Dr MyHill's License in Jeopardy

[jace]

Insignificount, really sorry you've been ill so long. We know how that feels, truly I hope you have as good a support forum for your illness as we have here, and if there is anything I can do to help, in any way, please PM me

Jace x

 

[insignificount]

My illness is a mental one which only physically disables me when I become severely depressed (and stop eating/drinking properly or end up spending all day in bed). I don't know how or if I would cope if I was physically incapacitated for most of the time, so everyone here has my sympathy (even if they might not want it).

On the subject of thwarted life ambitions, we probably have a bit in common, which is probably also why my closest friend (who has had ME/CFS since she was a teenager, but is significantly better than she used to be) is my closest friend; I've never been dismissive about it.

As I said on the other thread as "insignificant" (and I still don't understand why it was locked and why I was banned), I think we're just going to have to agree to disagree about Dr Myhill.

Take care.

 

[Knackered]

Again, more trolling.

 

[insignificount]

I think you are confusing trolling with posting things that off-topic or something.

In my (internet) experience, trolls are usually rude, antagonistic, disruptive, and mendacious. I don't think I've been any of those in my dealings with you.

All the best.

I.

 

[lotusflower]

My illness is a mental one which only physically disables me when I become severely depressed (and stop eating/drinking properly or end up spending all day in bed). I don't know how or if I would cope if I was physically incapacitated for most of the time, so everyone here has my sympathy (even if they might not want it).

On the subject of thwarted life ambitions, we probably have a bit in common, which is probably also why my closest friend (who has had ME/CFS since she was a teenager, but is significantly better than she used to be) is my closest friend; I've never been dismissive about it.

As I said on the other thread as "insignificant" (and I still don't understand why it was locked and why I was banned), I think we're just going to have to agree to disagree about Dr Myhill.

Take care.

You do not have ME/CFS which is defined by WHO since 1969 as an acquired organic patho physiological multi systemic neurological illness what you have is chronic fatigue which is defined by who as a mental illness, so with all due respect you are on the wrong forum, you need to find a mental health support forum.

http://www.sophiaandme.org.uk/w.h.o. and m.e..html

Myalgic Encephalomyelitis /Chronic Fatigue Syndrome ME/CFS has been classified as a physical disease G93.3 since 1969.
-Fatigue Syndrome (chronic) (FS) is classified as a mental illness F48.
-The psychiatrists continue to successfully confuse, not only the public, but many doctors as well, by interchanging the above terms.

You will not find one person who has truly has this horrible condition ME/CFS finds psychiatric treatment helpful, if they do it is because they have CF, not ME/CFS. huge difference

 

[Knackered]

You do not have ME/CFS which is defined by WHO since 1969 as an acquired organic patho physiological multi systemic neurological illness what you have is chronic fatigue which is defined by who as a mental illness, so with all due respect you are on the wrong forum, you need to find a mental health support forum.

http://www.sophiaandme.org.uk/w.h.o. and m.e..html



You will not find one person who has truly has this horrible condition ME/CFS finds psychiatric treatment helpful, if they do it is because they have CF, not ME/CFS. huge difference

He's trying to be clever, ignoring him.

 

[busybee]

I do not consider insignificount etc trolls, they have valid points to make whether we like it or not.

I personally have found Dr Myhills website useful but if she wants to be registered with the GMC then she has to toe the line and not blatently flout current recommendations.

 

[willow]

I actually don't want you to work out why Dr Myhill has been censored. She's plainly a danger to the public as details of the first complaint show:

Parents whose children suffered at the hands of the Leicester paedeatric consultant had an awful fight to get some sort of justcice from the GMC. Yet I think there were around 600 complaints.
http://www.alexanderharris.co.uk/Ne...lepsymisdiagnosis-parentsdemandGMCaction.aspx

Press Release

Issued by the Leicester Epilepsy Concerned Parents & Carer's Group (LECPCG).

Angry parents in Dr Holton epilepsy scandal demand GMC action

Disillusioned with the GMC's procedures, disgusted parents demand the GMC deals with all their complaints. The Leicester Epilepsy Parents Group has arranged for parents to travel to London to hand in some of their letters personally.

Following the landmark legal judgement and Courtroom apologies, parents, representing hundreds of affected children, demand effective action. The clear legal decision made at the High Court on Wednesday 15th. June justifies all their concerns over Dr. Holton.

At the beginning of the process, the GMC decided to accept only a dozen or so complaints. Following the hearings in April, they have now changed their stance on complaints, and will look at every single one. Parents have decided to take decisive action because nobody has been held to account for the damage done to their affected children. After 4 years of work on his case, the GMC have yet to take any real action.

The GMC decided, before looking at the evidence in detail, Dr. Holton would not be struck off.

The complex legal process of claims for compensation will lead to payments running into millions of pounds. Legal costs for all parties will easily double the figure.

Dr. H is still practising with no restrictions, even relating to children. How does this protect patients?

If the GMC cannot deliver justice in such an obvious case as this, what hope can any patients have?

http://news.bbc.co.uk/1/hi/england/leicestershire/4453995.stm

Parents of children a Leicester consultant mis-diagnosed with epilepsy say they are devastated an inquiry into his work has been postponed.
Andrew Holton was suspended from his post as a children's neurologist five years ago.

A private General Medical Council (GMC) hearing began last month to decide whether restrictions should be placed on him in future.

But it has been delayed until September as a witness is understood to be ill.

Dr Holton misdiagnosed more than 600 children, prescribing drugs that left some unable to walk or see properly. I think we've been treated really badly, been treated almost as second class citizens

Sue Parr, patient's parent
After being suspended from the Leicester Royal Infirmary in 2001 he was allowed to retrain and currently works as a specialist at New Cross Hospital in Wolverhampton in the West Midlands.

Sue Parr, of the Leicester Epilepsy Concern Parents and Carers Group, said her 18-year-old son Peter, one of the patients affected, was "absolutely astounded by the hypocrisy and dishonesty".

She said: "It tears us all up inside, it makes us physically - and some of the children are physically sick - emotionally sick and very despondent.

"I think we've been treated really badly, been treated almost as second class citizens and I think this has shown just how little respect the GMC has for the patients involved, and the enormity of the traumatic experience that they've gone through."

She said many of the young patients had had to be weaned off cocktails of drugs prescribed by Dr Holton and it was a long, slow and painful process.

Not an isolated example of GMC slowness or leniency with others.

 

[willow]

I do not consider insignificount etc trolls, they have valid points to make whether we like it or not.

busybee I agree with that.

I was 'chatting' with some friends who work in pre-clinical research and the whole way that disease is looked at is totally different..... And I'd say that in many cases it's looked at a particular way in research becuase that's what's required to treat it with pharma. Unless it's abx or AVs how often does conventional medicine even attempt to find the cause let alone treat it? Most drugs are about symptom control not the underlying cause perhaps that's why conventional dx has evolved the way it has. To me it's crude and unsophisticated.... Not that I'm implying all/more other methods are necessarily more intelligent or more helpful.

...... I digress. I'm unsure how this arguement will resolve itself within the current paradigm of health and illness.... It seems impossible unless that paradigm is redrawn.

And whilst I see that doctors who register with the GMC should comply with it's norms how does this explain who the GMC choses to haul before them, how quickly they do it and the severity with which they are dealt with?

Plus how many doctors are actually abiding by GMC recommendations? Or when you say blatantly are you really referring to Dr Myhill's website, that she should only put GMC compliant things there? I could see that.

Must get out and enjoy some sun.

 

[busybee]

Yes Willow I was using blatently with reference to her website.

Wish we had some sun

Enjoy

 

[garcia]

I personally have found Dr Myhills website useful but if she wants to be registered with the GMC then she has to toe the line and not blatently flout current recommendations.

The "current recommendations" for ME/CFS are CBT & GET. Should she also not "flout" those recommendations too?

According to your logic anyone who treats ME/CFS by something other than CBT/GET should be struck off!!!

 

[V99]

I personally believe that those who work in the CFS/ME clinics should also be reported to the GMC, based on current scientific evidence regarding CBT & GET. As well as those who created the NICE guidelines - but this is the problem. Who monitors NICE?
Therefore the GMC should be scraped and a new independent body should be set up to oversea the medical profession.

 

[Gerwyn]

I do not consider insignificount etc trolls, they have valid points to make whether we like it or not.

I personally have found Dr Myhills website useful but if she wants to be registered with the GMC then she has to toe the line and not blatently flout current recommendations.

Valid points need to be accurate and not speculation.Medicine has a plethora of examples where "current recommendations" were proved to be wrong if not downright dangerous.These opinions were changed by pioneering doctors who were vilified at the time by small minded members of their own profession

 

[jonathan sizz]

The "current recommendations" for ME/CFS are CBT & GET. Should she also not "flout" those recommendations too?

According to your logic anyone who treats ME/CFS by something other than CBT/GET should be struck off!!!

The GMC haven't said anything about her website advice about ME/CFS! This is the source of a lot of misunderstanding here.
She has been told to take down claims about cancer (among other things; telling women not to get mammograms and recommending a dubious test instead), asthma (Myhill suggests inhalers are a bad idea and implies that patients should try unproven alternatives (including a "salt pipe" which is demonstrably ineffective)), and a raft of other claims concerning heart disease, vascular illness and contraception.
The GMC are allowing her to continue to disseminate her opinions on ME/CFS!

Answer me this: are you happy to let an authority figure, a registered doctor, go around telling parents of asthmatic children that their inhalers aren't a good idea and they should be trying alternatives for which no evidence exists? PEOPLE WILL DIE IF THIS ADVICE IS FOLLOWED.

If Myhill would just take down the offending material from her website then she can have the restrictions on her license lifted and go back to treating ME/CFS patients with impunity. Instead she seems determined to martyr herself and take all of you down with her. Instead of simply altering the dangerous claims on her website (none of the concerning stuff is about ME/CFS), she's chosen to refuse to acknowledge the concerns raised, instigate a campaign of harassment against the GMC and then publically announce that she's going to attempt to circumvent their ruling by making her website material available elsewhere.

She is going to be struck off and it will be her own fault. Please try to drill some sense into her, for your own sakes, because she is obviously valuable to you as CFS/ME patients.

 

[V99]

Myhill offered to take down offending material from her website, so why the restriction? Read the transcript.

 

[jonathan sizz]

Myhill offered to take down offending material from her website, so why the restriction? Read the transcript.

Because she didn't do it after being asked several times at her previous GMC hearings?! And still hasn't?! And is claiming she'll endeavour to make it available elsewhere if she does eventually delete the stuff from her website?!

Remember, this isn't the first time Myhill has been in front of the GMC. But it IS the first time she's faced serious restrictions. Why? Because she previously, and on several occasions, ignored their requests for her to amend her website, and kept disseminating dangerous advice on things like asthma, heart disease and cancer.
Remember, she's a doctor. That carries authority. And her advice on, for example, asthma is potentially LETHAL.

Do you think it's responsible for the GMC to just wait around for a child to die because their parents read a qualified doctor's website claiming that asthma can be treated by good posture and N-Acetyl Cysteine supplements? And that inhalers are the "lazy option"?

 

[Gerwyn]

Because she didn't do it after being asked several times at her previous GMC hearings?! And still hasn't?! And is claiming she'll endeavour to make it available elsewhere if she does eventually delete the stuff from her website?!

Remember, this isn't the first time Myhill has been in front of the GMC. But it IS the first time she's faced serious restrictions. Why? Because she previously, and on several occasions, ignored their requests for her to amend her website, and kept disseminating dangerous advice on things like asthma, heart disease and cancer.
Remember, she's a doctor. That carries authority. And her advice on, for example, asthma is potentially LETHAL.

she was never asked to ammend her website before.Drs who have actually killed or severely injured hundreds of patients through negligence have not faced such restrictions.They have tried to have her struck off 6 times before.That is just a little suspicious.Now they have effectively struck her off without having the courage to do so.this is not conditional or anything to do with ammending her website.Nice attempt at spin though!

 

[garcia]

The GMC haven't said anything about her website advice about ME/CFS!

My post was addressed to busybee's remark, not to the GMC hearing.

Dr Myhill's treatment of ME/CFS flouts current official guidelines on how to treat ME/CFS (namely CBT & GET). According to busybee's logic any doctor who goes against CBT & GET should be struck off.

 

[garcia]

The GMC haven't said anything about her website advice about ME/CFS!

My post was addressed to busybee's remark, not to the GMC hearing.

I personally have found Dr Myhills website useful but if she wants to be registered with the GMC then she has to toe the line and not blatently flout current recommendations.

Dr Myhill's treatment of ME/CFS flouts current official guidelines on how to treat ME/CFS (namely CBT & GET). According to busybee's logic any doctor who goes against CBT & GET and doesn't "toe the line" should be struck off.

 

[Rrrr]

can someone send me a private message and tell me if myhill is taking down her website or taking down the ME/CFS info on her website?

i am just not strong enough to read this whole thread. if anyone can just tell me this info by sending me a private message, i would be forever grateful.

p.s. i think dr myhill is wonderful and i'm so sadden by all this!

xxoo
rrrr