Embargo broken: Bristol University Professor to discuss trial of quack cfs tx

BurnA

BurnA

Senior Member
Messages
2,087
Orla said:
Dear God, I can't believe anyone would take this trial seriously. Please please please let this be the beginning of the end for the BPS lobby, mind you what will we have to endure in the
meantime
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This may well be the beginning of the end.
How can any science body fund Esther Crawley after this, how can Stephen Holgate and the CMRC survive supporting Esther Crawley.
They will be the laughing stock of the science world.
 
L

Londinium

Senior Member
Messages
178
BurnA said:
This may well be the beginning of the end.
How can any science body fund Esther Crawley after this, how can Stephen Holgate and the CMRC survive supporting Esther Crawley.
They will be the laughing stock of the science world.
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Only if we get across just how mental LP is. And that's surprisingly difficult to do, given that they charge £700 for a course and everything's under copyright. I can bet that today's briefing didn't focus on the bits about drawing circles on the ground and shouting 'STOP' like a policemen at your symptoms. It'll have used euphemisms like 'innovative ways to stop negative thoughts'.

Showing the dubious 'healer' claims of Phil Parker is one angle, certainly: we have the SMC *at the Wellcome Trust* promoting the cures of somebody who in the past thought bits of his osteopathy patients' bodies could tell him 'factually accurate' things about the history of the patient.
 
Dx Revision Watch

Dx Revision Watch

Suzy Chapman Owner of Dx Revision Watch
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Via Dr Marc-Alexander Fluks

Source: NICE
Date: September 15, 2017
Author: Mark Baker (director of the centre of guidelines at NICE)
URL: https://www.nice.org.uk/news/blog/guidelines-not-tramlines

Guidelines, not tramlines
-------------------------

A recent headline in the Times said 'Doctors must send obese patients to
cookery class'. It was for an article about our updated guidance for
preventing type 2 diabetes. However, instead of raising awareness of our
new guidance it unfortunately suggested NICE recommendations are meant
as instructions or advice.

We want to set the record straight.

NICE guidance is not mandatory. Our recommendations never instruct a GP
or healthcare professional to do anything. We are here to support their
decisions, not dictate them. We assess the very best, highest quality
evidence so that they can trust our advice is reliable, but it is then
up to them as to whether they follow what we suggest, or whether they
think their patient would benefit from a different approach. We
recognise that they are best placed to make this call. They are the
people who see, treat and talk to their patients about what they want
and need, after all.

When headlines and media coverage suggest otherwise, painting a picture
of us handing down 'must dos' and obligatory instructions, it helps no
one.

Our health and social care sector is under immense pressure, facing
unprecedented demand from a patient population with complex needs. It is
vital now, more than ever that we work together to ensure we are
providing the very best care as efficiently as possible. NICE guidance
can help to achieve that, but it should be seen as part of the puzzle,
not the only answer.

--------
(c) 2017 NICE
 
S

Starlight

Senior Member
Messages
152
This is just so unfortunate,we will once again have people who know nothing of the lightening process or of cfs really become even more expert than the y already are. I have quite a few in my circle whose eyes already glaze over when I try to explain research., pace trial, cohorts etc. They seem to have all read about not reinforcing false illness beliefs as they never ever ask about me or my health. After tomorrow I'm sure the silences will get even longer and the looks even more glazed. I only hope the few people I know who are believers don't swallow this Bullshit.i feel that if I try to explain any more I will sound like a complete conspiracy theorist..I really wish we had all been spared this.
 
S

Starlight

Senior Member
Messages
152
I really feel sorry tonight for the children who have this cursed illness and for their parents. They will probably come under enormous pressure from all sides. I don't know how the children were chosen for this trial but I hope it can be shown to be seen to be a poor as the pace trial at least..I wish this was a bad dream.
 
I

Invisible Woman

Senior Member
Messages
1,267
Sean said:
The savages who inflict this on children will bear full responsibility for any suicides resulting from it.
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I really hope there won't be any but, yes, if there are one would hope so.

However, when you look at how the govt. & DWP get out of responsibility for the suicides of the sanctioned & those denied claims.....

I suspect it would end up with CFS clinics & GPs and LP practitioners all pointing the finger at each other.
 
Art Vandelay

Art Vandelay

Senior Member
Messages
470
Location
Australia
BurnA said:
This may well be the beginning of the end.
How can any science body fund Esther Crawley after this, how can Stephen Holgate and the CMRC survive supporting Esther Crawley.
They will be the laughing stock of the science world.
Click to expand...

I agree. My view is that this is the moment when the BPS cabal and Creepy Crawley have finally jumped the shark.

o-HENRY-WINKLER-JUMP-THE-SHARK-facebook.jpg
o-HENRY-WINKLER-JUMP-THE-SHARK-facebook.jpg

o-HENRY-WINKLER-JUMP-THE-SHARK-facebook.jpg

While I believe our responses to this drivel should aim to demolish the 'science', mockery will also gain attention from others outside the community. Ridiculing the fraudulent nonsense that is the Lightning Process (and informing others as to actually what the LP is) would be a great place to start.

(It's just a pity I'm a bit too brain-fogged to learn how to use photoshop so I can transpose Crawley's head on the Fonz's body. I might have a try later.)
 
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