Found good integrative doctor: need input on OAT, TOX and DNA testing

[YippeeKi YOW !!]

I got questions just hard to. Word them right. It's like my brain has trouble spitting them out.

Just spin them out any way you can, and I'll string it all together and ask questions if I can't make enough sense of it all ....

 

[HABS93]

Just spin them out any way you can, and I'll string it all together and ask questions if I can't make enough sense of it all ....

Two foggy brains equals a normal brain right ? Haha . Is my toxicology test make sense for the symptoms I'm feeling ? I haven't gone over the tox test with the integrative doctor that's three weeks away.

 

[jaybee00]

Unfortunately, an integrative doctor won’t cure your MECFS. There is currently no approved treatment for MECFS.

 

[YippeeKi YOW !!]

Two foggy brains equals a normal brain right ? Haha . Is my toxicology test make sense for the symptoms I'm feeling ? I haven't gone over the tox test with the integrative doctor that's three weeks away.

This is way above my pay grade, but there are three areas in your TOX report that drew my immediate attention.

I have to address some personal issues right now, but will be back later to fill in the blanks.

For now, here's a thumbnail sketch ...


PAGE 1…
1) 2-Hydroxyisobutyric Acid (2HIB)
Exposure to these compounds is most likely due to groundwater contamination, inhalation or skin exposure to gasoline or its vapors, and exhaust fumes. MTBE has been demonstrated to cause hepatic, kidney, and central nervous system toxicity, peripheral neurotoxicity, and cancer in animals.

4) Phenylglyoxylic Acid (PGO)
Occupational exposure due to inhalation of large amounts of styrene adversely impacts the central nervous system, causes concentration problems, muscle weakness, fatigue, and nausea, and irritates the mucous membranes of the eyes, nose, and throat.

PAGE 3 …
10) N-acetyl(propyl)cysteine (NAPR)
Can cause sensory and motor deficits. Chronic exposure can lead to decreased cognitive function and impairment of the central nervous system. Acute exposure can lead to headaches.


PAGE 4…
12) N-acetyl-S-(2-carbamoylethyl)cysteine (NAE)
Acrylamide can cause skin irritation such as redness and peeling. It has also been tied to neuropathy regarding the central nervous system and the peripheral nervous system. Long term exposure to acrylamide can produce motor and sensory polyneuropathy such as numbness of lower limbs, tingling of the fingers, vibratory loss, ataxic gait, and muscular atrophy. Studies have also shown that acrylamide has carcinogenic properties.

You're off the charts on this one ... will fill in the blanks later ...

 

[HABS93]

@YippeeKi YOW !! It's kind of scary those are seriously high % from some of these toxins. It's okay take your time. Itook a nice nap today.
I'm starting to see the bigger picture. My genetics show I have a low methylation cycle. Was exposed to alot of toxins most people don't ever go around (Oil refinery). System stopped detoxing properly because I didn't eat healthy or support my body. Adding on college partying to make the toxin burden overload. Hence why I developed sarcoidosis as well? Just connecting the dots . So the NAC 1000-1500mg is my best net?

 

[HABS93]

Unfortunately, an integrative doctor won’t cure your MECFS. There is currently no approved treatment for MECFS.

I don't have CFS and never give up hope. They will figure it out.

 

[YippeeKi YOW !!]

Unfortunately, an integrative doctor won’t cure your MECFS. There is currently no approved treatment for MECFS.

@HABS93 is investigating numerous issues right now that could have multiple bases other than ME, which is another way of going at it: whittle down the offenders til you're sure that the ones your dealing with have no other source than ME ....

 

[YippeeKi YOW !!]

So the NAC 1000-1500mg is my best net?

That and glutathione seem to be the recommendations. ..

Talk to your Dr about all this, I'm really punching above my weight here, but am giving it my best .... I think your Dr already has you on NAC, yes? Ask him if adding in glutathione, either now or further down the line, would be a good idea ....

 

[YippeeKi YOW !!]

I'm starting to see the bigger picture. My genetics show I have a low methylation cycle. Was exposed to alot of toxins most people don't ever go around (Oil refinery). System stopped detoxing properly because I didn't eat healthy or support my body. Adding on college partying to make the toxin burden overload. Hence why I developed sarcoidosis as well? Just connecting the dots .

You're TOTALLY on the right track !!!

Onward and upward !!!!

 

[HABS93]

@HABS93 is investigating numerous issues right now that could have multiple bases other than ME, which is another way of going at it: whittle down the offenders til you're sure that the ones your dealing with have no other source than ME ....

This is exactly what I'm doing. Process of elimination. You have to try and find out what went wrong for peace of mind. Less about a cute and more about peace of mind. Maybe I can help some people not make the same mistakes I make. That itself makes me happy.

 

[HABS93]

That and glutathione seem to be the recommendations. ..

Talk to your Dr about all this, I'm really punching above my weight here, but am giving it my best .... I think your Dr already has you on NAC, yes? Ask him if adding in glutathione, either now or further down the line, would be a good idea ....

Yes he has me on 1500mg . I never even thought about taking glutathione. I was doing some research today and the studies I read showed a increase on glutathione more from NAC then taking glutathione itself. I find that interesting. I've had some detox reactions at first but they have seemed to gone away. The brain fog though seems to be the one feeling the worst. The amount of antioxidants I'm getting from veggies is alot though. I spend 250$, a week on chicken , veggies , salmon , fruit. My doctor says these things will also help your glutathione do its job . Also no more plastic anything. Just glass or stainless steel. The water I drink is reverse osmosis at home and work. What sucks is I just want to play hockey but I know my body can't handle it.

 

[HABS93]

@YippeeKi YOW !! I have one more question for you! This has been a really eye opening now. I understand a lot about what they mean. I remember my first blood test after I got sick two years ago was low hemoglobin 142 was the borderline and I had 139 . He said "Its anxiety and sometimes people have lower hemoglobin but that doesn't cause the symptoms you are having".
If I need 5-mthr (Active folic acid ) and have that defect could that cause a problem with folic acid ? My symptoms oddly enough are pretty similar to that. Just brainstorming

 

[YippeeKi YOW !!]

If I need 5-mthr (Active folic acid ) and have that defect could that cause a problem with folic acid ? My symptoms oddly enough are pretty similar to that. Just brainstorming

Yes, I think it very well would .... folic acid is a fairly inert chemical substance that your body has difficulty converting under the best of circumstances. At the very least, you might try folate, the natural form of Vit B-9, which has to be converted into 5 MTHF before it can enter your bloodstream and go on to be absorbed.... so you would probably benefit more from going straight to the source-form, as it were, and take 5-MTHFR .....

Back shortly .... am playing catch up right now ....

 

[HABS93]

@YippeeKi YOW !! How are you doing though? I strangely had a dream about taking 5-mthr and after months found my energy. However today was my Monday and work kicked my a**.
My functional doctor wants blood test for every level. I'm confused why my MD didn't get bloodwork for all my B levels. I realized just side a basic lab run. Didn't realize there's a different type of anemic which is related to folic acid ..

 

[YippeeKi YOW !!]

Didn't realize there's a different type of anemic which is related to folic acid ..

Right there with you ..... I always thought that was primarily related to pregnancy ....

It's a form of anemia caused by a decrease in red blood cells due to folate deficiency .... who knew?

Your Dr may be trying to spare your finances by not testing for absolutely everyting all at once, and waiting til he/she has a better idea of which direction to go in, and what areas need immediate attention ....

I think the tests he/she ordered for you re tox screen and nutrition were pretty decent .... but then, I dont have a wide range of comparison ....

 

[YippeeKi YOW !!]

How are you doing though?

Sorry, Imissed responding to this part of your post, went straight to the folate issue ...

I'm doing OK. Been better. Been worse. You know, the same old, same old ....

 

[HABS93]

Right there with you ..... I always thought that was primarily related to pregnancy ....

It's a form of anemia caused by a decrease in red blood cells due to folate deficiency .... who knew?

Your Dr may be trying to spare your finances by not testing for absolutely everyting all at once, and waiting til he/she has a better idea of which direction to go in, and what areas need immediate attention ....

I think the tests he/she ordered for you re tox screen and nutrition were pretty decent .... but then, I dont have a wide range of comparison ....

Oh he meant for my MD. I'm using the MD to get the OHIP (Ontario , Canada free health care ) to get blood test . I've only had to pay for the tox and DNA genectics one. He OAT neurotransmitter one is a good one. However having your methylation off would be the root for if your transmitters are off so I wont get it. I'm more worried this is permanent. Even if I correct everything.

 

[HABS93]

Sorry, Imissed responding to this part of your post, went straight to the folate issue ...

I'm doing OK. Been better. Been worse. You know, the same old, same old ....

What really helps me is pretend I'm normal and joke around. Comedy relief. So boring I hope wherever we go next is a lot more fun

 

[YippeeKi YOW !!]

I'm more worried this is permanent. Even if I correct everything.

I'm hardly a medical expert, but in my opinion and experience, I dont think so .... chin up !!!

 

[YippeeKi YOW !!]

What really helps me is pretend I'm normal and joke around. Comedy relief.

Believe it or not, that's a really good way to deal with this .... it's surprizing the number of ways you can fool you mind/body into kicking into a more positive response, along with the very solid nutritional and other changes you're making !!!

So boring I hope wherever we go next is a lot more fun

I agree .... I'd settle for just, you know, pleasanter ....