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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Hi Anne,
Thanks much for your fairly extraordinary posts. I was wondering how you went about being assessed. I suspect I have both disorders, so any information would be appreciated. -- Thanks!
Wayne
I will PM you a couple of further resources so you can learn more if you want to.
Anne.
Hello boy,Hey guys,
I was lucky enough to have an appointment with an MD/PhD at a molecular medicine clinic. He specializes in M.E and he said we can get DP/DR from neurotoxins. I suspect there are high levels of ammonia doing it in some cases. Also of course the NMDAR agonist Quinolinic acid could play a big role. He ordered me to have my serum level tested for it. QUIN can make glutamate get so high it develops a thingy they call glutamate excitotoxcity and triggers apoptosis (cell death). This is pure speculation at this point but maybe in some cases NMDAR antagonzation may help DP/DR that is meditated by glutamate excitotoxcity. Some MS meds have mild NMDAR antagoninistic properties. COX-2 inhibition may help too (celebrex). Just some amateur thoughts. All I know for an absolute fact is CBT didn't do a thing to help me.