(Moving this from "How has the CCI news affected you" thread, seems more applicable here.)
@Hip I have wondered how CCI might fit into this scenario... the waxing and waning of symptoms, the changes in type and severity of symptoms. I describe myself as a leaky bucket- as soon as one set of symptoms improves, another worsens. And on rare occasions, the stars align and I have periods when I'm better (though still not functional, very careful about activity). I have just come off of 2 years of mostly housebound, and in the last month or so I'm more functional, with less PEM (I don't hold my breath, though...). I don't go into remission, as
@Moof does, just have periods with better function and less symptom severity.
..... how would this changing of symptoms apply to CCI? ....