Hi , I just wanted there to be a thread specifically for this important topic and a place where people can post thoughts, ideas, questions etc. I certainly have many.
A good place to start is the analyses and blog from ME research UK, who consider what is being Offered and say it falls short...
The CFS community has a big problem. National Institutes of Health is the major funding body for medical research in the United States. They only fund $15 million per year (frozen) for research on HHV-6 and $9 million per year for research on CFS. The problem is that researcher Bhupesh Prusty...
Hi everyone,
Please can you help me find studies / research that I can take part in that is currently ongoing in the UK.
Are there any places that I can search for them easily?
Thank you in advance for the replies.
I recently read an article on the Phoenix rising blog about the scientific research being done into the effectiveness of Low Dose Naltrexone (LDN) as a treatment for M.E. I'm interested in learning more and am wondering if anyone can recommend any further information on it? I'm particularly...
Mecfs352 is a ‘thinktank’ of tertiary students in Australia (see also @MECFS352 on Twitter) that is building a portfolio of evidence-based information on ME/CFS.
We identified ME/CFS as a serious medical problem in which most patients remain undiagnosed.
We are seeking feedback on a medical...
For anyone who loves to read through research papers, this is a reminder that there are some great resources available from different ME associations. I've listed some links below. Feel free to post more links!
UK ME Association...
A Unifying Hypothesis of the Pathophysiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS):
Recognitions from the finding of autoantibodies against ß2-adrenergic receptors
Has anybody read this?
I thought we tended more to low blood pressure than high (please correct me?). I...
Please join us on Sept 14th for Action CIND’s first annual #Run4ME. The event is a chance to raise funds for Action CIND’s Myalgic Encephalomyelitis (ME) Research Fund. Come as a participant or a spectator to cheer on our runners and walkers on a 1K/5K walk/run at Woodland Trails Scout Camp, in...
https://www.nbcnews.com/health/health-news/why-it-s-important-patients-look-their-doctor-s-note-n1019111
Sometimes it is hard to tell if your doctor actually gets what you are telling them, or if they even believe you. Having received a few shocks and surprises after reading doctors notes, I...