SWAlexander
Senior Member
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Hello everybody
I was reluctant to report a new and old discovery since many in this forum are low on energy or already overwhelmed with information.
Nevertheless I thought, it is important and maybe another way to think about ME/CFS or find one other virus than EBV.
Since 2015 I had a hint. Explaining the same symptoms to every doctor I came across – none had a clue – even when I mentioned a possible long-forgotten virus.
Yesterday, a doctor asked me questions no other doctor asked before. Shortly after - bam he hit the target, confirming what I sensed for many years - it is PPS (Post-polio Syndrome).
Since there is still no indefinite biomarker for MR/CFS maybe this could be another hint. These links are meant to encourage everyone to look deeper - only if there is enough energy available. Please do not feel obligated to read.
Post-polio Syndrome: More Than Just a Lower Motor Neuron Disease: https://www.frontiersin.org/articles/10.3389/fneur.2019.00773/full
Long-haul COVID-19 similar to post-polio syndrome https://connect.uclahealth.org/2021/01/25/long-haul-covid-19-similar-to-post-polio-syndrome/
PPMA: Post-Polio Progressive Muscular Atrophy
https://rarediseases.org/rare-diseases/post-polio-syndrome/
I was reluctant to report a new and old discovery since many in this forum are low on energy or already overwhelmed with information.
Nevertheless I thought, it is important and maybe another way to think about ME/CFS or find one other virus than EBV.
Since 2015 I had a hint. Explaining the same symptoms to every doctor I came across – none had a clue – even when I mentioned a possible long-forgotten virus.
Yesterday, a doctor asked me questions no other doctor asked before. Shortly after - bam he hit the target, confirming what I sensed for many years - it is PPS (Post-polio Syndrome).
Since there is still no indefinite biomarker for MR/CFS maybe this could be another hint. These links are meant to encourage everyone to look deeper - only if there is enough energy available. Please do not feel obligated to read.
Post-polio Syndrome: More Than Just a Lower Motor Neuron Disease: https://www.frontiersin.org/articles/10.3389/fneur.2019.00773/full
Long-haul COVID-19 similar to post-polio syndrome https://connect.uclahealth.org/2021/01/25/long-haul-covid-19-similar-to-post-polio-syndrome/
PPMA: Post-Polio Progressive Muscular Atrophy
https://rarediseases.org/rare-diseases/post-polio-syndrome/