How can I get my cerebral blood flow measured?
At the moment, there are about ten places in the Western world that do Doppler ultrasound scans in conjunction with autonomic testing. There may be more autonomic labs in Japan, China and South Korea that do it as well – they certainly use it for research.
If anyone is interested, I can make a list of the ones I know of. You would usually need to become a patient of the autonomic centre or specialist in order to have the testing. Perhaps of you are a patient pf another specialist in the same organisation, they can request it – I don’t know, But it’s not something that any doctor can order, like an x-ray.
Why would I want to get it measured?
To prove illness or disability
To access autonomic treatment
To have a piece of paper showing something serious is wrong
Would it be expensive (US)?
Possibly. It would be part of being seen by the autonomic specialist/centre for testing and diagnosis.
Can I get it done privately (other countries)?
As far as I know, no. There are autonomic specialists who see patients privately in the UK and Australia, for instance, but I don’t think any of them offer Doppler ultrasound testing.
Is a regular Doppler ultrasound scan any use?
I am not sure, as it is done seated or supine. However, you could certainly give it a try if it is covered and your doctor is willing. It might still show reduced blood flow because blood flow doesn’t immediately return to normal straight after we sit or lie down. However, it might not be as dramatic a difference. Your doctor might be able to negotiate for the testing unit staff to scan you during a NASA Lean Test.
How about NIRS?
I don’t think anyone is using it for this purpose yet except in research settings.
How about the in-ear pulse‐wave analysis?
Only available as a health wearable for US residents so far. Lumia Health, the manufacturer, is working on a medical version that can be used for diagnosis and monitoring, but it won’t be available for a few years. I imagine doctors will purchase a system and then lend out earpieces in a similar way to Holter monitors. They could also use it during appointments to take on-the-spot readings as they would do for blood pressure.
Do I need this if already diagnosed with orthostatic intolerance?
No. A diagnosis of orthostatic intolerance means you have low blood flow to the brain.
Do I need this to be diagnosed with orthostatic intolerance?
Only if you have one of the types that doesn’t affect blood pressure and heart rate. And even then, a good autonomic specialist can make the diagnosis without measuring your cerebral blood flow.
