Thank you Jonathan, I've posted your comment to Facebook with a link to your post here.I don't log in to Facebook but if anybody feels inclined they could post a message:
The author of the comment 'Harmful Extremism' would do well to wake up to the fact that patients with ME are criticising certain research projects on the internet because the projects are either demonstrably very poor quality or apparently very poorly thought through (projected work). In other words they are bad science. I very much support these criticisms and admire the intelligence and tenacity of those making them. No good scientists are going to be put off by this. It might be a good thing if those doing poor science took note and reconsidered their approach.
Describing this critical activity as extremism is unwarranted and in my view divisive and insulting.
Professor Jonathan Edwards
Department of Medicine
University College London