I don't seem to learn the quoting so I am going to do it straight:
Thank you
@Gingergrrl for your information and I am very sorry for the clumpsy communication I did before that probably was from a dysfunction emotional point of view based on the bad health care experience (or absence of it) that I have here.
ANA+ at 160 is said to be here in 5% of the general asymptomatic population. Even in me it got ignored... I put the attention on it myself by scrutinising blood labs and the positive test than was +6 months ago... could have easily been 6 years...
This is so interesting. Again your story seems to be quiet similar as mine. No time in my life before I have read something I did so much recognise myself in than in the complaints you wrote about.
Though indeed while a lot of auto-immune antibodies stay untested in my case, indeed I am only ANA positive, apart from other characteristics that are sometimes more or less extreme (leukopenia, trombocytopenia, macrocytair anemia, for years low ferritin and iron on the lower hand, recently higher prompting my professor to go to a genetics doctor. Unfortunately I did not get a referral and I don't think you can get inside without one.
What where the exact lung complaints you've experienced?
For me there are dozens of factors concommitant which can explain the problem or at least be the trigger: extremely dusty environment from constructing site in which i lived in for +6 months, extremed pollution air due neighboors heating their homes or get off of garbage strategies ..., pesticides, It could even be legionella since the boiler broke and did heat unproper and in the garden i got in contact with airborn water heated in the sun...
Only no one ever bothered or took the time to look at the cause!! (See topic I started)
It was elicited half of august (with in maybe 5 years before like 3-4 asthma attacks and upon mentioning this to my gp i got prescribed an inhaler. Nothing ever followed even though for the last year i have been complainting about short breathedness.
After the last extreme exposure (?) things got ugly. Strange thing is I did see a pulmonoligist just weeks before it started: they did test for muscle strength I guess and it was okay. Rx was told to be emphysematic.
Since weeks after seeing the pulmonolist the worse symptoms started and reading this I got to the GP: he couldn't help me he said...
After now almost 2 months which started with almost not being able anymore to walk to a market without extreme unease of extreme heavy breathing and dyspnoe and extreme "air hunger" attacks at evening/night, not so much coughing tough, and pain in my diaphragm (which I had for years intermettently) which i especially feel in the back, also extreme discomfort feeling, feeling of stifness (like your lungs cannot expand) in the morning, and pain and discomfort in the front, sometimes painful breathing, coughing dry, ... everything.
Untill today no doctor took it seriously... though I got a CT (think the other pulmonoligst I saw wants to play safe but she told me according to here I was extremely exaggerating about air pollution eliciting the symptoms...
When heaving this "bad lung period" I drove home, end up in a queu, it was extremely hot with burning sun outside: I got pain in the bottom of my lungs beyond imagination... I unfortunately feel it now too ... since the neigboors are again heating improperly...
So what is left of the symptoms after months is especially extreme burning pain in the bottom of my lungs (diaphragma?) . I cant tell you this is quiet insane. In october I will finally see a professor but I have to make sure that I stay calmed and not start to worship and think him for wanting to see me because than he will think that I am insane for sure. :-/
In (heavy) traffic I get attacks of thickening sensation of throat, noisy breathing and coughing. The noisy breathing (wheezing, murmuring) is actually always present after pollution, and also the discomfort in my lungs start...
Sometimes I felt clear pain in the right bottom...
If this is not an infection, which I guess it isn't (though it might have been in the beginning but is it really impossible to diangose a bronchitis, pleuritis, pneumonia in Belgium? ... I can't believe that :-/ Tried anti-allergics and everything: no relieve yet... got cortisone prescription since 5 days in my wallet though I did a bet on my health - to prove my point which you may all think is insane and to avoid not being taken seriously anymore: wait with getting it untill after the CT...
Since I had lung function tests I guess the muscle strength is tested there too but strange enough it was okay. While a former boyfriend of me (doctor) told me upon seeing my back/shoulders (spontaneously) I had to train (???) because I would get problems... The same guy also told me my disease might be lupus. I laughed with it; Then he told me again: seriously, it may really be lupus... I thought he was copying dr house, should have known better... (tough also this lupus diagnosis is not yet confirmed since the ENA panel was negative and no lupus anticoagulans has been found).
Tough I feel I should look for other auto-immune markers, and seriously, the pain in my lungs is killing me and quiet beyond believe ... on the other hand I try to jog and succeed in doing it now for 15 minutes so I mean half august "the lung thing" kept me almost 90% disabled.
I went to the sea to get better (since I got no medicine treatment not even diagnostic tools!!) and after half a week it indeed cleart somehow but than already I started to notice that upon the smallest traffic my lungs get reactive.
The thing is: try to tell this to a belgian...
I have (severe) POTS too, but I guess that doesn't give pain, does it?
But this POTS is the same like 90%: I say "I might have this since this and this". Doctor: oh yes possibly a lot of people have it. "Are there any tests to confirm or know what degree of severity I have?" "Not necesary, it is nothing serious, just don't get up to sudden"...
I can look for cardiologist being specialised in it but how on earth will I find one. :-/ In Belgium it has almost the status of CFS and fibromyalgia... also a gp ever said I have meunières (sometimes can't stand because everything keeps turning around) but they don't write things done, the same goes when noticing probably pleuritis years before, or follicultis or vasculitis years before... those things would have helped solve the puzzle more early I guess?