Anyone start squinting, have burning eyes and burning brain after straining your brain = brain fog?

[ChookityPop]

Anyone start squinting, have burning eyes and burning brain after straining your brain/brain fog?

I had a long telephone call last week and I pushed it so much longer than I should and I felt my head getting warm, brainfoggy and my eyes started squinting. Now I cant talk for 5 minutes without getting severe brain fog.

The squinting is accompanied with burning eyes (confocal neuropathy?) and burning brain

Could it be nerve inflammation?
I wonder if it actually is my nerves flaring since I went downhill during christmas after eating lots of chocolate and I woke up with wild SFN flare in my thighs, then after a while it hit my large nerves in legs, then large nerves in my arms and now eyes and brain?

I always have eye burning if I push it too far which I assume is corneal neuropathy. I have non length dependant SFN which can present patchy all over the body.

 

[hapl808]

No idea, but I experience the same thing. A long phone call, too much work on the computer, a videochat, etc. All those things lead to PEM crashes that feel very similar to heat stroke. Dull headache, eye pressure feeling, brain fog, etc.

 

[Nord Wolf]

My vision has lots of issues in the last two years. Burning eyes, severe dry eyes, squinting, eye pain, severe blur, dimming, loss of peripheral vision, and vision loss at times I push things too far. This vision loss is especially so in late autumn and winter when I am mostly bed ridden. Too much thinking or physical activity (which isn't much in winter) causes an immediate crash in vision and increase in eye symptoms.

I am scheduled for a Visual Provocation Test and a visit to my eye doc in early April. I've already been told they will probably be sending me to an ophthalmologist.

 

[linusbert]

This vision loss is especially so in late autumn and winter when I am mostly bed ridden. Too much thinking or physical activity (which isn't much in winter) causes an immediate crash in vision and increase in eye symptoms.

oh boy i hope you get better. that sucks!
winter time means artificial light time.
did you check your lights? do you have good ambient light? especially do you have a good NON FLICKERING light? my eye problems get worse and worse when i have a flickering light on.. i noticed that i had this year first time a infrared lamp used for heating the room. the light itself was nice, but it was in a socket which did PWM and this flickered badly. i did notice for a week, even thought i could see better, but then it got worse. now its so, if i turn it on i cannot see things as good which are in its light area. but the other lights dont have that problem. i also suspect the infrared might have damaged / exhausted my eyes a bit.

ANYWAYS, check all your lights at night if they do flicker. turn on only one light at a time, do the check before you continue to the next.
use your iphone , open the video/ camera app, select the slow motion. now point towards the light and the area it illuminates. if you see it flickering on the display, its a flickering light. get rid of it.
(you do not need to actually record a video, just have the video app open and check the screen)

the same problem applys to computer , tvs and mobile screens as well.

maybe your winter crashes could even be explained by bad artificial lightning, the energy the brain needs to compensate for flicker is lots.

(you probably already did check your RETINOL/vitamin A levels?)

Anyone start squinting, have burning eyes and burning brain after straining your brain/brain fog?

I had a long telephone call last week and I pushed it so much longer than I should and I felt my head getting warm, brainfoggy and my eyes started squinting. Now I cant talk for 5 minutes without getting severe brain fog.

The squinting is accompanied with burning eyes (confocal neuropathy?) and burning brain

Could it be nerve inflammation?
I wonder if it actually is my nerves flaring since I went downhill during christmas after eating lots of chocolate and I woke up with wild SFN flare in my thighs, then after a while it hit my large nerves in legs, then large nerves in my arms and now eyes and brain?

I always have eye burning if I push it too far which I assume is corneal neuropathy. I have non length dependant SFN which can present patchy all over the body.

did you try any thiamin/vitamin b1 protocol?

 

[Wishful]

It's probably unrelated, but my most recent weird ME symptom is that a few weeks ago my eyes started tearing whenever I went outside (winter air). I was accustomed to my nose running, but now the years were running down my cheeks. My guess is that my low-fibre diet produces less propionate, which might be important for the lipid layer that holds tears onto the eye. This defective lipid layer also results in a burning sensation at times.

The point is: it's possible that neurological dysfunction from ME is interfering with your tear-producing glands, which causes the burning sensation. Maybe try artificial tears? The squinting could be due to other neurological dysfunction. ME messes up our brains in individual ways.

 

[ChookityPop]

oh boy i hope you get better. that sucks!
winter time means artificial light time.
did you check your lights? do you have good ambient light? especially do you have a good NON FLICKERING light? my eye problems get worse and worse when i have a flickering light on.. i noticed that i had this year first time a infrared lamp used for heating the room. the light itself was nice, but it was in a socket which did PWM and this flickered badly. i did notice for a week, even thought i could see better, but then it got worse. now its so, if i turn it on i cannot see things as good which are in its light area. but the other lights dont have that problem. i also suspect the infrared might have damaged / exhausted my eyes a bit.

ANYWAYS, check all your lights at night if they do flicker. turn on only one light at a time, do the check before you continue to the next.
use your iphone , open the video/ camera app, select the slow motion. now point towards the light and the area it illuminates. if you see it flickering on the display, its a flickering light. get rid of it.
(you do not need to actually record a video, just have the video app open and check the screen)

the same problem applys to computer , tvs and mobile screens as well.

maybe your winter crashes could even be explained by bad artificial lightning, the energy the brain needs to compensate for flicker is lots.

(you probably already did check your RETINOL/vitamin A levels?)





did you try any thiamin/vitamin b1 protocol?

Never tried the b1 protocol. isnt it difficult as you can develop imbalances?

How do you think this can help btw?

 

[linusbert]

Never tried the b1 protocol. isnt it difficult as you can develop imbalances?

How do you think this can help btw?

B1 deficiency is the great immitator of disease. especially those kind of neurological symptoms as well energy deficiency in the brain can be due to it (and of course for 1000 other reasons as well). but this is worth a shot.
also if you have symptoms like air hunger, or dysautonomia, could point into that direction. those are areas where thiamin is working.

its easy and difficult. thats why i recommend to always take a low dose multi vitamin AND mineral complex with isolated vitamins.
there are many different forms of thiamin, plain thiamine hcl which is easy tolerated and the cheapest. then there is benfothiamine, allithiamine and sulbuthiamine. the later seam more easily able to cross the blood brain barrier.

its very important to take potassium with thiamine, also phosphorus is important. so maybe get some coconut water and kefir or cheese or whatever you tolerate.

careful with potassium with pots and already low bloodpressure. maybe you also need salt in that situations.

https://forums.phoenixrising.me/threads/high-dose-vitamin-b1-thiamine.34387/

http://charles_w.tripod.com/kandthiamin.html

https://www.eonutrition.co.uk/

 

[lenora]

Hi @Nord Wolf....you've been MIA for a short time and I thought the weather was causing problems. You've had a rough winter....if the new is anything to go by.

I know you have to heat your home and that can be a 24 hr. job.

I had a brother who suffered from tears constantly in the winter. A specialist actually cut into his tear ducts and that solved the problem. Interesting, isn't it? His face was constantly chapped because of the cold and the tears.

After a certain age I think we all need to skip directly to an opthalmologist. Early in the morning is best, if not it can quickly turn into an almost all-day outing. They're busy doctors. I hope you're feeling better....your wife, too. Yours, Lenora

 

[junkcrap50]

I have never had eye squinting and burning eyes. But burning brain, yes after cognitive PEM.

Except I never really know what people mea by "burning brain" or "brain on fire" when they describe their symptoms. I would never use those terms, more like "inflamed brain" and it presenting with me being extremely irritable, short tempered, bad mood, low tolerance for effort/patience/caring, just want to be left alone in dark room under covers, brain feels muddy/fogged, a "brain-ache" type headache. Now, I've just been using brain on fire to describe this since that's a more descriptive & receptive/sympathy-deriving phrasing.

If you are concerned/interested in neuropathy, you may be interested to research ARA290 as it is used to treat neuropathy, as it's been demonstrated to regenerate nerves, studied in (diabetic) retinalopathy, and improved corneal nerve fiber density.

 

[Nord Wolf]

did you check your lights? do you have good ambient light? especially do you have a good NON FLICKERING light?

@linusbert - a couple years ago we had a woman come through the house with special meters checking all the lights. There were a few that flickered that we had replaced, but the rest were good.

use your iphone

We are not a "smart phone" family, so this computer is the highest tech thing I have.

maybe your winter crashes could even be explained by bad artificial lightning

Wouldn't that be wonderful! Sadly that does not seem to be the case. With I seem to have tracked it to lack of adequate sunlight exposure. When the sun returns... in May... I always feel much better, and then when the rays drastically diminish in September, I start sliding downhill, every year. And no artificial sunlight helps. I've tried them all!

(you probably already did check your RETINOL/vitamin A levels?)

Yes and they are solid.

you've been MIA for a short time and I thought the weather was causing problems. You've had a rough winter.

@lenora - Yes I was. I shared a post about why. You may have not caught it. Battling the Mangler
But most winters are rough on my health the last handful of years. Though this is the first winter I've been sick with a germ in 5 years, so it was extra brutal.

They're busy doctors. I hope you're feeling better....your wife, too. Yours, Lenora

Ugh, it seems ALL doctors are swamped these days. Yes I am feeling better. Just back to the normal ME/PoTS, PEM, etc symptoms and state of being, but the influenza is long gone. My wife is doing well, thank you.
Best,
Wolf

 

[linusbert]

We are not a "smart phone" family, so this computer is the highest tech thing I have.

the probably most useful utility for a smartphone.

with every lamp you also mean the OSRAM Ultra-VITALUX 300W ?
i dont want to annoy you with things you already tried. but i also suffer from hubris and dellusions that one of the many tips i have might even be helpful.
that vitalux is a UV lamp. but it makes wonderful light, its like the sun is shining. it also gives you sunburn.
but its not exact the same color spectrum like the sun.

my decline in winter i think is due to vitamin D. not because i get too less through sunlite, i am indoors all year... but the increased infections which occur in winter and scking up the D.

also the heating air really annoys me, when the neighbours start heating, i feel worse. i use infrared light mostly and only use normal heater when its really cold.

 

[Nord Wolf]

that vitalux is a UV lamp. but it makes wonderful light, its like the sun is shining. it also gives you sunburn.
but its not exact the same color spectrum like the sun.

We use this one, which is the only FDA approved sun uv lamp:
Sperti KBD

i dont want to annoy you with things you already tried. but i also suffer from hubris and dellusions that one of the many tips i have might even be helpful.

Ha, well we never know what will become of our conversations here! One reason I'm here is because I have NOT yet tried everything

my decline in winter i think is due to vitamin D. not because i get too less through sunlite, i am indoors all year... but the increased infections which occur in winter and scking up the D.

I have my vitamin d tested regularly, and it always comes in around 150, which is perfect for me. So I've ruled out vitamin d deficiency as a reason for energy decline in autumn, along with most other vitamins and minerals. After some years of testing and observation, the only thing I've found to be lacking come autumn, winter and early spring is direct sunlight.
But I regress... this thread isn't about UV and Sunlight... unless we are talking about it affecting vision that is

also the heating air really annoys me, when the neighbours start heating, i feel worse. i use infrared light mostly and only use normal heater when its really cold.

You have forced air heat? When I lived out west we always had that and it was so annoying. But here we have mostly wood heat with propane baseboard backup. Nothing beats wood heat in my humble opinion!