Aynone else with EDS? And have you found anything that help your symptoms?

[ChookityPop]

I have long suspected connective tissue disease and my neuro just told me I def have it. She said she has many EDS patients with way less severe CTD symptoms than me. I dont satisfy the beighton score but I can dislocate my hip so I showed her.

I have been researching ways to improve since I have been suspecting this for a long time. Ive come accross EDS patients that claims that they have significant improvement from vitamin c injections. I am doing vitamin c IV and it actually helps me. I wonder how high dose I could do without getting side effects... I am doing 2-4 grams a week.

Anyone else doing anything to help their connective tissue? Ive also done bpc157, ghk-cu etc.

I know MCAS is common in EDS and some apparently respond to MCAS medication if I recall correct..

Would love to hear what you guys are doing and if it helps!

hgh? anavar? mcas approach?

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ANECDOTES

I have come across EDS patients that claims they successfully treats their EDS with daily high dose Vit C injections.

My Dose of Ascor for hEDS
https://lessflexible.com/mystory/2018/12/26/wait-i-changed-my-dose-of-ascor

How I Successfully Treat My Ehlers-Danlos Syndrome with Vitamin C Injections

 

[Mary]

@ChookityPop - I don't have EDS, but saw this post the other day: https://forums.phoenixrising.me/thr...contributor-to-cfs.89406/page-10#post-2433133

The post has a link to an interesting video about how a young man reversed gastroparesis, MCAS and a few other things with diet and a couple of supplements:

In the comments section underneath the video, there's a very interesting comment by user bettysera4886, in which she describes how she successfully treated EDS:

Thanks so much for your videos Elliott, I honestly don’t think I would’ve gotten better without them. POTS can be hard to live with, I have EDS and ended up in a wheelchair for the second time in my life 2 years ago needing a bilateral POA surgery, after already having bilateral patella realignments. I went carnivore and was out of the wheelchair in a couple weeks but my gastroparesis got unbearable so I stopped. About 2 months later I relapsed hard and was back in the wheelchair. I decided to avoid the surgery to research further and came across your channel and website. I decided to try carnivore again but with additional supplementation - TTFD (I titrated from 25mg to 150mg), magnesium, potassium, vitamin D and a methyl B complex. This combo with the diet got me out of the wheelchair and off opioids in 3 weeks, no more gastroparesis or POTS symptoms, no more dislocations and it has now been 1.5 years fully walking, no surgery no pain medication and I am also 7 months pregnant. Thank you for your research, information and making it all accessible to those looking for ways to naturally heal/manage health issues.