Dr. Jay Goldstein's Rapid Remission ME/CFS Treatments.

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Peter Hake

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11
Ok, thanks a lot! I hope nobody takes my info the wrong way. I'm just trying to answer questions that I've received based on what I know and without getting to technical, using simple language. I could start abbreviation everything an some people would not know what I'm talking about. But thank you so much.
The two people plus myself that have "completely recovered" will always be vulnerable to relapse, unless there is a magic cure one day.
 
Hip

Hip

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Peter Hake said:
I'm going to post my comments from the beginning again because I have added more things to what I had already written, so sorry, I pressed "post reply" by accident.
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You can edit your posts by clicking "Edit" on the bottom left of the post (though after around a week, the post is no longer editable).
 
Violeta

Violeta

Senior Member
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Peter Hake said:
Hi, Im a former patient of Dr Goldstein. He treated me for few years in the mid nineties, so I know everything about his treatments, including IV treatments of Ketamine and Lidocaine.
I tried Lidocaine & Ketamine for several months, and the problem is that your body gets used to the medication, so unless you keep moving from one to the other, they wont work for too long.
By the way, I don't think you will find anyone who will be willing to give you the Lidocaine or the Ketamine, after all if it is not done properly, they can cause you a heart attack.
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So Dr. Goldstein recommends IV lidocaine, an anesthesia that is usually used as a local anesthesia, for healing? Do you know exactly what it heals?

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1572757/

Some nasty side possible side effects there!

http://www.changepain.ca/iv-lidocaine-infusions/
 
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S

Sidereal

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Sensory gating abnormalities are observed across a range of neuropsychiatric disorders which have vastly different clinical presentations. I don't see how this could be the central problem in ME/CFS since it cannot explain the totality of the ME/CFS symptom complex or why other people with gating issues develop vastly different syndromes such as schizophrenia. Anyway, all "brain centric" hypotheses struggle to explain the pathologically low anaerobic threshold and especially the delayed symptom exacerbation in response to exertion (PEM), which is mentioned only in passing in Goldstein's books. He clearly found this symptom puzzling and did not have a satisfactory explanation for it, in my view.
 
Thomas

Thomas

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I'm still interested in @Peter Hake 's experiences with Dr. Goldstein although that seems to have been stalled. In any event, I'm going for IV Lidocaine/Ketamine tomoroow so I'll let you know how it goes. As for why it's effective and who Dr. Goldstein was @Violeta there are like 13 pages of posts in this thread that go over his various theories in great detail as well as why he gave up practice.

Yes I did speak with Dr. Goldstein a few months ago, but as I posted a few times in this thread recently, that my subsequent attempts at reaching him have been unsuccessful. When I spoke to him, he seemed very close to death and at that time, Dr. Hyde told me his condition was critical. He may very well have passed away recently. That link from Erica Verillo's website used to say that he was "retired". It has clearly been changed to "deceased" so I have the feeling, yet unconfirmed, that he is in fact deceased. But of course, I don't know that for sure.
 
Violeta

Violeta

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Thomas said:
I'm still interested in @Peter Hake 's experiences with Dr. Goldstein although that seems to have been stalled. In any event, I'm going for IV Lidocaine/Ketamine tomoroow so I'll let you know how it goes. As for why it's effective and who Dr. Goldstein was @Violeta there are like 13 pages of posts in this thread that go over his various theories in great detail as well as why he gave up practice.

Yes I did speak with Dr. Goldstein a few months ago, but as I posted a few times in this thread recently, that my subsequent attempts at reaching him have been unsuccessful. When I spoke to him, he seemed very close to death and at that time, Dr. Hyde told me his condition was critical. He may very well have passed away recently. That link from Erica Verillo's website used to say that he was "retired". It has clearly been changed to "deceased" so I have the feeling, yet unconfirmed, that he is in fact deceased. But of course, I don't know that for sure.
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So sorry, not a nice thing to stumble upon. Sorry.
 
P

Peter Hake

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11
Violeta said:
Yeah, these things do happen.

@Peter Hake , do you know why he surrendered his license? Well, that's if of course the information in the other link is correct?
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Yes I do know why he surrendered his license, but I don't think is relevant to us. Let's try to keep our focus on how to live a full life after being diagnosed with CFS.
 
Violeta

Violeta

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3,152
Peter Hake said:
Yes I do know why he surrendered his license, but I don't think is relevant to us. Let's try to keep our focus on how to live a full life after being diagnosed with CFS.
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You know, I it could be possible that there might be someone here that thinks it's relevant. It might help someone make a better decision.
 
Hip

Hip

Senior Member
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18,109
Violeta said:
You know, I it could be possible that there might be someone here that thinks it's relevant. It might help someone make a better decision.
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Did you ever think of putting Jay Goldstein license into Google and reading about it.
 
JPV

JPV

ɹǝqɯǝɯ ɹoıuǝs
Messages
858
Violeta said:
You know, I it could be possible that there might be someone here that thinks it's relevant. It might help someone make a better decision.
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The accounts of Goldstein's problems with the state medical board are readily available online. From what I've read it seems that they took issue with the numerous unorthodox treatments and off label prescriptions that he employed. Nothing I read led me to think any less of his sincerity or medical knowledge.

As far as I'm concerned, the more important question, in regards to whether it's worth replicating his treatments, is how effective they were. In that respect, these anecdotes from @Peter Hake are probably a lot more valuable than focusing on the politically charged circumstances that led to Goldstein surrendering his medical license...
Peter Hake said:
Hi Thomas, seems to me that you really want to try the IV treatments, so here is all the information that you need to know when it comes to the IV treatments.

I don't think they are worth it to honest with you, but that is for you to decide, so the treatments are intravenous lidocaine, intravenous ketamine, and intravenous thyrotropin releasing hormone.
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Peter Hake said:
I have to be honest now and tell it like it was. Some treatments helped for few hours, others for few days but NOTHING, ON ITS OWN, really ever helped for long periods of time (please do not discourage and keep reading.)
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Peter Hake said:
I think the only mistake that Dr. Goldstein made during his practice is that he never addressed diet and lifestyle, it was always about the medications, and that is why they never worked for long periods of time. It is possible that he just thought that patients were expecting the drugs to do all the work.
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Silvana H. Santos

Silvana H. Santos

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1
Location
Spain
I think @Peter Hake is hitting the nail on the head. I understand that we would all want to have a magical medication that would solve everything, but I truly think that would be very unrealistic. So I'm going to focus on everything that @Peter Hake talked about and hope for the best.
I really look forward to everything that he has to say regarding medications.
Thank you so much for taking the time to trying to help all of us!
 
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