fresh_eyes...what do you think about this idea: My university is on the same campus as one of the two NJ medical schools. What about an awareness project aimed at the med students? I am also a member of AMSA - a premed "club" - on campus. I don't think public opinion will change until physicians take this seriously. We might not be able to change the minds of those doctors who already have made up their mind about CFS. But if we can get the message out to future doctors, then there will be a new generation of enlightened physicians who won't make the same mistakes as their predecessors have.
You are perfectly positioned to actually make that happen. Wow! And then perhaps put together a packet others could use to replicate it at other med schools...Fantastic.