1. Welcome to the new-look Phoenix Rising forums! You're welcome to browse the public discussions, but you'll need to sign up before you can post and join our community. You can get help with signing up and logging in here, or contact us if you still can't get in, and you can find out more about Phoenix Rising here.

Phoenix Rising ME / CFS Forums

  1. ME/CFS News and Research

    1. General ME/CFS News

      Discuss NON-RESEARCH related ME/CFS News here in this forum.
      Discussions:
      1,361
      Messages:
      25,578
      Latest: Simon Wessely and "all in the... Esther12, May 21, 2012 at 4:16 PM
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    2. Latest ME/CFS Research

      Post links to news articles, abstracts, etc about PUBLISHED RESEARCH SPECIFIC TO ME/CFS.
      Discussions:
      573
      Messages:
      9,711
      Latest: autoimmune link to bacteria Enid, May 21, 2012 at 4:26 PM
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    3. Phoenix Rising Articles

      Comment on the full length articles on the Front Page...This is the best and easiest way to comment on those articles.
      Discussions:
      390
      Messages:
      9,140
      Latest: Fighting For a Stake! FDA... Sing, May 21, 2012 at 2:29 PM
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    4. Other Health News and Research

      Find health news/research on another topic that you feel has implications for PWCs? Post it here.
      Discussions:
      1,254
      Messages:
      8,223
      Latest: 60 minutes- hard cases-... nanonug, May 21, 2012 at 4:38 PM
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    5. Active Clinical Studies

      Post information about clinical research projects currently seeking patient participants. Share your experiences.
      Discussions:
      92
      Messages:
      1,008
      Latest: MONTOYA STUDY needs more... August59, Apr 25, 2012
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  2. Advocacy and Fundraising

    1. Action Alerts and Advocacy

      THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
      Discussions:
      1,245
      Messages:
      22,055
      Sub-Forums: 1

      Action Alerts and Advocacy

      Sub-Forums

      1. Project Pages

      Latest: DSM-5 proposals for... ME agenda, May 20, 2012 at 1:31 PM
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    2. Fundraising

      Ways to financially support Phoenix Rising and other ME/CFS organizations worldwide through fundraising appeals, campaigns, online funding contests, etc.
      Discussions:
      13
      Messages:
      121
      Latest: $5000 on Offer for Australian... Googsta, May 16, 2012 at 7:29 AM
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    3. Petitions

      Post petitions relevant to ME/CFS here.
      Discussions:
      11
      Messages:
      113
      Latest: Please sign this petition! PWCalvin, May 16, 2012 at 4:58 AM
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  3. XMRV

    1. XMRV Research and Replication Studies

      Replication studies, genetics, effects, the endocrine connection, cohorts, immune system, murine viruses, cancer (!), etc.
      Discussions:
      722
      Messages:
      24,672
      Latest: anyone going after the... justy, May 21, 2012 at 2:31 PM
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    2. XMRV Testing, Treatment and Transmission

      Talk about test results, treatment options, transmission and personal issues.
      Discussions:
      477
      Messages:
      12,536
      Latest: CD4 count pilgrim, May 2, 2012
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    3. Media, Interviews, Blogs, Talks, Events about XMRV

      Post interviews, blogs, talks, articles, images and events
      Discussions:
      842
      Messages:
      18,324
      Latest: Cleaning up after XMRV barbc56, May 21, 2012 at 2:51 PM
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  4. Symptoms, Doctors, and Diagnostics

    1. Symptoms

      Sleep problems, pain, difficulty standing, rapid heart beat, blood pressure problems, flu-like symptoms, fever, irritable bowel syndrome, vertigo, cognitive problems, sensitivity to odors, lights, sound, clumsiness, disorientation, perception problems
      Discussions:
      1,027
      Messages:
      15,749
      Latest: Shimmering sensation in head Calathea, May 21, 2012 at 4:26 PM
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    2. ME/CFS Doctors

      Here's the place to ask for doctor referrals and recommendations. Share your experiences of your time with your doctor.
      Discussions:
      271
      Messages:
      2,741
      Latest: Might go to Dr. Klimas' office searcher, May 21, 2012 at 3:43 PM
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    3. Diagnostic Guidelines and Laboratory Testing

      What tests should my doctor order? What do my results mean? Are there special tests for ME/CFS?
      Discussions:
      252
      Messages:
      2,703
      Latest: Low ferritin - some more... justy, May 21, 2012 at 9:25 AM
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  5. Treatment and Therapy

    1. General Treatment

      Supplements and drugs - dive in and check out what's going.
      Discussions:
      979
      Messages:
      14,299
      Latest: Unusual question re. HRT peggy-sue, May 21, 2012 at 4:18 PM
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    2. Addressing Biotoxin, Chemical & Food Sensitivities

      Many ME/CFS patients report being unusually reactive to a variety of environmental substances -- toxic mold, gluten, household chemicals, hazardous algae blooms, pesticides, EMF's, mercury and many others. Discuss strategies for avoidance and for lowering reactivities here.
      Discussions:
      151
      Messages:
      2,572
      Latest: taurine for MCS? August59, May 21, 2012 at 4:01 AM
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    3. Alternative Therapies

      Acupuncture, massage, homeopathy, amygdala retraining, chiropractric, colonics, hyperbaric oxygen, lightning process, meditation, aromatherapy...the list goes on and on. Dig into the multi-faceted world of alternative therapies here.
      Discussions:
      277
      Messages:
      4,807
      Latest: best absorbed magnesium garcia, May 21, 2012 at 12:31 PM
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    4. Antivirals, Antibiotics and Immune Modulators

      Got pathogen problems? Discuss how you're trying to get rid of them. Antibiotics, Ampligen, Interferons, Nexavir, Valcyte, Valtrex, Vistide, Artesunate, etc. all are open game here.
      Discussions:
      330
      Messages:
      4,987
      Latest: Cipro for mycoplasma... richvank, May 21, 2012 at 6:48 AM
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    5. Detox: Methylation; B12; Glutathione; Chelation

      Are derangements in the detoxification mechanisms at the heart of ME/CFS? Hash that subject out here.
      Discussions:
      785
      Messages:
      14,714
      Latest: Low potassium and folate... blossom, May 21, 2012 at 4:45 PM
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    6. Genetic Testing and SNPs

      Discuss genetic testing and Single Nucleotide Polymorphisms (SNPs), and treatments arising from that testing.
      Discussions:
      24
      Messages:
      419
      Latest: Is Yasko's Nutrigenomics... Calico13, May 21, 2012 at 1:30 PM
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    7. Problems Standing: Orthostatic Intolerance; POTS

      Symptoms increase when you stand or sit up? Check out help for OI/POTS/NMH, vertigo etc.
      Discussions:
      97
      Messages:
      1,447
      Latest: Wore monitor to work... hurtingallthetimet, May 21, 2012 at 4:13 PM
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    8. The Gut: De Meirleir & Maes; H2S; Leaky Gut

      From Dr. Chia's enteroviruses to Dr. De Meirleir's and Dr. Maes's bacterial overgrowth to Marian Lemles H2S hypothesis, the gut is in the news. Discuss food allergies and dietary issues here.
      Discussions:
      240
      Messages:
      3,294
      Latest: Vinegar for low stomach acid madietodd, May 21, 2012 at 1:29 PM
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    9. GcMAF

      A place to discuss treatment, post questions, provide information related to GcMAF.
      Discussions:
      60
      Messages:
      3,460
      Latest: Maf314 Anyone in the NW of... clive powney, May 21, 2012 at 12:28 PM
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  6. Living with ME/CFS

    1. Lifestyle Management

      Can lifestyle management make a big difference? Some research suggests it can. Discuss pacing, envelope therapy, sleep hygiene, diet, exercise , relationships, emotional factors and more in this forum.
      Discussions:
      423
      Messages:
      6,661
      Latest: Mobility Scooter! xchocoholic, May 21, 2012 at 3:53 PM
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    2. Finances, Work and Disability

      Working and managing one's finances are two of the trickiest aspects of this disease and disability can be lifeline. Figure out how to manage these fundamental issues in this forum.
      Discussions:
      143
      Messages:
      1,507
      Latest: How to appeal an ESA decision... snowathlete, May 18, 2012 at 11:16 PM
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    3. Spirituality and ME/CFS

      Topics related to spirituality and coping with CFS. Threads about how spirituality helps you, relevant experiences, useful resources, prayer lists, sincere questions, etc. Please respect other posters and do not tear down their views.
      Discussions:
      92
      Messages:
      2,625
      Latest: White Hawk - A Good Spiritual... Patsy Morgan, May 19, 2012 at 11:51 AM
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  7. ME/CFS Information and Resources

    1. Information and Resources

      Discussions:
      14
      Messages:
      50
      Latest: Positive Care Programme Sleepyblondie, Apr 15, 2012
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  8. Phoenix Rising Projects

    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program

      Discuss a project to create a Comprehensive Treatment Review Program to be folded into the PR Forums
      Discussions:
      8
      Messages:
      141
      Latest: Preliminary Web Templates are... ArgyrosfeniX, Dec 3, 2011
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    2. Patient Data Repository & Treatment Review Project

      Patient Data Repository & Treatment Review Project
      Discussions:
      34
      Messages:
      271
      Latest: Supplements Sallysblooms, Nov 24, 2011
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