• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. K

    Immunoadsorption in Patients With Chronic Fatigue Syndrome Including Patients With Post-COVID-19 CFS (clinical trial started in 2023)

    Clinical trial in Germany: Estimated completion date: 2025 https://clinicaltrials.gov/study/NCT05710770 https://pubmed.ncbi.nlm.nih.gov/37835071/
  2. GreenEdge

    AI reveals huge amounts of fraud in medical research | DW News

    Related thread: The Corrupt History of Medicine | John D. Rockefeller
  3. SWAlexander

    NIH to bolster RECOVER Long COVID research efforts through infusion of $515 million

    Excerpt: Four years after the COVID-19 pandemic began, Long COVID remains an unsolved, complex and urgent healthcare crisis. According to the Centers for Disease Control and Prevention, 1 in 9 adults in the United States who have ever had COVID-19 continue to experience Long COVID with a wide...
  4. Cinders66

    Thread for discussion of the research aspect of the UK DHSC interim delivery report, out for consultation until October.

    Hi , I just wanted there to be a thread specifically for this important topic and a place where people can post thoughts, ideas, questions etc. I certainly have many. A good place to start is the analyses and blog from ME research UK, who consider what is being Offered and say it falls short...
  5. gbells

    NIH isn't adequately funding CFS viral research because they believe the cause is unknown and this needs to change

    The CFS community has a big problem. National Institutes of Health is the major funding body for medical research in the United States. They only fund $15 million per year (frozen) for research on HHV-6 and $9 million per year for research on CFS. The problem is that researcher Bhupesh Prusty...
  6. J

    Research / Studies ongoing in the UK

    Hi everyone, Please can you help me find studies / research that I can take part in that is currently ongoing in the UK. Are there any places that I can search for them easily? Thank you in advance for the replies.
  7. R

    Further scientific research on LDN

    I recently read an article on the Phoenix rising blog about the scientific research being done into the effectiveness of Low Dose Naltrexone (LDN) as a treatment for M.E. I'm interested in learning more and am wondering if anyone can recommend any further information on it? I'm particularly...
  8. C

    Prof Karl Morten research update video

  9. frozenborderline

    NIH misallocating funds and moving slow on Long covid research

  10. M

    MECFS Diagnosis Medical Questionnaire

    Mecfs352 is a ‘thinktank’ of tertiary students in Australia (see also @MECFS352 on Twitter) that is building a portfolio of evidence-based information on ME/CFS. We identified ME/CFS as a serious medical problem in which most patients remain undiagnosed. We are seeking feedback on a medical...
  11. Pyrrhus

    The PolyBio Research Initiative: New ME/CFS research from some of the brightest young minds!

    A brand-new research initiative from a coalition of some of the brightest young minds in ME/CFS research:
  12. Pyrrhus

    Science: Great research summaries available from ME associations!

    For anyone who loves to read through research papers, this is a reminder that there are some great resources available from different ME associations. I've listed some links below. Feel free to post more links! UK ME Association...
  13. F

    A Unifying Hypothesis of the Pathophysiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS),,,,,

    A Unifying Hypothesis of the Pathophysiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Recognitions from the finding of autoantibodies against ß2-adrenergic receptors Has anybody read this? I thought we tended more to low blood pressure than high (please correct me?). I...
  14. May12th

    #RUN4ME ON Sept 14, 2019 in Ontario Canada

    Please join us on Sept 14th for Action CIND’s first annual #Run4ME. The event is a chance to raise funds for Action CIND’s Myalgic Encephalomyelitis (ME) Research Fund. Come as a participant or a spectator to cheer on our runners and walkers on a 1K/5K walk/run at Woodland Trails Scout Camp, in...
  15. nyanko_the_sane

    Read Your Doctors Notes!

    https://www.nbcnews.com/health/health-news/why-it-s-important-patients-look-their-doctor-s-note-n1019111 Sometimes it is hard to tell if your doctor actually gets what you are telling them, or if they even believe you. Having received a few shocks and surprises after reading doctors notes, I...