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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Why do you think you were always cold? Do you think it was occuring from one of the 21 diagnosises you mentioned? or could it be low thyroid? or Anemia? or possibly from inefficient mitochondria not generating enough body heat? or bad circulation? or microclots?Thank you for your kind words. Yes, I had to learn to hide it since early childhood, since everybody, incl. doctors told me there is nothing wrong with me and I just sought attention or I´m too lazy.
Yes, my doctor in the UK went for 2 1/4 hours through every detail. Back in the states, it was a young doctor in NM who suggested PPS but was overruled by his superior.
Far more hurting were the over 50 years among so-called friends, their ignorance, unsolicited advice and mockery (you are young and act like a feeble old woman, or are you getting old, etc). The biggest part in my life, besides the weakness, was when others were wearing tank tops and shorts I was wearing long pants and a cardigan because I was always cold.
Why do you think you were always cold? Do you think it was occuring from one of the 21 diagnosises you mentioned? or could it be low thyroid? or Anemia? or possibly from inefficient mitochondria not generating enough body heat? or bad circulation? or microclots?
To tyson oberle. Your question is the puzzle of my life.
According to blood tests, my TSH is normal, and no Anemia. Unfortunately, I have no way to have a test for microclots. Polio is a muscle and nerve contacter problem that would explain bad circulation.
I´ve been cold since early childhood (low temperature, average 36C), so I would guess that mitochondria are not working properly.
It´s permanent.is it like that all the time