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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I've been giving this some thought as it was not talked about (as I remember) from the early ART experiments
I was never "wired" during my first 10 years or so of ME and when I practiced ART when I could. Don't remember any patients at that time talking about being "wired". It's not something I get very much now.
Be interested to hear others experiences i.e. does the wired feeling calm down with ART or is ART unsuitable to times people are feeling wired.
I wonder once we finally figure this out is that at onset when the brain starts feeling weird and neuro issues start if the will look at medically inducing a coma for a while to let the insult to the brain heal.
I think this type of approach puts a lot of strain on mental health resilience. IIRC there's a TEDtalk about mind wandering being the biggest predictor of unhappiness, or something to that effect. I find I do remarkably well, all things considering, but time with absolutely no stimulation and not feeling sleepy is very challenging. Difficult thoughts crop up. I've found since I had a temporary paralysis in May that being completely still has been making me a little anxious in itself. I've recently got back to yoga nidra though (body scan style meditation which is faster/more structured than mindfulness). This is worth trying if you haven't already.. I get so frustrated, my body hurts, I am bored and have lots of sad and frustrated thoughts to try and avoid.
I've been blundering along with this for a couple of weeks and seem to be all over the shop.
At the mo I'm feeling tremendously wired, which doesn't normally happen to this degree. No idea what to make of that.
I've been giving this some thought as it was not talked about (as I remember) from the early ART experiments
I was never "wired" during my first 10 years or so of ME and when I practiced ART when I could. Don't remember any patients at that time talking about being "wired". It's not something I get very much now.
Be interested to hear others experiences i.e. does the wired feeling calm down with ART or is ART unsuitable to times people are feeling wired.
are you sure it is "wired" and not just feeling restless due to pushing yourself to rest more
Ever tried NAC?Definitely wired - I can hardly read for 20 seconds and then I need to be off doing something else. Can't relax or concentrate.
Ever tried NAC?
I have noticed over the long years of ME is that boredom often preceeds improvement.
I think so - one of those things that made me ill, I think.
I think you've confused me with someone else, @Cheesus - I had zippo response to LDN in either direction.
I am thinking of Sushi! You have similar names![]()
Honestly I haven't sussed this in 18 years! Sometimes it can be a sort of symptom in itself, part of tired but wired state, so be gentle on yourself. Some techniques help some of the time. Personally I find this most reliable as it calms without having to put effort into calming my mind:How on EARTH do you shut your brain up while resting? I