Covid vaccine. Anyone not having it?

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BrightCandle

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I finally got offered it, no thanks to my idiot gp, but 6 weeks after I requested it I am no fit state to attend. There used to be a place about a mile away but it isn't being offered to me so right now I have to travel 4x as far which means cabs and a lot more exposure and time away from bed. It's just not practical to get the vaccine right now.
 

Wayne

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Do you mind posting what that other forum is on vaccines?
Here's the post where he starts talking about him and his family getting it for the 2nd time. -- On a separate note I read just today that preliminary numbers indicate 40% of people who have tinnitus and then get COVID-19 end up worsened tinnitus. Also, many people without tinnitus end up getting it after getting COVID-29 and/or getting one of the vaccines. There's one thread on the tinnitus forum of some people getting it from the shingles vaccine.

My formula (for what's it's worth): -- Vaccines affect the immune system; anything that affects the immune system is likely to affect brain and neurological function to some degree or another; anything that affects the brain has the potential to induce tinnitus. Tinnitus can be caused by a variety of factors, but it like ME/CFS, it often devolves into some kind of chronic syndrome. There's a lot of overlap between ME/CFS and tinnitus.
 

vision blue

What big eyes...
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I happened to marry someone who has his own health issue (now) but has some fab immune system and literally for 50 years, I cannot come up with a case of flu or cold in my guy. So- he is sent forth. (and he is careful wears masks, does the hand cleansing etc).-
Is he available for hire? :)
 

vision blue

What big eyes...
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Well as it's a pandemic you have a greater risk of getting infected. I can't see the point of having a jab when the infection rate reduces a lot, which it probably will in the next couple of months in the uk and usa. Europe is a different story. A fairly bad one.
For each of the 3 choices i listed for when to get vaccine should one decide to only risk it say every 3 years, , there are pros and cons for each one. It is not a no-brainer that doing it in a pandemic is the obvious choice. For example, the next strain might have a mortality rate as high as Ebola; if that's the case, one may choose to use up ones vax chance for that variant, even if the overall infection reate is lower. Plus, just being in a pandemic does not mean that your particular neighborhood is at extreme risk, pandemic just means it's in so many different places at the same time. NOr is it clear the infection rate will decrease soon in us and uk; some intead predict a 4th wave of higher rates. the decrease that has occured lately is not being attributed to people getting vaccines.
 

vision blue

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@Gingergrrl Said “But I know the time is coming that I will be deemed a second class citizen for not getting the vaccine. But thankfully, all of my family & close friends understand my choice and agree with it”.

No one is pressuring me (probably mostly lack of concern ) but its sort of like watching one person after another get plucked to safety but i am being left behind and forced to jeep watching. And then there was one... Half my choice, half not even if i wanted it today, because of all the constraints i have on where how when and what i need, i would not be able to yet. And its like i am also reminded daily of how able bodied others are as they tell me about how they will be driving to such and such town to get it. Its all stressful to hear . Not sure why people are feeling the need announce their vaccine schedule when i never asked! More people coming out of woodwork and at some poi t im going to lose it and tell them to Shut the ef up.

@minimus Sometimes i wonder if allergy shots i got when young played a role years later. They werent even necessary but thats a long story. At some poi t i finally looked up what exa tly allergy shots do that gave me bad swollen bery painful arm and feeling crummy: i was horrified be ause what they do is try to turn off the IgE respobse to an wntigen by giving you sn IgG response!!!! So basically they substitute the kill me now allergic IgG for the kill me more slowly IgG.
 

Learner1

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I got the Moderna vaccine. My ME/CFS specialist advised that I get it. He is more concerned about my potential for having a very damaging case of COVID.

I had fatigue, I helped by any strategy after it yesterday, went to bed early, woke up with a slight headache and painful shoulder. I took antihistamines as advised and will continue to do so. I think I'll be ok.

And, yes, I was concerned and do not do regular flu vaccines. And I don't know if it'll work. But I'm glad I did it.
 

Gingergrrl

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Not sure why people are feeling the need announce their vaccine schedule when i never asked! More people coming out of woodwork and at some poi t im going to lose it and tell them to Shut the ef up.
I'm so sorry that you are dealing with this. I am coming to the conclusion that random people will be asking us if we got a COVID vaccine for the rest of our lives and it is just the "new normal" (as much as I hate that phrase)!

I actually had an interesting experience earlier this week when I saw a new PCP (GP). I needed to do a pre-op clearance appt but I haven't had a local PCP for many years b/c my case was so complex. My main doctor saved my life, and he is why I am in remission, but he is not local and cannot do a pre-op clearance so I needed to find someone else to do it (for a minor surgical procedure that I'll be having next week).

I was referred to a new PCP and did not know what to expect but she was amazing and I felt like I won the medical lottery. She understood my autoimmune diseases & my prior treatment and her strong recommendation to me was NOT to get the vaccine b/c it could end my remission. I asked her if she had other patients besides me that she recommended not to get the vaccine and she had a few.

She fully endorses the vaccine for 95% of her patients (or maybe even higher) but she has a few like me in which it is too risky. She said that if my main doctor can't give me a medical exemption that she can give me one. It was very validating to hear her opinion and I am no longer feeling any doubt re: my decision (now that two docs who have never spoken to each other had the same assessment re: my situation). I might not be posting as much in all these vaccine threads in the future now that my decision is 100% made (unless I can be of help to others). And I will still be replying to PM's.

Your own personal choices in health care are no one else's business. I wouldn't waste time explaining the medically advisable avoidance of vaccination in your case.
I actually agree with you 100%. I just wanted to share my experience re: not getting the vaccine on PR in case it is helpful for anyone else. And I think I was also still trying to process the decision in my mind since the topic of the vaccines will be around for years to come (probably for the rest of our lives). My family & close friends all support my decision, as do my doctors, and that is what matters most to me.

And, yes, I was concerned and do not do regular flu vaccines. And I don't know if it'll work. But I'm glad I did it.
I am glad that you were able to get the Moderna vaccine and please keep me posted how it goes for you! Were you worried that it would not work due to prior immuno-suppression?
 
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I am not having it because I already got the virus, twice, within 3 weeks of each other. Also, it appears from the data in the US, 1/3 of the population got the vaccine, 1/3 of the population got the virus got immunity.
 
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Right, but it is the R0 that is really important, even if the immunity doesn't last long, huge percentages of the population beat the virus and it is not like everyone got infected at the same time, which would factor into the R0.
 

pamojja

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natural immunity (from infection) appears to last only 3 plus months...and vaccinated immunity about 6 plus months (differs from person to person)
Would you have a source? I ask because I saw a report of a study about Ischgl by the University of Innsbruck, the initial hotspot in Austria which spread it initially to some places in Europe, where even in Dezember 90% of initially infected still had Antibodies. Since Ischgl was spared from further outbreaks with only about 45% of the population infected, scientist even speculated that such a low level could already be sufficient for herd-immunity. Therefore in this case immunity from infection lasted even 9 month in the vast majority of infected till the end of the study.
 

Aerowallah

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BEAT THE VIRUS!? That's what they said about India, last year several strains ago. This is quite possibly a gain of function virus that has been tweaked to survive and spread and spread. Here in the U.S. where the CDC pronounces "guidance" based on very small studies, some people are paying for antibody tests to assess their own individual levels and declining protection, to gauge when a third shot may be necessary. This is a calculation with more consequences now that people are encouraged to get rid of their masks in most settings, and go back to making and spending money. The grand experiment on the rest of us continues as the CDC watches for reports of symptomatic spread in vaccinated people before putting out the general call to get a third booster, which is still in development. The upcoming cold and flu season this fall (involving exposure to other coronaviruses) will be interesting--protection will be at a low ebb and Americans will resist putting masks back on....

Oooops...looks like I was wrong. The CDC is NOT going to collect data unless you are at least so sick you have to be hospitalized. That will help keep numbers down. From their website...

As of May 1, 2021, CDC transitioned from monitoring all reported vaccine breakthrough cases to focus on identifying and investigating only hospitalized or fatal cases due to any cause. This shift will help maximize the quality of the data collected on cases of greatest clinical and public health importance.
 
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I was referred to a new PCP and did not know what to expect but she was amazing and I felt like I won the medical lottery. She understood my autoimmune diseases & my prior treatment and her strong recommendation to me was NOT to get the vaccine b/c it could end my remission. I asked her if she had other patients besides me that she recommended not to get the vaccine and she had a few.
If you're in the US and you think there's any chance your doctor would see other ME patients long-distance, could you PM me the contact info please? Thanks.
 

Aerowallah

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STILL waiting for Novavax, the first conventional vaxx scheduled to become available.

Pressure to comply here in the U.S. is peaking now, and I suspect will gave way to the confusion over:
-- antibodies (which cannot be informatively tested) and waning protection
-- CDC vs FDA vs Biden vs Pfizer/Moderna re boosters
-- growing chorus questioning ethics of experimental vaxxes in general on a global pop when therapeutics may soon be proven effective
-- immune/selection pressure on new strains from a mass vaxx program that never sterilised against infection
-- growing realization we (incl. those w CFS) have more to fear from vaccinated who remain unmasked and carry high viral loads

I suspect the deplorable public health messaging will break down over the coming flu season. Israel is taking the lead on mandating six-monthly boosters. Since the US unblinded its Pfizer/Moderna cohorts Israel is our main source of data and, of course, the U.S. pop.

Still waiting for Novavax, but am resigned to wearing masks for the forseeable (out three years?)...
 
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TiredBill

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I've had three doses of Moderna without incident.

I'm saddened to read of the alarmism over vaccines that are proven to be safe and effective on a forum for people who are as vulnerable as we are.

Further, Covid seems to be to be causing an illness that is indistinguishable from ME/CFS.

As a matter of ethics, I could not live with myself if I did not do everything reasonable to avoid passing a virus that could cause someone else to suffer the way I have all these decades.

Bill
 

Aerowallah

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You can still acquire and carry a substantial viral load even if you are vaccinated but not masked. The vaccine does not protect you from getting infected, it is only palliative. Effective? If it were effective they wouldn't be arguing over mandating boosters now. Safe? A safe vaccine requires years of extensive animal testing. The previous record was set by measles at 4 years. We have 8 months of data now, running tests on animals and humans concurrently under an EUA. FDA approval? Look up how many FDA approved drugs are withdrawn afterwards because of safety issues. In this country they call it regulatory capture. The FDA are horribly understaffed and underfunded, and people are resigning now because of political pressure. See the alzheimer's drug resignations in June, and the two FDA senior officers who resigned yesterday over boosters.

ALL THIS IS WHY the CDC playbook was to quarantine and contact trace and buy time, not experimentally vaccinate into a pandemic. We may be forced to revert to that proven playbook by what we are doing now. In the meantime I plan to preserve my immune system as best I can. It has taken me years to talk it down off the ledge...
 
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