I recently watched a book review/interview with Janis Ian (singer, songwriter, activist, author - "At Seventeen", Society's Child", etc.) and she talked about her many years with CFS.
I think she has a website where she discusses what she chose as a treatment/protocol.
I believe it included enforced absolute rest for several months at a time followed by "guarded" (limited) activity. She said she had a "support system" of, like, a dozen or so people to care for her every need (during these "rest periods"), in order to accomplish this.
Very interesting - check out her website. This plan has enabled her to once again, perform (although limited and no air travel).
I've been trying to teach my Pomeranians to at LEAST answer the phone for me (when I need to rest) - but so far they just let it ring and ring. I'm beginning to think they don't even speak English.
Also, wasn't Stevie Nicks (Fleetwood Mac) bedridden for several years? Think so.