Crawley: How to deal with anti-science BRS2017

[Large Donner]

I don't know about you, but I find this offensive, and potentially libellous.

I worked very hard to gain my degree and was on course to be ..........................(huge shame!.......but one can be permitted a little foolishness in youth ) a psychologist.....................when ME struck.

I was not hanging round street corners for my next fix as suggested in EC's slide

I was never a criminal.

I did not live in a slum.

I did not indulge in bad relationships.

Ye, but we all know you used to play tennis in a miniskirt and open toed fashion statement shoes. I'm not sure what that means but its definitely linked to ME.

 

[Sean]

It's a fair cop. My CFS is just a lifelong cover for my highly lucrative career as an evil criminal genius.

 

[Ysabelle-S]

she has actually used David Tuller's name here - in a slide about Tactics of militants in a presentation about Anti-science

oh dear - have a feeling that might come back to bite her

Think David Tuller should be alerted to this if that is so.

 

[MEMum]

The good news is that they are reaching new levels of hysteria and denialism. Anti-science they shriek, in the hope of drowning out the voices of patients and the work of real scientists in this field.

To me it's all non-science, or have I spelt that wrongly!

 

[lilpink]

Ye, but we all know you used to play tennis in a miniskirt and open toed fashion statement shoes

I so wished she'd used this :

 

[Ysabelle-S]

I so wished she'd used this :

You can get cream for that.

 

[lilpink]

You can get cream for that.

 

[MEisnotMUPS]

Keith posting more pictures from the presentation on twitter. I as a patient and someone with an academic degree find it disgraceful....where has scientific integrity gone...

https://twitter.com/i/web/status/857991122001559552

 

[MEisnotMUPS]

https://twitter.com/i/web/status/857987810955059200

 

[MEisnotMUPS]

https://twitter.com/i/web/status/857984679626113024

 

[Esther12]

I've been struggling to keep up with stuff today, but thanks a lot to @Keith Geraghty for saving copies of those slides, and everyone else trying to raise concerns about this.

 

[RogerBlack]

At least some of the tweets seem to have been deleted - I have not gone through the list and found which ones have/haven't. I hadn't refreshed an old tab, and found these:

 

[RogerBlack]

At least some of the tweets seem to have been deleted - I have not gone through the list and found which ones have/haven't. I hadn't refreshed an old tab, and found these:

And these:

 

[RogerBlack]

And these

And the last. I did not work out how many of the apparently existing images up-thread are in fact not-yet-deleted tweets, so I copied them all.

 

[Snowdrop]

Have any of the listeners even contemplated for a moment -- to what end?
Why would so many sick people be going to such lengths to stop (supposedly) helpful science into their illness?
What is there to be gained?
Is the explanation here mass hysteria?
How is that justified?

 

[Aurator]

Why would a CFS researcher speak at a renal conference about how to deal with anti-science?

I suspect she's there because she's one of the world's foremost experts on how to obstruct FOI requests. That's a marketable kind of expertise, when all's said and done..

 

[AndyPR]

Please everyone use this site to record any abuse and smears and general unprofessional behaviour from these people.

https://web.archive.org

just put the url in..... and that is it.

I tried all the links in the first post. I would guess that it didn't have time to archive them as it couldn't retrieve anything.

 

[Gijs]

Her presentation is ridiculous and unscientific. Patiënts, doctors and Tuller et al. should file a complaint against her. If it were cancer patients, she would be fired. I hope parents don't bring their children to this psychoquacker. She is dangerous for the health of really sick children. Also her tactic is red herring for the Pace debacle. Her tactic is red herring to cover up the Pace trial and CBT failure. She makes a lot of money out of this scam.

 

[Yogi]

I tried all the links in the first post. I would guess that it didn't have time to archive them as it couldn't retrieve anything.

no you have to save them. it doesn't do automatically.

 

[AndyPR]

no you have to save them. it doesn't do automatically.

Yeah, it does do it automatically.

From the FAQ, https://archive.org/about/faqs.php#The_Wayback_Machine

Why isn't the site I'm looking for in the archive?
Some sites may not be included because the automated crawlers were unaware of their existence at the time of the crawl. It's also possible that some sites were not archived because they were password protected, blocked by robots.txt, or otherwise inaccessible to our automated systems. Site owners might have also requested that their sites be excluded from the Wayback Machine.

Given the short time period that the tweets were up, my guess would be that the Wayback Machine didn't have time to crawl the tweets and therefore record them.