ok so I started to continue with my gardening and felt ok till lunchtime, Them I felt my usual wave of tiredness and feeling crap and had to rest. It wasnt a crash, but it was something that my body was doing to stop me continuing. I felt rubbish for the rest of the day. The last three days I have been back to where I usually am and just plodding along. I am going to continue for a while with the treatment and see where it takes me. I wont try and push the boundaries and see if it keeps me on a generally feeling better level. I keep an objective record of my daily well being (which I have done for nearly 4 years now) and see how it fairs for a couple of months.
I know this is not a silver bullet and may not be right for me , but the Norwegian team are not patenting this for nothing , so it is well worth a try. I will post back in a week or so
I was intriqued by this thread and the OP, so I decided to comment
Some people have used this supplement in conjunction with Lysine found it to be effective. Lysine is used for Herpes. Bodybuilders use this supplement prior to workout to give them a boost in energy. I am not endorsing any brand nor giving medical advice. On their forums, many recommended using Nitro Maximus NitricOxide. They also use CellFood supplement which is an Oxygen therapy supplement. I don't remember on their forums how many they took. But always check on any side effects above normal dosage. For instance, clinical trials have found high dosages of D-3 10,000 units helped multiple sclerosis patients.
As with any supplement, always consult with a doctor as medications and other supplements could create serious side effect. Bear in mind, that each person has a different metabolism based on their genetic profile which can affect absorption and even whether it's effective. So what works for one, may not work for another. Remember, there have been no clinical trials to indicate whether any of these supplements are effective. You only have anecdotal evidence of people having success with increasing their energy.
@clive-powney
Did you try to pulse...meaning going off for 3 days. You probably already know this. If you notice an energy increase in energy or sudden remission, it doesn't mean you resume normal activity. Keep a journal or log. You must experiment. Do nothing if energy returns! Let the body heal. Gradually increase adding an hour above your previous level. If you sense that is too much back off. Changing dosing time, morning, evening or throuhout the day. Was anything added during this time period to that may have interfered or for that matter anything you stopped.
It's important to always stay below your anaerobic threshold. Stay with this for couple weeks. The goal is to establish a baseline of not only with the increased number of hours you feel energetic but also the activity within those hours. Add another hour and stay with it over time etc. Remember activity within these expansion hours doesn't mean out jogging again. Temptation is to resume normal activity as you feel like your old self. Don't! As you start off, keep the same amount of energy in what you were doing prior to the energy increase. The long term goal is not only increasing mobility but also the activity without PEM crashes, tiredness, or relapse...no push/crash scenarios. The regimen should be the same from day to day.
I am not endorsing this protocol since there are no biomarkers established for ME/CFS. There is no cure for ME/CFS at this stage. I was just intrigued as bodybuilders found that the energy boost was effective just prior to weight training so the changes may only last a short period of time.
I think my CFS was caused by having my amalgams improperly removed 30 years ago. I have suffered sever illness since. I do have low blood pressure and pots or orthostatic intolerance. I need to lie down all day and can only get up for short periods of time, it sucks bad! Thank you for posting your experience. I am going to at least start beet juice. I have the feeling of low oxygen continuously.