I'd love to hear more about the recovery stories. I'm on the milder end of the CFS spectrum, which is still unimaginably awful. No exercise, a shadow of a life, and the all the rest (except I can still work).
I want to know if these recoveries were full recoveries (complete return to pre-onset condition)- or just a significant symptom reduction.
That is something I haven't heard of yet.
I'm kind of shocked that you haven't heard this. But again, it is rare, and I think that's due mainly to the fact that most of the tests/treatments,etc., require $$$ (which I don't have!) because they aren't typically covered by most insurance plans. Again, an interview with Dr. Klimas would be great, but her quotes can be found with a google search.
But also extremely critical to the recovery process, is "letting go" and allowing oneself to 'accept' being ill, and maybe not recovering -- instead of "fighting" it (which is hard to do -- I want to get well YESTERDAY!). That's the one thing that the people I've met had in common -- they did a lot of 'active resting', instead of pushing/crashing/running from doctor to doctor to doctor.
Perhaps I can go into more detail at some point -- right now I'm in severe crash mode -- been that way off and on since December -- but like I say, they all had different triggers for the most part, but often removing on or two of the problems reduced the strain on their immune system so that other things resolved.
Cort has interviewed Martha Kilcoyne -- a woman who when she was ill could barely walk to her own bathroom at times, but 3-4 years later "celebrated her wellness by climbing Mount Kilimanjaro in 2000."
She relapsed a bit last year, but is now back to normal again. Here's the link:
klunk. :Retro smile: