Embargo broken: Bristol University Professor to discuss trial of quack cfs tx

[Dx Revision Watch]

https://meagenda.wordpress.com/2010...nt-against-withinspiration-lightning-process/

July 2010

Advertising Standards Authority (ASA) Adjudication: Withinspiration (Lightning Process)

(...)

"Bournemouth Lightning Process instructor/trainer/coach, Alastair Gibson, had already identified himself, on his Withinspiration website, as “one of the two practitioners working with the NHS” in connection with the Dr Esther Crawley led pilot study. At 29 March, Mr Gibson’s website had carried this information:

http://www.withinspiration.co.uk/index.php

“Breaking News – NHS and Lightning Process research collaboration.

“A new pilot study involving the Lightning Process and the NHS has been awarded £164,000 for research into the treatment of CFS/ME in children and adolescents. Alastair Gibson is one of the two practitioners working with the NHS and the young people in this exciting research study. Find out more…”

http://www.withinspiration.co.uk/lightning_process_NHS_research.php

This statement no longer appears on his website. It is unclear whether Mr Gibson retains an involvement with this proposed pilot study...

(...)

The Lightning Process

The Lightning Process is controversial and untrialled. It is marketed by the Phil Parker organisation not as a therapy or a treatment but as a “training program” delivered by “instructors” or “practitioners” or “coaches”.

Instructors are trained and licensed by the Phil Parker organisation and are not accountable to any regulatory professional body. If individuals have complaints about a practitioner or about the Lightning Process, itself, which cannot be resolved directly with the practitioner or through the Phil Parker complaints procedure, their only recourse is Trading Standards.

Some practitioners may already be established therapists in CAM or psychotherapy fields but have trained with the Phil Parker organisation to also offer the Lightning Process to their clients. But many Lightning Process practitioners are individuals who have undergone the process for some condition or other, then paid to train with the Phil Parker organisation to become “Licensed Lightning Process Practitioners”, themselves, and will have had no previous background in therapies or life coaching..."

 

[Wonko]

That explains it all then, the reasoning behind why they think LP works, it's just they're high on the barking scale (abbreviated to BS in future comments)

 

[Dx Revision Watch]

I'd like to acknowledge the considerable research undertaken by former member "Wildcat" into LP from 2006/2007 onwards.

 

[Skycloud]

6 Treatment Approaches.

This module reviews the diverse ways we can use healing. It introduces the use of auras for diagnosis of a clientís problems and helps students to clarify what they have already learned whilst valuably introducing more techniques to use in healing, through sharing their own experiences with the group.†

The anatomic section of the final module looks at sub-atomic anatomy and organs as metaphors: meridians, chakras, and astral bodies. In this module the students are challenged to look at less scientific ways of viewing the body. For example, by looking at the meridian points. This gives them a more holistic perspective of the body.

 

[Wonko]

These people are allowed out of the institution how often? Presumably under close supervision to ensure no harm comes to members of the public, or rocks.

 

[Invisible Woman]

aka "Vicci Hands".

With the amount of money they make out if this shite Sticky Hands might be more apt.

 

[slysaint]

PIS for Teenagers and PIS for Parents

just about sums up the study

 

[Dx Revision Watch]

Please note that "I believe" is my way of saying that this is what I've been told by a trusted source or that I don't have a link to the evidence handy at the time of commenting. This relates to several years ago and I have a neurological disease that's been eating away at my brain, including memory, for 25 years, so bear with me, if I find links in the public domain that support my "belief" then I'll share them here.

You might want to review the form letter that was being circulated back in 2010. I would add that I was unable to support the form letter due to its tone, content and unsupported statements contained within it.

 

[Kalliope]

I just can't believe that there's a snowball-in-hell chance we are going to end up with NHS funded LP treatment. I just can't believe that this was ever funded .

But it makes perfect sense. Don't you see?
The reason LP is so expensive, according to LP-coach Live Landmark, is so that the patient gets more motivated to achieve good results. Thus NHS can instruct patients to take the bill for the treatment. Out of love, care and concern for the patient's wellbeing, obviously.

 

[NelliePledge]

‘Dûing’

"The word ‘dûing’ comes from the new verb dû (dô, dôes, dîd). It has a similar
meaning to ‘doing’ except the û signifies that although the person is involved in this
situation at some level, that involvement is at an unconscious and unintentional
level. So they are not to blame for it in any way, but because they are involved, they
do have the power to influence what happens next.

So I am stressed
becomes

I am dûing stress"

PDF attached. Enjoy.

pile of doo doo

 

[Dx Revision Watch]

‘Dûing’

"The word ‘dûing’ comes from the new verb dû (dô, dôes, dîd). It has a similar
meaning to ‘doing’ except the û signifies that although the person is involved in this
situation at some level, that involvement is at an unconscious and unintentional
level. So they are not to blame for it in any way, but because they are involved, they
do have the power to influence what happens next.

So I am stressed
becomes

I am dûing stress"

PDF attached. Enjoy.

Evidently Phil's forgotten his French past participles.

 

[Dx Revision Watch]

I'm waiting for someone to sue for a broken leg due to having tripped over the heap of discarded walking sticks reportedly to be found in a corner of the waiting room of one LP practitioner that were no longer needed by the newly cured.

 

[NelliePledge]

I bet Coyne would love to see some evidence of this.

https://twitter.com/i/web/status/910474000882683906

 

[Sean]

Something stinks about the Crawley-Parker connection.

 

[Dx Revision Watch]

http://adc.bmj.com/content/102/10/981

Current Issue
Prev issue
October 2017 - Volume 102 - 10

Page 981

[PDF behind paywall or sub]

PDF

Review
Practical management of chronic fatigue syndrome or myalgic encephalomyelitis in childhood

1. 
   
   • Amberly Brigden1,
   • Maria Loades1,2,3,
   • Anna Abbott3,
   • Joanne Bond-Kendall3,
   • Esther Crawley1,3

Author affiliations

1. 
   
   • Centre for Child and Adolescent Heath, School of Social and Community Medicine, University of Bristol, Bristol, UK
   • Department of Psychology, University of Bath, Bath, UK
   • Paediatric CFS/ME Service, Children’s Centre, Royal United Hospital, Bath, UK

1. 
   
   • Correspondence to Miss Amberly Brigden, Centre for Child and Adolescent Heath, School of Social and Community Medicine, University of Bristol, Oakfield House, Oakfield Grove, Clifton, Bristol, BS8 2BN, UK; amberly.brigden@bristol.ac.uk

Abstract
Paediatric chronic fatigue syndrome or myalgic encephalomyelitis affects at least 1% of secondary school children in the UK and is very disabling. Treatment is effective but few children get a diagnosis or access treatment. This paper summarises what we currently know about diagnosing and treating this important illness in childhood.

http://dx.doi.org/10.1136/archdischild-2016-310622

Footnotes

• Contributors All authors contributed to the writing of the manuscript.

• Funding EC is funded by the NIHR Senior Research Fellowship (SRF-2013-06-013) and ML is funded by the NIHR Doctoral Research Fellowship (DRF-2016-09-021).

• • Disclaimer This report is independent research. The views expressed in this publication are those of the authors(s) and not necessarily those of the NHS, The National Institute for Health Research or the Department of Health.
    
    
  • Competing interests EC leads the Bath Specialist CFS/ME service. She is the principal investigator for FITNET-NHS, a trial investigating internet-delivered CBT and MAGENTA which is investigating the effectiveness and cost-effectiveness of Graded Exercise Therapy.
    
    
  • Provenance and peer review Commissioned; externally peer reviewed.
    

------------------------

Highlights from this issue
Free

Martin Ward Platt

http://adc.bmj.com/content/102/10/i

Managing CFS/ME

In ADC we have carried several papers about chronic fatigue syndrome over recent years, and it is clear that our understanding of the condition has greatly increased. Online, though not yet in print, we have a report of a good quality randomised controlled trial of the Lightning Process as part of CFS therapy, showing that it works. In this print edition Brigden et al, writing from the Bristol-Bath group of therapists and researchers, give us a review that pulls current knowledge and their own experience together into a practical guide for the management of CFS. As the condition has an undeserved reputation for being ‘difficult’ to deal with, I hope this piece will be widely read and dispel some of the myths that surround it. Above all I hope that it will prove a valuable resource for trainees. See page 981

 

[Dx Revision Watch]

I'm confused by the above content that I've just posted from current issue of

Archives of Disease in Childhood

Current Issue
October 2017 - Volume 102 - 10

Is the PDF that is behind a paywall the paper for which the SMC press briefing has been held or what?

"Online, though not yet in print, we have a report of a good quality randomised controlled trial of the Lightning Process as part of CFS therapy, showing that it works."

 

[Dx Revision Watch]

The paper above:

Practical management of chronic fatigue syndrome or myalgic encephalomyelitis in childhood.

Brigden A, Loades M, Abbott A, Bond-Kendall J, Crawley E.

Arch Dis Child. 2017 Jun 28. pii: archdischild-2016-310622. doi: 10.1136/archdischild-2016-310622. [Epub ahead of print] Review.

PMID: 28659269
was PubMed listed as June 28, 2017

 

[Countrygirl]

. GOT ME? JUST SMILE!

Daily Wail is on it!

BBC is excited.

I am emigrating.

https://forums.phoenixrising.me/ind...verage-of-the-smile-trial….54503/#post-908528

 

[AndyPR]

The paper above:

Practical management of chronic fatigue syndrome or myalgic encephalomyelitis in childhood.

Brigden A, Loades M, Abbott A, Bond-Kendall J, Crawley E.

Arch Dis Child. 2017 Jun 28. pii: archdischild-2016-310622. doi: 10.1136/archdischild-2016-310622. [Epub ahead of print] Review.

PMID: 28659269
was PubMed listed as June 28, 2017

Thread on this paper - http://forums.phoenixrising.me/inde...myalgic-encephalomyelitis-in-childhood.52588/

 

[Dx Revision Watch]

"Online, though not yet in print, we have a report of a good quality randomised controlled trial of the Lightning Process as part of CFS therapy, showing that it works."

Not online yet, though, unless only available to those with subs.