Famous (and sort of famous) ME/CFS sufferers

me/cfs 27931

Senior Member
Messages
1,294
Likes
4,119
Yes - I find it hard to understand exactly what his diagnosis was /is. He seems to be able to exercise to some extent which is a big improvement from bed ridden. But no mention of me/cfs.
Mono induced fatigue combined with over training ?
Just saw a retrospective/interview of Robin Soderling on Tennis Channel. It mentioned mono and repeated attempts at a comeback but never fully recovering. No diagnosis other than mono was mentioned, which seemed odd.

"He retired early from professional tennis in 2015 due to health concerns."

If he has ME/CFS, it must be mild, as he apparently only seems to have issues during intense training (says he's 80 or 90%).

I see it's on Youtube.
 

AndyPR

Senior Member
Messages
2,516
Likes
18,192
Location
Guiding the lifeboats to safer waters.

Justin30

Senior Member
Messages
1,065
Likes
1,289
This thread is very important as having auch celebrities come out and say it ruined my career or stiffled ot or whatever the world would take Notice.

The PACE trial and CFD have so erroneously misled the world in so that people wont openly admit they have a chronic debilitating illness with no treatment its just so messed up.

I hope once PACE and there misleading the globe gets spread to all nations these celebrities will come out of the woodwork and share the detriment of the disease on their lives.

I just am still in awe over this disease and how since now I heard Dr Hyde say it was described in the 1800's.

Some major political unjustice for way to long.
If Naviaux is right and replication becomes apparent then I hope that these athletic celbs say yeah I could barely do what I used to publically and didnt want to admit it because of the ridicule that would have taken place.

We need a ME poster child and soon....plus a commercial that shows the most severely ill.
 

erin

Senior Member
Messages
880
Likes
2,671
Tara Palmer Tomkinson died yesterday aged 45, did she have ME? They found the tumour in her pituitary gland and further tests revealed she was suffering from a rare auto-immune condition.
 

BurnA

Senior Member
Messages
2,087
Likes
9,786
Tara Palmer Tomkinson died yesterday aged 45, did she have ME? They found the tumour in her pituitary gland and further tests revealed she was suffering from a rare auto-immune condition.
If they found it in a test that rules out ME :).

I did read she had a rare autoimmune disease with fatigue and joint pain.
 

Tom Kindlon

Senior Member
Messages
1,635
Likes
8,659
Rock-Star Led a Full Life of Resistance
Naomi Weisstein fought against the idea of women as objects in both the fields of psychology and rock ‘n roll

http://www.smithsonianmag.com/scien...r-led-multifaceted-life-resistance-180962814/
In March 1980, Weisstein was diagnosed with chronic fatigue syndrome. From 1983 to 2013, she was bedridden. “I do believe that the horrors at Buffalo played a role in making her sick in 1980,” says Lemisch. Still, Weisstein continued to work. After her diagnosis, she remained on journal editorial boards, kept her lab in Buffalo going for eight more years, and published 17 more articles, the last in 1992.

To Lemisch, the diagnosis of chronic fatigue syndrome opened up “a whole new world of bigotry.” Chronic fatigue syndrome was understudied and vastly misunderstood. The doctors “characterize[d] it as psychosomatic and ‘female hysteria,’ to use the old, sexist term,” Lemisch says. As her illness continued, it became clear to her husband that “the years of struggle within science now meant a struggle with the medical profession.”
 

leela

Slow But Hopeful
Messages
3,278
Likes
7,318
Location
Couchland, USA
"In the weeks leading to Weisstein’s death in 2013, her doctor insisted she did not have cancer, despite her ongoing concern of vaginal bleeding. Though eventually diagnosed and admitted to Lenox Hill hospital for cancer, the doctor there failed to find a benign tumor near her stomach—even though she could point right to it. The tumor kept her from eating and drinking, but the doctor insisted that she just wasn’t trying. Weisstein died on March 26, 2015 of ovarian cancer—a death that was certainly hastened by the medical profession’s dismissal of a woman’s pain."

Oh, the irony. And in 2015, after a lifetime of fighting for women's rights.
 

Starsister

Senior Member
Messages
785
Likes
2,107
Location
US
This thread is very important as having auch celebrities come out and say it ruined my career or stiffled ot or whatever the world would take Notice.

The PACE trial and CFD have so erroneously misled the world in so that people wont openly admit they have a chronic debilitating illness with no treatment its just so messed up.

I hope once PACE and there misleading the globe gets spread to all nations these celebrities will come out of the woodwork and share the detriment of the disease on their lives.

I just am still in awe over this disease and how since now I heard Dr Hyde say it was described in the 1800's.

Some major political unjustice for way to long.
If Naviaux is right and replication becomes apparent then I hope that these athletic celbs say yeah I could barely do what I used to publically and didnt want to admit it because of the ridicule that would have taken place.

We need a ME poster child and soon....plus a commercial that shows the most severely ill.
And poster folks who show the other faces of ME..those of us who "look fine" to everyone but they don't see the pain, and the fatigue. I think the pics of folks bed bound is important but we also need the visibility of the invisible. And we need the words around, people have empathy for those with cancer, even when they look healthy, because people have heard the publicity and research about cancer, know people with cancer. Maybe we need ME Awareness buttons to wear, or a button saying "ask me about ME/CFS. The conversations have to start somewhere.