AndyPR
Senior Member
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Borrowed this info from the ME Research UK Facebook page - link to post https://www.facebook.com/MEResearchUK/posts/1524760864235832
With the aim of improving mental health and wellbeing, the Joint Commissioning Panel for Mental Health offers guidance on the provision of services for mental illness in England. Its recent guide on “medically unexplained symptoms” (http://bit.ly/2kvqH15) includes CFS/ME, which is described as a “functional somatic syndrome”.
This misrepresents an illness that the World Health Organisation classifies as an organic neurological disease, and in which numerous scientific articles have reported pathological changes.
If you have similar concerns, and live in England (where this document applies), the 25% ME Group has written a very helpful pro forma letter to the CEO of NHS England, which you can download from their website (http://bit.ly/2pl8pTc) and adapt for your own use. They also have an information sheet with more about the issue (http://bit.ly/2q53pQt).