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Guys we should perhaps create a group on telegram and just chat about these problems there, it is faster
I have similar symptoms. I can always feel my heart beating. On bad days, it isn't just beating in my chest, but I can also feel it in my arms and hands. Sometimes it also feels like a weight is on my chest and it is hard to breath. I feel drained and have no energy when it gets bad. The doctors say it sounds like a panic attack, but it never goes away. I've been to the cardiologist multiple times and they say everything is fine with my heart. I've had episodes that last a couple of months then go away and everything is back to normal for years, but this time the symptoms have lasted for nearly two years.
I had tried all the suggested supplements without any success but I wanted to come back and post here if I ever found something that helped me... in case it might help someone else.
Like Katoo1, one day I took Ibuprofen (Motrin) for a headache and realized that I felt a lot better. I woke up the next morning and could barely feel my heart beating. I started taking Motrin every day and realized it worked best if I took it right before going to bed. I would wake up feeling better and all my symptoms were improving. The only problem was that after weeks of taking Motrin, I started having stomach pains and my doctor said not to take Motrin regularly because it can damage your stomach and create ulcers. I tried Aspirin and Tylenol but nothing helped like the Ibuprofen.
My doctor did every blood test she could come up with and never could find anything wrong. My levels always looked fine. Eventually she tried putting me on a Beta-Blocker (Propranolol). This worked great! It was better than the Ibuprofen (Motrin) but it wore off in 6-8 hours. It made the constant heart-beat-feeling go away and everything was normal again. I started taking the prescription medicine 3 times a day and didn't have any side effects, so she suggested that I stay on it. It doesn't seem to actually fix the problem as much as mask it. When it wears off I can start feeling my heart pounding again.
At some point, I had a few bad nights of sleep and even with the Propranolol my symptoms flared up and were bad for a while. When I got good sleep, I felt better again. There seemed to be some connection with sleep. The Ibuprofen/Motrin worked best when I took it before bed. I talked to my doctor and she suggested that I try some sleeping medicine as a test. I tried ZzzQuil, a non-habit forming sleep aid you can buy without a prescription. It was amazing! I started taking it before bed and waking up with almost no symptoms. Over a couple of months, I've reduced my Propranolol to only two pills a day and now only two half-pills a day. The symptoms seem to be fading away the more good sleep I get with ZzzQuil. I'm supposed to go to a sleep specialist next to see if they have any experience with this.
I'm sure different people have different issues that result in these symptoms and what worked for me may not be the solution for others, but I just wanted to let everyone know what helped me in case it might help anyone else.
Eventually she tried putting me on a Beta-Blocker (Propranolol). This worked great!
I tried ZzzQuil, a non-habit forming sleep aid you can buy without a prescription. It was amazing!
It definitely sounds like your cardiac symptoms were due to dysautonomia, which was alleviated by the beta-blocker. The fact that the ibuprofen also relieved the symptoms suggests that there might have been mild inflammation of the autonomic nerves.
But the question remains: why did better quality sleep resolve the dysautonomia?
It definitely sounds like your cardiac symptoms were due to dysautonomia, which was alleviated by the beta-blocker. The fact that the ibuprofen also relieved the symptoms suggests that there might have been mild inflammation of the autonomic nerves.
But the question remains: why did better quality sleep resolve the dysautonomia?
People with Graves disease may develop mitral valve prolapse. Graves can cause your heart to beat really loud and fast. One of the triggers that causes Graves is an EBV infection. Just putting this out there for anyone that didn't already know.i have slight mitral valve prolapse but doctor said it doesnt give those palpitations i feel.
People with Graves disease may develop mitral valve prolapse. Graves can cause your heart to beat really loud and fast. One of the triggers that causes Graves is an EBV infection. Just putting this out there for anyone that didn't already know.
I have and so has one of the neighborhood cats. We both have MVP as well.That makes sense, i will do test for thyroid next month so that might be the cause of my 24/7 heart beats...
Has anybody suffered from graves disease tho?
One or more of the following blood tests may be performed to determine whether your thyroid is functioning properly:
The above tests may also be ordered periodically to monitor thyroid function and hormone production.
- Thyroid-stimulating hormone (TSH) — typically low in Graves disease
- Free T4 — usually elevated
- Free and Total T3 — often elevated
Laboratory tests used to help diagnose Graves disease and distinguish it from other autoimmune conditions may include one or more of the following. These tests detect the presence of thyroid antibodies:
- Thyroid stimulating immunoglobulin (TSI) — presence of this antibody is diagnostic for Graves disease
- Thyroid stimulating hormone receptor antibody (TRAb) — less specific than TSI
- Anti-thyroid peroxidase antibody (anti-TPO) — this autoantibody is found in most people with Graves disease as well as in Hashimoto thyroiditis
I have and so has one of the neighborhood cats. We both have MVP as well.
These are some of the tests people have done:
Yes, even animals can have thyroid issues, and they can get the same treatments as humans.Cats? And how do you feel as of lately? Do you have heart thumping
Yes, even animals can have thyroid issues, and they can get the same treatments as humans.
I don't because my thyroid levels are under control for now. But I had issues for a good long time before I knew what was going on. I ended up in the hospital at one point because of it. I have been dealing with this for over 10 years, It is just part of having ME/CFS, all the surprises without any of the fun. I developed thyroid issues within four years of having ME/CFS.
Is anyone else’s pulse visible when you look at your neck? Quite visibly?
@goxus Can't remember if I have asked you this, but do you notice worse post meal pounding after high carb meals vs low?
@goxus Can't remember if I have asked you this, but do you notice worse post meal pounding after high carb meals vs low?