August 8: Severe ME Understanding and Remembrance Day


Senior Member
Midwest, USA
Passing along this Twitter thread today from a Mayo Clinic MD on Severe ME Awareness Day. Many of us know how difficult it has been to inspire change at this specific facility, so this acknowledgment was a pleasant surprise.

For those that don't have Twitter, it reads:

"As we continue to learn more about the Post-COVID Syndrome, AKA Long COVID or PASC, I want to recognize the Millions Missing from Myalgic Encephalomyelitis / Chronic Fatigue Syndrome on this Severe ME Day.

After countless decades of being unheard - as has historically been the case of the differently-abled and female-predominant diseases - I hope that the research, medical care, and advocacy that Post-COVID is driving finally brings the attention you deserve

While I can't speak for all, know that many of us are hoping that our Post-COVID work may also help those with ME/CFS and other conditions (based on phenotypes similar to POTS, fibromyalgia, etc.). We hear you and we see you. Hopefully soon, we can support you too. #SevereMEDay”

(and she referenced that she essentially learned of ME/CFS through Unrest, once again proving advocacy matters)

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