taniaaust1
Senior Member
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- 13,054
- Location
- Sth Australia
You will never get better laying on a couch or in bed all day , that I’m sure of .
It was aggressive rest therapy which lead into a remission for me for several years till I caught another virus (I had no other treatment which lead to the remission), I had 2-3 years remission (I'd previously been very severe with the ME at one point I was completely bedbound for 9mths).
It should be underestimated just how much good quality resting can actually help some ME/CFS patients. Exercise never helped me with this illness. It often is not good to be trying to add in exercise when someone is already severely struggling with low energy to the point of struggling with simple tasks and other symptoms.
And lastly low intensity strength training which is the most important of all IMO, it will balance nervous system which will make viruses go dormant .
Following these things has completely stopped my muscle fasiculations, motor function is much better , brain fog better , my vision is normal again , my muscle spasms have greatly reduced , my energy is pretty good and my breathing isn’t labored or shallow anymore .
One low intensity strength training session with a physio who was supposively had worked with a couple of others with ME/CFS.. left me injured and in pain (it was like I actually tore something in my abdomen with one of the half sit ups/sit ups. I injured myself on the very first one of those) and left me crashing after she then had me do exercises with my hands and arms. She had me sit on the ground and cut some herbs (parsely/mint) and flowers off of some plants for like a rehab session (this is after injured by a half sit up)
I was left not even able to feed myself properly after this session, as I THEN due to the post exertional effects on my hands/arms, I could not even hold fork to my mouth without severe spasms and shaking so my food was going everywhere (spasms were then sending the food I finally got onto my fork up to a metre away from me). I was crashed for days and needing even more care. It took away my ability to be able to feed myself with a fork.
What use is any kind of exercise session even the most mild one when it leaves one for several days afterwards not then be able to do the things one usually does.......
sorry I've gone off topic but I hate it when someone posts saying rest wont help anyone when it was that which lead to my past remission, pushing to do anything more then what I feel okay to do and do now tends to worsen my state. Adding more activities in is disasterous in my case, the best thing for me with ME has always been more rest.
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