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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Sorry, I'm not understanding what the new news is here? I read through the linked thread and am mystified ...Related discussion:
Dr. Bruce Patterson mentions me/cfs
Sorry, I'm not understanding what the new news is here? I read through the linked thread and am mystified ...
Or is it about whatever conference he's speaking at, and if so, what did he say, or how can we listen? Thanks!
Thanks!I was just linking together two related threads about Bruce Patterson's public statements, that's all.
But he may be speaking at an upcoming conference:
Cort just published an article on Dr Patterson's long COVID treatment:
Has Bruce Patterson Cracked Long COVID?
Patterson thinks the chemokine RANTES (also called CCL5) is a key factor in long COVID. He also published a paper in May last year showing that RANTES was high in regular acute COVID patients.
I am not sure if there is any relation, but RANTES is high in those very rare ME/CFS patients whose illness is due to a chronic bacterial infection in a cavitation (hollow space) in their jawbone — see this thread.
Some papers of interest:
- Impact of RANTES from jawbone on Chronic Fatigue Syndrome
- RANTES and fibroblast growth factor 2 in jawbone cavitations: triggers for systemic disease?
- Chemokine RANTES/CCL5 as an unknown link between wound healing in the jawbone and systemic disease: is prediction and tailored treatments in the horizon?
I talked to 8 ME/CFS patients that had this surgery done, none improved but some went off even worseThanks for posting these. I am hoping I am one of those rare people. Cavitation surgery in a month. To say I am excited and hopeful is an understatement. It has been a rocky journey to get to this point. Is there anyway of reading the full versions of these articles.
I talked to 8 ME/CFS patients that had this surgery done, none improved but some went off even worse