1. Experts Reflect on the FDA Stakeholder Meeting

    Joel asks a variety of leading doctors, researchers and advocates for their reflections on the FDA Drug Development Workshop
    Discuss the article on the Forum thread

Phoenix Rising ME / CFS Forums

    1. Upcoming ME/CFS Events

      Discussions:
      3
      Messages:
      17
      Latest: Personal stories request for... tatt, May 18, 2013 at 7:37 AM
      RSS
    1. General ME/CFS News

      Discuss NON-RESEARCH related ME/CFS News here in this forum.
      Discussions:
      1,675
      Messages:
      34,072
      Latest: Horrifying article in Sunday... David Egan, May 20, 2013 at 12:02 AM
      RSS
    2. Latest ME/CFS Research

      Post links to news articles, abstracts, etc about PUBLISHED RESEARCH SPECIFIC TO ME/CFS.
      Discussions:
      727
      Messages:
      14,185
      Latest: WHEN DEFINITIONS OBSCURE: A... Marco, May 20, 2013 at 8:34 AM
      RSS
    3. Phoenix Rising Articles

      Comment on the full length articles on the Front Page...This is the best and easiest way to comment on those articles.
      Discussions:
      492
      Messages:
      13,206
      Latest: Experts Reflect on the FDA... alex3619, May 21, 2013 at 11:22 AM
      RSS
    4. Other Health News and Research

      Find health news/research on another topic that you feel has implications for PWCs? Post it here.
      Discussions:
      1,900
      Messages:
      13,274
      Latest: Slate book review: Is... MeSci, May 21, 2013 at 1:45 PM
      RSS
    5. Active Clinical Studies

      Post information about clinical research projects currently seeking patient participants. Share your experiences.
      Discussions:
      117
      Messages:
      1,358
      Latest: Swedish trial of mercury... Mimi, May 21, 2013 at 5:28 AM
      RSS
    6. Miscellaneous ME/CFS Discussion

      A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
      Discussions:
      103
      Messages:
      2,189
      Latest: Lyme, too? GcMAF Australia, May 21, 2013 at 9:05 AM
      RSS
    1. Action Alerts and Advocacy

      THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
      Discussions:
      1,372
      Messages:
      23,116
      Latest: Patient writes to President... ggingues, May 21, 2013 at 12:40 AM
      RSS
    2. Advocacy Projects

      A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
      Discussions:
      38
      Messages:
      929
      RSS
    3. Petitions

      Post petitions relevant to ME/CFS here.
      Discussions:
      16
      Messages:
      217
      Latest: Please sign this petition Little Bluestem, May 21, 2013 at 4:49 AM
      RSS
    4. Fundraising

      Ways to financially support Phoenix Rising and other ME/CFS organizations worldwide through fundraising appeals, campaigns, online funding contests, etc.
      Discussions:
      50
      Messages:
      1,090
      RSS
    1. Symptoms

      Sleep problems, pain, difficulty standing, rapid heart beat, blood pressure problems, flu-like symptoms, fever, irritable bowel syndrome, vertigo, cognitive problems, sensitivity to odors, lights, sound, clumsiness, disorientation, perception problems
      Discussions:
      1,402
      Messages:
      22,077
      Latest: Alcohol Tolerance Poll Allyson, May 21, 2013 at 9:46 AM
      RSS
    2. ME/CFS Doctors

      Here's the place to ask for doctor referrals and recommendations. Share your experiences of your time with your doctor.
      Discussions:
      382
      Messages:
      4,556
      Latest: Seattle, WA: Harborview... WillowJ, May 21, 2013 at 8:46 AM
      RSS
    3. Diagnostic Guidelines and Laboratory Testing

      What tests should my doctor order? What do my results mean? Are there special tests for ME/CFS?
      Discussions:
      390
      Messages:
      4,297
      Latest: Test Cash Price for the... invisiblejungle, May 20, 2013 at 6:16 AM
      RSS
    1. General Treatment

      Supplements and drugs - dive in and check out what's going.
      Discussions:
      1,423
      Messages:
      21,212
      Latest: Nortriptyline seems to reduce... sianrecovery, May 21, 2013 at 1:46 PM
      RSS
    2. Addressing Biotoxin, Chemical & Food Sensitivities

      Many ME/CFS patients report being unusually reactive to a variety of environmental substances -- toxic mold, gluten, household chemicals, hazardous algae blooms, pesticides, EMF's, mercury and many others. Discuss strategies for avoidance and for lowering reactivities here.
      Discussions:
      200
      Messages:
      3,276
      Latest: MSG sensitivity Sushi, May 19, 2013 at 4:42 AM
      RSS
    3. Addressing Mast Cell Activation

      Is mast cell activation at the heart of ME/CFS? A place to post information and discuss treatment.
      Discussions:
      59
      Messages:
      1,052
      Latest: ME/CFS is a mast cell... camas, May 14, 2013
      RSS
    4. Alternative Therapies

      Acupuncture, massage, homeopathy, amygdala retraining, chiropractric, colonics, hyperbaric oxygen, lightning process, meditation, aromatherapy...the list goes on and on. Dig into the multi-faceted world of alternative therapies here.
      Discussions:
      355
      Messages:
      6,202
      Latest: Homeopathy and other... Kina, May 21, 2013 at 11:38 AM
      RSS
    5. Antivirals, Antibiotics and Immune Modulators

      Got pathogen problems? Discuss how you're trying to get rid of them. Antibiotics, Ampligen, Interferons, Nexavir, Valcyte, Valtrex, Vistide, Artesunate, etc. all are open game here.
      Discussions:
      457
      Messages:
      7,146
      Latest: First Cidofovir Infusion Done! Ema, May 21, 2013 at 1:29 PM
      RSS
    6. Detox: Methylation; B12; Glutathione; Chelation

      Are derangements in the detoxification mechanisms at the heart of ME/CFS? Hash that subject out here.
      Discussions:
      1,300
      Messages:
      24,617
      Latest: B2 I love you! Asklipia, May 21, 2013 at 10:32 AM
      RSS
    7. GcMAF

      A place to discuss treatment, post questions, provide information related to GcMAF.
      Discussions:
      114
      Messages:
      5,437
      Latest: MAF 878 Available - Anyone... suzanne, May 21, 2013 at 11:19 AM
      RSS
    8. Genetic Testing and SNPs

      Discuss genetic testing and Single Nucleotide Polymorphisms (SNPs), and treatments arising from that testing.
      Discussions:
      118
      Messages:
      1,688
      Latest: SOD2 A16V homozygous mutation... Thinktank, May 21, 2013 at 10:00 AM
      RSS
    9. Problems Standing: Orthostatic Intolerance; POTS

      Symptoms increase when you stand or sit up? Check out help for OI/POTS/NMH, vertigo etc.
      Discussions:
      178
      Messages:
      2,671
      Latest: The Milner Acetylcholine... adreno, May 21, 2013 at 10:07 AM
      RSS
    10. Rituximab: News and Research

      A place to discuss news and research related to Rituximab.
      Discussions:
      65
      Messages:
      1,873
      Latest: Well.... Young&sick, May 21, 2013 at 10:06 AM
      RSS
    11. The Gut: De Meirleir & Maes; H2S; Leaky Gut

      From Dr. Chia's enteroviruses to Dr. De Meirleir's and Dr. Maes's bacterial overgrowth to Marian Lemles H2S hypothesis, the gut is in the news. Discuss food allergies and dietary issues here.
      Discussions:
      356
      Messages:
      4,738
      Latest: Best antibiotic if needed for... ukxmrv, May 21, 2013 at 3:03 AM
      RSS
    1. Lifestyle Management

      Can lifestyle management make a big difference? Some research suggests it can. Discuss pacing, envelope therapy, sleep hygiene, diet, exercise , relationships, emotional factors and more in this forum.
      Discussions:
      515
      Messages:
      8,331
      Latest: Keeping hands away from face The Spitfire, May 21, 2013 at 5:03 AM
      RSS
    2. Finances, Work and Disability

      Working and managing one's finances are two of the trickiest aspects of this disease and disability can be lifeline. Figure out how to manage these fundamental issues in this forum.
      Discussions:
      180
      Messages:
      2,020
      Latest: What conditions to list for... WillowJ, May 21, 2013 at 8:53 AM
      RSS
    3. Spirituality and ME/CFS

      Topics related to spirituality and coping with ME/CFS. Threads about how spirituality helps you, relevant experiences, useful resources, prayer lists, sincere questions, etc. Please respect other posters and do not tear down their views.
      Discussions:
      124
      Messages:
      3,430
      Latest: The man who quit $ to live in... Seewell, May 17, 2013 at 9:31 PM
      RSS
    1. XMRV Research and Replication Studies

      Replication studies, genetics, effects, the endocrine connection, cohorts, immune system, murine viruses, cancer (!), etc.
      Discussions:
      743
      Messages:
      25,996
      Latest: What's Happened to Dr... JayS, Mar 7, 2013
      RSS
    2. XMRV Testing, Treatment and Transmission

      Talk about test results, treatment options, transmission and personal issues.
      Discussions:
      481
      Messages:
      12,769
      Latest: HTLV-1 Reservoir treatment! Daffodil, May 15, 2013 at 11:27 AM
      RSS
    3. Media, Interviews, Blogs, Talks, Events about XMRV

      Post interviews, blogs, talks, articles, images and events
      Discussions:
      863
      Messages:
      18,940
      Latest: With the XMRV Results... Esther12, Apr 15, 2013
      RSS
    1. Information and Resources

      Discussions:
      31
      Messages:
      235
      Latest: Chronic Fatigue Syndrome... Kina, May 11, 2013
      RSS
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program

      Discuss a project to create a Comprehensive Treatment Review Program to be folded into the PR Forums
      Discussions:
      8
      Messages:
      142
      Latest: Proposal: Create a... INKY, Jun 21, 2012
      RSS
    2. Patient Data Repository & Treatment Review Project

      Patient Data Repository & Treatment Review Project
      Discussions:
      35
      Messages:
      284
      Latest: CFS/ME Organisations Guido den Broeder, Mar 13, 2013
      RSS