Fixing Leaky Gut Helps ME/CFS, and Sometimes Achieves Full Remission

[MaximilianKohler]

Ehh, I've gone to chinese herbalists and it wasn't helpful at all. I even went to a very expensive one.

 

[Rufous McKinney]

it wasn't helpful at a

I understand. I found an amazing person and have been going to them for ten years at least. They help me with everything. The notion "it wasn't helpful" suggests you went in for a single visit to someone, tried something.

I had a horrible rash for like 8 years that appeared one day and took over. I went for ten straight months before the "rash" (test)...went away. No placebo, as I had given up the thought it would go away. But since I felt a quite a bit better on the herbs, I kept going. Rash disappears over two weeks. Its never returned.

Most of the time, these herbs work more slowly but achieve a much better result. Look further into it. See if you can find somebody else. Check with a Chinese college where people are trained in Traditional Herbs. Many acupuncturists don't do the Traditional Herbs. OR: they give you something, but its not the true Traditional Herbs. They are taking short cuts. It takes YEARS to learn this skill. And its very hard work, very complex.

 

[MTpockets]

this is a long thread so i may have missed it but what supplements/treatments have people found most beneficial in helping leaky gut?

besides the diet and boiling and adding vitamin c to tap water ( thanks @Hip for that one) what else out of the many recommendations have people found helpful?

Probiotics were key after diet change. At least in my case. Also antifungals.

 

[Victronix]

"who provided me the four herbs which target my IBS-D"

What were the four herbs?

 

[Daffodil]

Has anyone used rifaximin/xifaximin to rid intestinal bacteria. I hear KDM uses this for gut treatment??

Rifaximin is a semisynthetic, rifamycin-based non-systemic antibiotic, meaning that very little of the drug will pass the gastrointestinal wall into the circulation as is common for other types of orally administered antibiotics. It is used in the treatment of traveler's diarrhea and hepatic encephalopathy, for which it received orphan drug status from the U.S. Food and Drug Administration in 1998.





Contents
[hide] 1 Uses
2 Availability
3 References
4 External links


[edit] Uses

Rifaximin is licensed by the U.S. Food and Drug Administration to treat traveler's diarrhea caused by E. coli.[1] Clinical trials have shown that rifaximin is highly effective at preventing and treating traveler's diarrhea among travelers to Mexico, with few side effects and low risk of developing antibiotic resistance.[2] [3] It is not effective against Campylobacter jejuni, and there is no evidence of efficacy against Shigella or Salmonella species.

It may be efficacious in relieving chronic functional symptoms of bloating and flatulence that are common in irritable bowel syndrome.[4] There was recently a pilot-study done on the efficacy of rifaximin as a means of treatment for rosacea, according to the study, induced by the co-presence of small intestinal bacterial overgrowth.[5]

In the United States, rifaximin has orphan drug status for the treatment of hepatic encephalopathy.[6] Although high-quality evidence is still lacking, rifaximin appears to be as effective as or more effective than other available treatments for hepatic encephalopathy (such as lactulose), is better tolerated, and may work faster.[7] The drawbacks to rifaximin are increased cost and lack of robust clinical trials for HE without combination lactulose therapy.

A recent study suggests that treatment with rifaximin relieves symptoms for some sufferers of irritable bowel syndrome. [8]

[edit] Availability

Rifaximin is currently sold in the U.S. under the brand name Xifaxan by Salix Pharmaceuticals. It is also sold in Europe under the names Spiraxin, Zaxine, Normix, Rifacol and Colidur, and in India under the name Rixmin, Rcifax, Rifagut and Torfix.

India's Lupin and US firm Salix Pharmaceuticals have joined forces to develop and commercialise an extended-release version of rifaximin using Lupin's proprietary bioadhesive technology

cheers!!!

hi heap. i just came across your post while searching where to buy rifaximin (i just lost my private insurance). so i know about lupin/salix but their price is $700 USD for 60 pills. I came across rifagut and was about to purchase when i read your post saying that lupin and salix's drug is extended release.....so they are not the same thing??\

thanks alot

 

[heapsreal]

hi heap. i just came across your post while searching where to buy rifaximin (i just lost my private insurance). so i know about lupin/salix but their price is $700 USD for 60 pills. I came across rifagut and was about to purchase when i read your post saying that lupin and salix's drug is extended release.....so they are not the same thing??\

thanks alot

I actually cant remember the thread lol.
But they do sell rifaximin from Safe Generics Pharmacy . Easy to find on google.

I hope that helps

 

[Crux]

searching where to buy rifaximin (i just lost my private insurance)

I don't know if this will help, but I buy rifaximin from Inhouse Pharmacy.
https://www.inhousepharmacy.vu/

 

[Daffodil]

I don't know if this will help, but I buy rifaximin from Inhouse Pharmacy.
https://www.inhousepharmacy.vu/

thanks crux. i found that in another thread but when i looked at the manufacturer, it said "ALKEM". the only people who make it, as far as i know, are: Alfa Wassermann SpA; ASKA Pharmaceutical; Lupin; Norgine; Salix Pharmaceuticals

now there are people making it (probably) illegally, including Sun Pharma, the largest drug maker in India...i just have to find out more about Alkem.

does the drug work for you? have you compared it to the brand name one?
thank you

 

[Daffodil]

hmm looks like Alkem is another indian manufacturer

ok well the generic by Sun Pharma is less than half the price of the Alkem one...

 

[ljimbo423]

thanks crux. i found that in another thread but when i looked at the manufacturer, it said "ALKEM". the only people who make it, as far as i know, are: Alfa Wassermann SpA; ASKA Pharmaceutical; Lupin; Norgine; Salix Pharmaceuticals

now there are people making it (probably) illegally, including Sun Pharma, the largest drug maker in India...i just have to find out more about Alkem.

does the drug work for you? have you compared it to the brand name one?
thank you

I bought this one 3 times this year between March and May. It worked very well and gave me a big head start on treating my SIBO/dysbiosis.

 

[Crux]

does the drug work for you? have you compared it to the brand name one?
thank you

I haven't tried the brand name one, xifaxan, so I can't compare. The price was prohibitive, so I tried the Alkem . I didn't research very well.

So the generic by Sun Pharma is a good price ?

The Alkem rifaximin I've taken is very strong. I take a low dose occasionally when gut symptoms act up. I'll also get headaches, body aches, night sweats, worse sleep, more fatigue, etc. when infections arise.

 

[Daffodil]

@ljimbo423 i was just about to order but they wont ship to canada

none of the reliable ones will ship here cuz of the laws.

which makes no sense cuz my europe rugs get here with no issue at all

the only trouble i ever had (months of hellish trouble) was ordering meds going to NY state!

so looks like i will either buy from an iffy pharmacy and get the Sun Pharma one or pay over $500 and get it here.

not sure what to do

 

[ljimbo423]

@ljimbo423 i was just about to order but they wont ship to canada

none of the reliable ones will ship here cuz of the laws.

which makes no sense cuz my europe rugs get here with no issue at all

the only trouble i ever had (months of hellish trouble) was ordering meds going to NY state!

so looks like i will either buy from an iffy pharmacy and get the Sun Pharma one or pay over $500 and get it here.

not sure what to do

That stinks that they won't ship to Canada. Best of luck, I hope you can find a decent pharmacy, with good prices.

 

[Daffodil]

I haven't tried the brand name one, xifaxan, so I can't compare. The price was prohibitive, so I tried the Alkem . I didn't research very well.

So the generic by Sun Pharma is a good price ?

The Alkem rifaximin I've taken is very strong. I take a low dose occasionally when gut symptoms act up. I'll also get headaches, body aches, night sweats, worse sleep, more fatigue, etc. when infections arise.

wow. yea there is one by sun pharma which is a lot cheaper. and then there is one you can buy from LUPIN, which is also cheap. however, lupin is also the one who makes it for salix at a very high price...so i dont know what the heck is going on. could be fake

 

[Daffodil]

well turns out no internet pharmacy will ship to canada. just nuts nuts nuts. even the weird rogue ones wont lol. canada seems to have done a great job preventing us from ordering! looks like i have to either pay the 550 or travel to buffalo which i am currently not really well enough to do. oh boy. used to be there was a location close to the bus station in buffalo where i would just pick up my orders and get back on the bus but they moved that too ! ughh

i could get someone to ship me the medicine fom the USA but it could easily be stopped by customs....

 

[Daffodil]

I got it shipped to Niagara falls NY..there is a new business there where you can pick up packages and its not too far from the bridge.....its still a trek but will have to manage it!
xo

 

[enginewitty]

A leaky gut regimen that I derived benefits from is:

Leaky Gut Protocol
Saccharomyces boulardii (Jarrow) x 2 capsules
Grape seed extract 200 mg
Zinc carnosine 75 mg
Vitamin E 400 IU
N-acetyl-glucosamine 500 mg
Triphala 1500 mg
Glutamine powder 1 heaped tsp (6 grams)
Slippery elm bark 1000 mg
Zinc 20 mg

I took all these twice daily.

what was your result??

 

[knackers323]

@ljimbo423 have you ever had any testing done on your gut biome, before taking the rifaximin or since?

 

[ljimbo423]

@ljimbo423 have you ever had any testing done on your gut biome, before taking the rifaximin or since?

I had a CDSA done before I took the Rifaximin. It showed an extremely high level of dysbiosis. I haven't had any other testing since I started the Rifaximin and herbal antibiotics.

What I do know for certain, is that the longer I treat my dysbiosis and leaky gut the better I feel! I have improved dramatically from when I first started treating my gut just over a year and a half ago.

I have little doubt I would be even healthier or in remission, if I was able to tolerate higher levels of antibiotic herbs without getting re-occurring flu-like flares.

Because of the flu-like flares limiting the amount of antibiotic herbs I really need. My recovery has been much slower than it would have been otherwise.

 

[Daffodil]

I had a CDSA done before I took the Rifaximin. It showed an extremely high level of dysbiosis. I haven't had any other testing since I started the Rifaximin and herbal antibiotics.

What I do know for certain, is that the longer I treat my dysbiosis and leaky gut the better I feel! I have improved dramatically from when I first started treating my gut just over a year and a half ago.

I have little doubt I would be even healthier or in remission, if I was able to tolerate higher levels of antibiotic herbs without getting re-occurring flu-like flares.

Because of the flu-like flares limiting the amount of antibiotic herbs I really need. My recovery has been much slower than it would have been otherwise.

may I ask how you treated your gut? sorry you may have mentioned it but my fog is very bad. aside from antibiotics, rifaximin, diet?

I wish I had the money to do multiple fecal transplants. it would probably work only for a while but still...
xo