I certainly find it thoroughly offensive.
This BPS media blitz is taking up far too much of my time lately, but what the heck I feel like a rant so here goes:
There’s something we can agree on. Shall we start by ending the smearing, labelling and name-calling of those with different views?
Right-ho, I’ll switch of my critical faculties for the cause then.
If by “We” you are referring to yourself and your BPS buddies, thank-you for that admission. If you ever find the time to take your heads from up your arses you may find that the rest of the world has been rather busy lately. Read the IOM Report (rather than Shorter’s summary of it) or accept and invitation to a IiME conference, why don’t you?
So that’s the children, the mothers and the siblings covered. Got a problem with mentioning the fathers?
Yes, you are, please stop it. “some people” is a phrase used by old ladies in the queue at the butchers when talking about the woman behind them, as in “some people are no better than they should be” said just loud enough for the gossiped-about woman to hear, with a knowing glance thrown in for good measure.
“Decry”. Nice word.
That few patients are offered treatment and that there is almost no research on the condition is true. That this is a result of “some people” “decrying” is pure assertion on your part without any evidence, and a viewpoint recently strongly criticised by a FOI tribunal judge.
So why did you engage in a turf batte which ended with one of the few that did (Nigel Speight) being suspended by the GMC?
It’s only one of the biggest reasons for them to miss school according to your telephone survey of their parents. Great diagnostic practices from the epidemiologist of the MEGA trial. Sure I’m united in the push to find blah blah.
Please elaborate on what you know about adult ME. “Different biology” implies that the treatments will also need to be biomedical, although I am of course united in the push to make progress on behavioural treatments for biological illnesses, having turned off my critical faculties so I can’t be accused of not being a team player on this one.
We most certainly do, so kindly step aside so that scientists with expertise in infection, genetics, hormones, metabolism etc can get down to work. What was your skill-set again? Telephone surveys or something.
Sorry to interrupt again, but what is it with the use of the royal “we” throughout this article? Can you please say “they” when referring to the scientists engaged in biological research?
I look forward to your public take-down of Mr Shorter then.
We’ve got sleep hygiene covered thanks, doesn’t take a million pound study, it’s pacing 101. We know. It can be put on a web-page. In fact someone has, years ago, without charging a million quid for it:
http://www.cfidsselfhelp.org/library/solutions-sleep
Thanks anyway. We'll call you. Seriously.
Sorry, was that a rhetorical question? Perhaps people who have spent the last 3 decades suffering from the illness might have a view? Oh go on then, you tell us, what do we need?
Got something to sell have you?
I’m not even going to comment on that. Except to say that some countries are no better than they should be.
Oh right, you have got something to sell. Sorry, I was being sarcastic earlier. Shouldn’t this article be in the advertising section?
They’re desperate, that’s for sure.
“some people” again. Who exactly? Sufferers who clearly don’t want to get better? And who is "us"?
Does that include those of us who suffer from CFS? Are you implying that “some people” suffering from CFS are outside the group “those of us who want to help people with CFS”? How does that work exactly? And since when is expressing reasonable concerns and frustration that they are never addressed the same as "fighting"?
I thought the whole point of FITNET was to divert much-needed ME research funding into your pocket while the illness continues to be ignored. Have I misunderstood something? Must be a communication breakdown somewhere.
By the way, are you the same lady who conducted the SMILE trial into Parker the Circle-Drawer's Lightning Process? Instead of spending a huge sum of money which Bristol University has refused to disclose, you could have just read a 12-page thread about it on PR, which has been there since 2010:
http://forums.phoenixrising.me/inde...-the-lightning-process.3720/page-9#post-83848
From which I quote:
Is circle-drawing a behavioural or biomedical therapy? That was a rhetorical question, it's actually miraculous, and has been around since the 1st century, but study it anyway just to cover all the bases, why don't you:
http://www.jewishencyclopedia.com/articles/11711-onias-honi-ha-me-aggel