Glutathione; Chelation

      Are derangements in the detoxification mechanisms at the heart of ME/CFS? Hash that subject out here.
      Discussions:
      778
      Messages:
      14,583
      Latest: B12 caused extreme worsening... nanonug, May 17, 2012 at 2:54 PM
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    6. Genetic Testing and SNPs

      Discuss genetic testing and Single Nucleotide Polymorphisms (SNPs), and treatments arising from that testing.
      Discussions:
      24
      Messages:
      412
      Latest: Is Yasko's Nutrigenomics... priya, May 11, 2012 at 10:56 PM
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    7. Problems Standing: Orthostatic Intolerance; POTS

      Symptoms increase when you stand or sit up? Check out help for OI/POTS/NMH, vertigo etc.
      Discussions:
      95
      Messages:
      1,412
      Latest: question about pots..oi hurtingallthetimet, May 16, 2012 at 10:30 PM
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    8. The Gut: De Meirleir & Maes; H2S; Leaky Gut

      From Dr. Chia's enteroviruses to Dr. De Meirleir's and Dr. Maes's bacterial overgrowth to Marian Lemles H2S hypothesis, the gut is in the news. Discuss food allergies and dietary issues here.
      Discussions:
      240
      Messages:
      3,271
      Latest: Vinegar for low stomach acid kiti, May 15, 2012 at 9:23 AM
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    9. GcMAF

      A place to discuss treatment, post questions, provide information related to GcMAF.
      Discussions:
      57
      Messages:
      3,402
      Latest: vitamin D levels predict... ukxmrv, May 17, 2012 at 3:45 AM
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  6. Living with ME/CFS

    1. Lifestyle Management

      Can lifestyle management make a big difference? Some research suggests it can. Discuss pacing, envelope therapy, sleep hygiene, diet, exercise , relationships, emotional factors and more in this forum.
      Discussions:
      419
      Messages:
      6,603
      Latest: Mini RANT: Things People Say Googsta, May 17, 2012 at 4:44 AM
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    2. Finances, Work and Disability

      Working and managing one's finances are two of the trickiest aspects of this disease and disability can be lifeline. Figure out how to manage these fundamental issues in this forum.
      Discussions:
      142
      Messages:
      1,493
      Latest: Experts Say Landmark... SilverbladeTE, May 15, 2012 at 11:27 PM
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    3. Spirituality and ME/CFS

      Topics related to spirituality and coping with CFS. Threads about how spirituality helps you, relevant experiences, useful resources, prayer lists, sincere questions, etc. Please respect other posters and do not tear down their views.
      Discussions:
      92
      Messages:
      2,624
      Latest: psalm from a friend LisaGoddard, May 9, 2012
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  7. ME/CFS Information and Resources

    1. Information and Resources

      Discussions:
      14
      Messages:
      50
      Latest: Positive Care Programme Sleepyblondie, Apr 15, 2012
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  8. Phoenix Rising Projects

    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program

      Discuss a project to create a Comprehensive Treatment Review Program to be folded into the PR Forums
      Discussions:
      8
      Messages:
      141
      Latest: Preliminary Web Templates are... ArgyrosfeniX, Dec 3, 2011
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    2. Patient Data Repository & Treatment Review Project

      Patient Data Repository & Treatment Review Project
      Discussions:
      34
      Messages:
      271
      Latest: Supplements Sallysblooms, Nov 24, 2011
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