Does anyone crash after eating?

Sledgehammer

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PANS and HPA axis which are in dissarry in ME/CFS are all part of digestion and converting food for energy. anaxiety is the stress response due to dysfunction, so I have read.
It certainly sounds like what you've described, but it's hard to pin down and no two days can be the same when eating. I originally thought a change in diet would stop the issue but it didn't.
 

judyinthesky

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@livinglighter thank you.
Funnily enough I read on some dysautonomia forums that they have better times in the evening also...
Interestingly also my noradrenaline is always out of range, but low. But my cortisol a bit higher. Well yes I am constantly in a fight or flight :))
I've been thinking about some strange dysautonomia and had my heart monitored but nothing. I've been thinking I would have to have heart issues or so for the tests to show something?
I am not sure whether that was before the fatigue though.
But it totally makes sense to me regarding being stuck in this neurological imbalance/ANS dysfunction. This is entirely how it feels. I personally entered there via the combination of thyroid hyperthyroidism (also read somewhere that hyperthyroidism essentially exhibits dysautonomia symptoms) at the same time as pancreas issues.
Thanks for the nutrition link will check
 

livinglighter

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It certainly sounds like what you've described, but it's hard to pin down and no two days can be the same when eating. I originally thought a change in diet would stop the issue but it didn't.
I agree no two days are the same which correlates with the fluctuations of the disorders - hormones, neurotransmitters...... Of course, there could be many over reasons as well. I read one research paper that suggested the HPA axis is more sensitive to carbs as well. If I can find it, I’ll post it later.

I assume Adrenaline, Cortisol, Norepinephrine are released during meals as a stress response to digestion and metabolism. High levels of Norepinephrine is measured in Hyperadrenic POTS (the less common form). A UK doctor called Julia Newton also re-diagnosed several ME/CFS patients with POTS. I’m not saying everyone with ME has POTS, but a lot unknowingly do.
 

livinglighter

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@livinglighter thank you.
Funnily enough I read on some dysautonomia forums that they have better times in the evening also...
Interestingly also my noradrenaline is always out of range, but low. But my cortisol a bit higher. Well yes I am constantly in a fight or flight :))
I've been thinking about some strange dysautonomia and had my heart monitored but nothing. I've been thinking I would have to have heart issues or so for the tests to show something?
I am not sure whether that was before the fatigue though.
But it totally makes sense to me regarding being stuck in this neurological imbalance/ANS dysfunction. This is entirely how it feels. I personally entered there via the combination of thyroid hyperthyroidism (also read somewhere that hyperthyroidism essentially exhibits dysautonomia symptoms) at the same time as pancreas issues.
Thanks for the nutrition link will check
PEM is the heart problem. I was told to monitor my heart rate and stay within my rage that doesn’t trigger symptoms. Upon further explanation I have it cited in my medical records that adverse physiological responses in ME cause exertion intolerance - which is heart related.

There is something called borderline POTS. Some people on this forum have mentioned when relatively stable they scored as borderline during automatic functioning testing but during bad periods scored higher.

The thing with ME is that no large enough studies have been done - properly, to say definitively what it is. WHO lists it as a neurological illness and some argue it should be considered as a form of dsyautonomia, so who knows. What I can say is that long covid patients here in the UK are now being recognised as having dsyautonomia and being offered treatments. I have been offered to be seen in a long Covid clinic, but privately......
 
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Aspen

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@Aspen keep us updated :) did the ice pack do anything? :)
I think so! It could just be a placebo effect...:D I’m pretty sure it limits my post-meal tachycardia by 5-10 bpm, although I wasn’t logging those prior, so I can’t be 100% sure. But I do feel more relaxed during and after eating. I’ve used an ice pack sitting on my tummy (I eat in bed so it’s easy to balance it there). I’ve also tried to simply eat more cold foods, and that seems to work just as well.
 

livinglighter

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The crashing I suffer from after eating has recently been diagnosed as reactive hypoglycemia by an endocrinologist with a special interest in CFS. A low carbohydrate diet has been advised, plus further testing.
 

Aspen

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The crashing I suffer from after eating has recently been diagnosed as reactive hypoglycemia by an endocrinologist with a special interest in CFS. A low carbohydrate diet has been advised, plus further testing.
I’m so relieved you found an answer for yourself!

I started a low-histamine diet about 2 weeks ago, under the care of a dietician. It’s already making a big difference, although I’m not fully compliant with the diet requirements yet (it’s hard to cut out all those foods at once!). I would say that about 50% of meals go without a crash so far. And since my baseline is becoming more stable, it’s also becoming increasingly obvious when I eat something that disagrees with me - I used to feel crappy at every meal, so I usually couldn’t tell what the trigger was. And I’m hungry now! I often need to eat seconds, and I feel good when full. And I wake up craving breakfast, which I haven’t been able to eat since I got sick. I’m looking forward to seeing where this goes.

Here’s one of my favourite low-histamine diet sites so far, in case it’s helpful.
https://mastcell360.com/what-to-eat...on-syndrome-going-beyond-low-histamine-lists/