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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Well, we do know that abilify can stop working in many patients. I've never heard of anyone being able to pick up using it again.
And the honeymoon period is quite astounding, this second time it last only about 1 1/2 months, but I experience few ME symptoms during this time and can resume many normal activities, even some exercise like long walks. Whatever low dose Abilify is doing in the brain and body essentially silences major ME symptoms for me.
I know I’ve said it before, but it bears repeating, while I don’t think Abilify is a treatment for many, its astounding effects on people, even those for whom it stopped working, really should give researchers some clues as to the biological basis of ME, or at least it’s downstream biological effects which are causing major symptoms.
Something I've been considering. What was your level of severity when you started Abilify the first time? What were your physical or mental PEM triggers, and general level of health?
Moderate ME almost all housebound, with periods of time bedridden. Triggers? All types of exertion. PEM for doing anything other than lying in bed. Exercise would kill me. Only other health issue is psoriasis, so without ME would have no other issues.
Thanks for the info. Were all your exertion triggers physical, or would mental exertion also trigger?
This is a long thread and no chance I can read it all. So can anyone tell me if they have or know of anyone who has sustained success with low dose abilify? Thanks.
Yes, I believe it was abilify but Whitney only took small amounts of the tab to make the hospital trip. Either Janet or Whitney (both Dafoe) should be contacted in order to get the exact amount.
At that time he wasn't on it on a regular basis...I'm fairly sure. @leokitten....I have also heard of people who have been able to go back on abilify, but for most it doesn't seem to be the case. I'm glad it worked for you...and hope it continues to do so.
I have severe ME/CFS trailed abilify and had no response.
My wife has long covid, severe tried abilify and has had success. She stopped for a short time and within a couple of days the positive effects wore off. Once she started again the positive effects came back after a few days.
Her activity went from 2.6 hrs per day to 5.2 hrs per day.
yes Whitney got Ativan (Lorazepam) 4.5mg IV from what I remember for hospital transport. Not Abilify for this purpose.There’s no way Whitney used Abilify for anything that required immediate action like trips to hospital or anything like that. You’re thinking about lorazepam.
Abilify is not a fast acting or short acting drug, it takes many days to a couple weeks to build up in your system to start working, and it’s also a drug that continues working for weeks after you stop taking it, both of these because of it’s extremely long half life.
I’ve been off of it for over a month now and reverted back to my baseline, actually in the middle of the second crash I’ve had since it stopped working about three weeks after I stopped this last cycle. If I take it again right now it will do nothing for me even in a couple days. Takes min 1 week to 2 weeks of taking it again after it’s fully out of your system for it to start working again.
Hi all ,
After trying Mestinon with no success I started Abilify two days ago. 0,1mg
I will report here how I do with it.