OMG YES! That's me - exactly!!!
I was finding myself constantly clenching or tensing my muscles, subconsciously. And when I would catch my self and notice I was doing it, I would have to consciously relax and stop contracting my muscles! The muscle groups often tensed were: shoulder's shrugging up to my ears, jaw clenching down (not necessarily grinding), neck, quads & calves, and sometimes even my forearms (but mostly at night).
I felt like I was mostly tensed and clenched while I was sleeping during the night. My muscles would hurt or feel tired the most in the morning and would gradually improve pain/ache-wise throughout the day. In the morning, if I clenched, I could recreate the aching feeling when I stopped clenching. So I am positive I was clenched at night. However, I would still tense and clench all day as well and catch myself doing it.
Fortunately, just randomly, I notice that I'm no longer having this tension & clenching as often. I still have it occasionally but never to the degree I had it before. I can't attribute any reason as to why it improved.
I tried IV magnesium (3g/3hours 2x/week for 12 weeks) but that did nothing. I was going to try transcutaneous vagal nerve stimulation, but forgot and didn't get around to it. I'm looking to try a different muscle relaxer soon and Injectable Carnitine next. The only new thing I've added or changed is Kuvan (BH4), which gives me more dopamine, energy, and better mood. (So maybe I'm more relaxed). I have noticed that a better sleep posture with regards to my neck has helped my nighttime clenching (or so I think.)
Do you have any other muscle related symptoms?
What things have you tried for this tension?
I have all of your symptoms and then some. Horrific headache, eye functioning issues +++
But I've been trying to deal with the constant tension with a lot of things including magnesium oil. Months ago, my Genova test said my magnesium is great! And I continue to apply 2 teaspoons a day with a boost of DMSO. Now, that I'm straightening out my B's, many symptoms are easing, but the tight legs, shoulder hunching, scalp tightness, headache, brain fog, continue. And just like you said, it's worse once I get up, then eases throughout the day.
I haven't tried Kuvan, but I do have a genetic mutation for PKU and I have trouble with phenylalanine. hmmmm Doubt blood levels would reflect.
Dysautonomia causes muscle hypoperfusion by overly constricting or dilating the blood vessels - it seems to me the body can't regulate its own vasoconstrictoes or dilators resulting in blood vessels that are constantly in flux, when the blood vessels constrict it reduces blood flow which causes pain. Theres is also a theory somewhere that overly constricted blood vessels cause bradykinin to be released but it releases too much, causing pain.
I have to wonder if it's both dysautoN and dopamine? When I went to bed last night I decided I wasn't going to take any supplements and minimal meds today - just to see if my pain would ease. So I didn't. But when I read your post regarding dopamine I decided to pop some adderal, which I haven't in a month or so. After taking it, I realized ooops I just changed two major things. But, I will say that although my mood is better and I have motivation to get something done, my pain level and muscle tension is pretty much the same and I am constantly stretching my neck, and pulling my shoulders down and back.
I'm not ruling out a possible dopamine connection, this is just my feedback after 6 hours on it.
It seems like we all would say that this isn't an electrolyte problem. And I will add the prescription muscle relaxants haven't helped, nor have anti-inflammatories.
I have worked diligently with electrolytes and B's, plenty of magnesium and potassium and yet, these symptoms continue. I hadn't heard the term "coat hanger pain" and when I searched it, one of the first pages to come up was a familiar name - Nemechek. I read the description which fits me to a "t" with additional issues. I have known for almost a year that I am having severe vascular issues as well as neuropathy. They started with oxalate damage and my methylmalonic acid getting deadly high. I cannot tolerate anything that causes vasodilation w/o it increasing my headache. My veins are getting stronger and functioning better, but the Nemechek description fits.
".....The blood and oxygen delivery into the head and neck region are improved with the movement of the leg muscles, and this fact helps diagnose coat hanger pain.
If neck pain improves or is absent with physical activity, this is an indication that the patient has coat hanger pain from Autonomic injury. Physical activity improves blood and oxygen delivery into the neck muscles and alleviates symptoms....." excerpt https://www.nemechekconsultativemedicine.com/blog/coat-hanger-neck-pain-copy/
The obvious problem is that exercise causes PEM - and it's a vicious cycle. I have noticed that when I use my Powerplate (whole body vibration) that I feel better. It would be great if we could figure this out - it's what's preventing me from getting back to life.
Oh, for me the circulation issue also fits, I think, because I've had dramatic hair loss for over 3 months now. The hair loss started months after correcting my B12 and mma, and it's not hormonal. My cranial/sacral massage therapist said that my scalp hurt so bad and was so tight that it was micro-tearing. Maybe this caused the hair follicles to die and they are still falling out, despite my improvements.
BTW: I do have family members with Parkinsons, vascular dimentia, hypermobility, and other "tissue issues".
I get teeth grinding and jaw clenching as a side effect of vitamin B12, and I think from a few other supplements that I have tried in the past.
I have always wondered why...
I may have started clenching more since adding in B12, but I've always had headache, and muscles that won't relax. I really have been thinking this is from weak collagen >>> weak ligaments >>>>> too much stress on muscles >>>>chronic spams. So IDK.
As a note, when I started injecting methylB12 I gained 10 pounds in 1 week. I stopped. Did a search and came up with no reason
- other than it can happen with B12 in general. It did not happen when I was injecting hydroxyB12. Then upon further research of B's in general, I knew I needed to increase my methylfolate. I increased dramatically and decided to start the methylB12 injections again. This time I did not gain weight. I guess what I am suggesting is that if you start taking B12 and find yourself clenching, it may be from a shortage of folate, or eventually potassium, or possibly (if you're taking all the co-factors) of detox. ?