@Gingergrrl wow didn't realise you have been this ill. What a way you have sough yourself up too...
In Belgium and I think other EU countries IVIG is not reïmbursed by the health care system. Maybe in very extreme cases were it is life or death that a special fund may donate some money. In other cases it is not even offered.
But I guess since it is very expensive in "normal AI or MCAS" cases it is also not being considered, but as I read it your case clearly was a life or death situation. :-S
You mention muscarinergic/cholinergic antibodies. Since I suffer from cognitive problems - probably after being prescribed to much anticholinergic - being tested by celltrend and others by mayoclinic.
- Is this evidence based?
- What are the costs?
Financially I am not priveliged...
I looket into the website because of
@Aubry mentioning it before but couldn't make much sense of it?
MCAS: never been tested for it. Don't know if it is taken "serious" in our country.
When they tested my lung response to histamine tough upon the slightest dose I immediately got stomach aching and I felt it literally going trough my throat and every single cell it passed: eye irritation, vision trouble, headache, stomach and belly pain, feeling nauseas, dizzy, getting brainfogged...
Is this a normal reaction to breathing in histamin for everyone or is this an extreme respons?