Community symposium on molecular basis of ME/CFS at Stanford Discussion Thread

[Ben H]

Hi guys,

Thought there should be a discussion thread for the upcoming 2nd Community Symposium seeing as it is very close (link for livestream if you haven't registered and would like to watch: https://livestream.com/accounts/1973198/ME-CFS-2018 )

Discussion, Twitter posts, questions/ponderings etc all welcome ofc


B,

 

[Ben H]

@Janet Dafoe (Rose49) will be on here contributing

 

[Gemini]

link for livestream if you haven't registered and would like to watch: https://livestream.com/accounts/1973198/ME-CFS-2018

Registered. Looking forward to watching.

Thanks @Ben H for the information.

 

[Lisa108]

I registered some time ago but didn't get any email response or link yet? Am I just too impatient?

 

[Ben H]

Registered. Looking forward to watching.

Thanks @Ben H for the information.

Awesome, thanks for the support @Gemini

It's going to be pretty exciting, for sure.


B

 

[Ben H]

I registered some time ago but didn't get any email response or link yet? Am I just too impatient?

Hi @Lisa108

Thanks for registering. I think that is ok, just keep hold of the link (one above in this thread) and you should be able to log in just fine. You may receive an email on Saturday anyway.


B

 

[Janet Dafoe]

Here we go! Working group meeting begins. Over 50 great minds!

 

[S-VV]

Thank you so much for your effort!!!

 

[perrier]

Hi guys,

Thought there should be a discussion thread for the upcoming 2nd Community Symposium seeing as it is very close (link for livestream if you haven't registered and would like to watch: https://livestream.com/accounts/1973198/ME-CFS-2018 )

Discussion, Twitter posts, questions/ponderings etc all welcome ofc


B,

Ben,
Please just remind us at exactly what time to press the Go Live button.
Thanks

 

[Janet Dafoe]

So far we've heard from Wenzhong Xiao, Alain Moreau, and now Fereshteh Jahaniani. #me/cfs18

 

[Janet Dafoe]

Now: Peidong Shen talking about Next Generation DNA sequencing as a tool for ME/CFS research. He's worked with Ron for over 20 years and is a really great scientist.

 

[Janet Dafoe]

I'm feeling emotional & kind of blown away by what's happening in this room. A little teary. If only Whitney could see what his dad has organized and all the amazing scientists focusing on this. He'd be so thrilled & proud. I know that knowing Ron is working on it gives him hope!

 

[Janet Dafoe]

We heard from Isabel Sylvestre from U Nevada talking about genetics in MECfs and now Alan and Kathleen Light from U Utah, also talking about genetic mutations using RNAseq.

 

[Janet Dafoe]

Lunchtime!

 

[Ben H]

Lunchtime!View attachment 29443

Looking sharp

 

[Janet Dafoe]

Now Rob Phair is presenting the metabolic trap hypothesis. Riveting! #mecfs18

 

[Murph]

Now Rob Phair is presenting the metabolic trap hypothesis. Riveting! #mecfs18

Wish I was a fly on the wall!!

Looks like the pre-symposium meeting is even bigger than last year. Such a promising sign.

 

[Janet Dafoe]

So much interest and excitement about metabolic trap! Here's the group: #MECFS18

 

[Janet Dafoe]

Wish I was a fly on the wall!!

Looks like the pre-symposium meeting is even bigger than last year. Such a promising sign.

Yes! It's over 50 and growing. Last year there were 30. He's recruited a bunch more great people. I'll have to get their names out there to you soon.

 

[Janet Dafoe]

Now they are having a long discussion reacting, suggesting, adding related info, ideas, etc. These great scientists working together. It's awesome! #MECFS18