Hi!
Just an idea that dropped on me. I am not sure if such a think exists, but wouldn't it be great if there was a sort of web portal dedicated for ME/CFS sufferers where you could register a profile and provide extensive data about your condition and what measurements has proven helpful, what has not helped, and what made you worse, at what level, how and what it did, and so on.
Thinking of supplements, medications, treatments, activities and just about anything. It would have to be as much data as possible - both of the treatment (like type, amount, length, frequency) and about your condition (severity, length, male/female, age, country, possible contributors to developing the condition and so on and so on).
From there on one could build sort of big data statistics from many users (hopefully) and find common denominators, patterns, and perhaps map out areas of interest to investigate further both for sufferers, and for medical researchers.
The idea dropped on me some minutes ago, and I have not thought through all possibilities, but got a bit exited and just wanted to get some feedback from you
Just an idea that dropped on me. I am not sure if such a think exists, but wouldn't it be great if there was a sort of web portal dedicated for ME/CFS sufferers where you could register a profile and provide extensive data about your condition and what measurements has proven helpful, what has not helped, and what made you worse, at what level, how and what it did, and so on.
Thinking of supplements, medications, treatments, activities and just about anything. It would have to be as much data as possible - both of the treatment (like type, amount, length, frequency) and about your condition (severity, length, male/female, age, country, possible contributors to developing the condition and so on and so on).
From there on one could build sort of big data statistics from many users (hopefully) and find common denominators, patterns, and perhaps map out areas of interest to investigate further both for sufferers, and for medical researchers.
The idea dropped on me some minutes ago, and I have not thought through all possibilities, but got a bit exited and just wanted to get some feedback from you