Community Symposium on molecular basis of MECFS! DISCUSSION THREAD!

[Janet Dafoe]

What data are we missing and how can it best be collected?

 

[AshleyHalcyoneH]

 

[Nickster]

View attachment 23016

Love this family of heroes making a difference!
Thank you for your compassion, brains and unity!

 

[Jill]

Thank you@AshleyHalcyoneH
Amazing photo! It's hard enough to get a group photo of 7 people !!! Your efforts are soooo appreciated ))

 

[Cam Newton]

Any info on Mark Davis' findings?

 

[Janet Dafoe]

Is that @Cort Johnson in the lower right corner?

Yes. And Mary Dimmock.

 

[Jesse2233]

Yes. And Mary Dimmock.

That's great, can't wait to see their reporting

 

[unicorn7]

This is so exciting! Can't wait till tomorrow

 

[Wonko]

I experience this.

If by this you mean increased mental effort can cause physical collapse followed by PEM then I agree, happened to me only a few days ago - and I'm surprised it isn't universal.

 

[Ben H]

View attachment 23016

On a side note every photo I have seen that @AshleyHalcyoneH has taken has been great. Must run in the family with Whitney

P.s. Love Jarred Younger expression at the back left!


B

 

[Mij]

If by this you mean increased mental effort can cause physical collapse followed by PEM then I agree, happened to me only a few days ago - and I'm surprised it isn't universal.

Yes, if I'm concentrating for too long I can feel full body exhaustion and my calf muscles become very sore as though I've climbed a mountain.

 

[perrier]

I would ask one question, and one question only, of the great minds assembled at this conference:

Based on where things are now, how soon do you think there will be an effective treatment available for ME/CFS?

Yes, for everyone understands the unimaginable urgency for those lying in bed in darkened rooms day after day, month after month, year after year, suffocating their hopes and dreams and trying hard to keep their mind from madness.

The other question is: what can be used to get the non stop flu feeling down? I would ask that.

 

[kelly8]

I'm looking forward to this tomorrow. Thank you for putting it together and keeping us posted here!

 

[JaimeS]

Day 2: @ChrisArmstrong just finished his talk! Lots of fascinating stuff.

 

[Alvin2]

Day 2: @ChrisArmstrong just finished his talk! Lots of fascinating stuff.

As i understand it Saturday's session will be broadcast/youtubed, is the same being done for the other days?

 

[Janet Dafoe]

Chris Armstrong starts off the metabolomics session.

 

[Janet Dafoe]

Bob Naviaux up next.

 

[JaimeS]

As i understand it Saturday's session will be broadcast/youtubed, is the same being done for the other days?

Just Saturday.

 

[Janet Dafoe]

Jonas Bergquist got us laughing at the beginning of his talk reminding us of the differences between Sweden and Switzerland. He even had a correlation betw amount of chocolate consumed and # Nobels in a country!

 

[JaimeS]

The gentleman talking now was on this team: http://forums.phoenixrising.me/inde...tment-lyme-disease-from-chronic-fatigu.21134/