Just an update on gcmaf
Hi everyone,
I don't know if you're already using GCMAF but I suggest that you see a doctor before becoming a lab rat to these people. I know how hard (almost impossible) is to find a doctor that treats/understands M.E. But I wrote an email to these people after Jenny's post on clinical trials. To my surprise they said that there were no clinical trials, that they only had two xmrv + people trying this drug and that I should be a "suitable candidate" (all this by email).
The person who answered my email, David NOAKES also told me that I could buy it straight away, no prescription needed. They seem to be selling it like "candies". When I asked about my concern about not being followed up by a doctor, David NOAKES told me that "doctors don't know anything" (I agree for some of them, but there are a few researchers out there who "might know" a little bit, right?), that I don't need any prescription to buy it
, that I had to do my own research (well that was why I was contacting the company...) and I even got insulted by him! Just because I asked about my concerns.
Please be careful about this. Ask, read what well-known doctors have to say about this. I am as desperate as you are, after having tested positive but please think twice before trusting on any "miracle cures".
Best wishes.
Alex
ps: Here's the emails I sent and the response I got from David Noakes from GcMAf, Is this a professional way of treating queries?????
After David Noakes sent me a looong email with an extensive explanation on GCMAf, the fact that big pharma and doctors refuse to use this medication, but without saying why doctors would refuse their patients this "miracle cure", how I could get this medication, etc etc... I sent him the following reply :
From: ALEXANDRA <alex.maclachlan@free.fr>
Subject: RE: GcMaf
To: "'David Noakes'" <davidjnoakes@yahoo.co.uk>
Date: Monday, 21 March, 2011, 17:14
Ok so basically youre advising to buy a drug for which there were no clinical trials performed. Even if its true what you say, how can I trust this drug, wouldnt I need medical supervision? Has this drug been approved in Europe? You mention cancer and HIV but what about M.E.? No trials are being conducted then? We patients have to pay for a drug, and take the risk of being lab rats ourselves?
You see I agree with some of the things you say in your mail, but I find it very suspicious to get this message from a yahoo email address, trying to sell a drug, now of course you might be an honest person but I ignore who you are, and whose interests you are defending. In five years Ive seen so many unscrupulous people trying to get advantage from desperate patients, M.E. and fibromyalgia patients. And now with the xMRV I wouldnt be surprised things will even get worse for dirty businesses.
Is there a doctor I can ask for further information?
Regards,
Alexandra Maclachlan
I got the following answer afterwards:
De : David Noakes [mailto:davidjnoakes@yahoo.co.uk]
Envoy : lundi 21 mars 2011 22:29
: ALEXANDRA
Objet : RE: GcMaf
Yes there are, but you need to want to do this, and you clearly don't. You are not a suitable candidate for self administration. If you were, you would already have done your own research, and none of this would be new to you. YOU'RE ACTUALLY AN IDIOT TO ASK THESE QUESTIONS.
You need to know what you are talking about before you get involved, not afterwards.
David Noakes.
Now I don't know you people but I wouldn't trust guys like this one, Does anyone have a similar experience???? Now with XMRV I wouldn't be surprised to see bastards out there selling miracle cures that could even make you worse! This guy is talking about Self administration!!! Patients buying this stuff and administering it themselves!!! please BE AWARE!!
Hi everyone,
I don't know if you're already using GCMAF but I suggest that you see a doctor before becoming a lab rat to these people. I know how hard (almost impossible) is to find a doctor that treats/understands M.E. But I wrote an email to these people after Jenny's post on clinical trials. To my surprise they said that there were no clinical trials, that they only had two xmrv + people trying this drug and that I should be a "suitable candidate" (all this by email).
The person who answered my email, David NOAKES also told me that I could buy it straight away, no prescription needed. They seem to be selling it like "candies". When I asked about my concern about not being followed up by a doctor, David NOAKES told me that "doctors don't know anything" (I agree for some of them, but there are a few researchers out there who "might know" a little bit, right?), that I don't need any prescription to buy it
, that I had to do my own research (well that was why I was contacting the company...) and I even got insulted by him! Just because I asked about my concerns.Please be careful about this. Ask, read what well-known doctors have to say about this. I am as desperate as you are, after having tested positive but please think twice before trusting on any "miracle cures".
Best wishes.
Alex
ps: Here's the emails I sent and the response I got from David Noakes from GcMAf, Is this a professional way of treating queries?????
After David Noakes sent me a looong email with an extensive explanation on GCMAf, the fact that big pharma and doctors refuse to use this medication, but without saying why doctors would refuse their patients this "miracle cure", how I could get this medication, etc etc... I sent him the following reply :
From: ALEXANDRA <alex.maclachlan@free.fr>
Subject: RE: GcMaf
To: "'David Noakes'" <davidjnoakes@yahoo.co.uk>
Date: Monday, 21 March, 2011, 17:14
Ok so basically youre advising to buy a drug for which there were no clinical trials performed. Even if its true what you say, how can I trust this drug, wouldnt I need medical supervision? Has this drug been approved in Europe? You mention cancer and HIV but what about M.E.? No trials are being conducted then? We patients have to pay for a drug, and take the risk of being lab rats ourselves?
You see I agree with some of the things you say in your mail, but I find it very suspicious to get this message from a yahoo email address, trying to sell a drug, now of course you might be an honest person but I ignore who you are, and whose interests you are defending. In five years Ive seen so many unscrupulous people trying to get advantage from desperate patients, M.E. and fibromyalgia patients. And now with the xMRV I wouldnt be surprised things will even get worse for dirty businesses.
Is there a doctor I can ask for further information?
Regards,
Alexandra Maclachlan
I got the following answer afterwards:
De : David Noakes [mailto:davidjnoakes@yahoo.co.uk]
Envoy : lundi 21 mars 2011 22:29
: ALEXANDRA
Objet : RE: GcMaf
Yes there are, but you need to want to do this, and you clearly don't. You are not a suitable candidate for self administration. If you were, you would already have done your own research, and none of this would be new to you. YOU'RE ACTUALLY AN IDIOT TO ASK THESE QUESTIONS.
You need to know what you are talking about before you get involved, not afterwards.
David Noakes.
Now I don't know you people but I wouldn't trust guys like this one, Does anyone have a similar experience???? Now with XMRV I wouldn't be surprised to see bastards out there selling miracle cures that could even make you worse! This guy is talking about Self administration!!! Patients buying this stuff and administering it themselves!!! please BE AWARE!!
