Janet Dafoe
Board Member
- Messages
- 867
What data are we missing and how can it best be collected?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Yes. And Mary Dimmock.Is that @Cort Johnson in the lower right corner?
Yes. And Mary Dimmock.
If by this you mean increased mental effort can cause physical collapse followed by PEM then I agree, happened to me only a few days ago - and I'm surprised it isn't universal.I experience this.
If by this you mean increased mental effort can cause physical collapse followed by PEM then I agree, happened to me only a few days ago - and I'm surprised it isn't universal.
I would ask one question, and one question only, of the great minds assembled at this conference:
Based on where things are now, how soon do you think there will be an effective treatment available for ME/CFS?
As i understand it Saturday's session will be broadcast/youtubed, is the same being done for the other days?Day 2: @ChrisArmstrong just finished his talk! Lots of fascinating stuff.
As i understand it Saturday's session will be broadcast/youtubed, is the same being done for the other days?