Hi Goodness to ME, yes that’s right I did write the article, I had posted Dr Mirza’s articles and some people seemed to have trouble understanding and believing them, so I put together links that explained in more detail what Dr Mirza was saying and tried the best I could to explain what he meant in a way that would hopefully help people. It is so nice to get feedback from you saying that it has been helpful to you.
I agree that these articles by Dr Mirza have the potential to save people a lot of time and energy and suffering and to quickly find out what is wrong with them, many people spend years going from one doctor to the next and the conditions that Dr Mirza say should be checked for are often missed by many Doctors.
I think it also can help people a lot to read what he is saying that CFS is not a real disease, it’s a Myth. It was invented by the CDC, on the basis of almost no clinical experience or research. It is just a collection of very common symptoms found in hundreds of conditions with instructions not to test for over half the diseases that can cause these symptoms.
ME as in the 1969 WHO defined disease, that was defined based on the experience of a large number of epidemics with similar characteristics is obviously a real disease, but it is not CFS, it is a rare neurological and muscular disease with a known medically recorded incubation period, the symptoms of which have more in common with those of MS and Polio and are not the same as CFS. People should bear in mind that people have recovered from ME, but ME patients can have other medical conditions like those that Dr Mirza mentions, most of which effect the immune system and therefore people’s ability to heal, if they are found and treated it could greatly improve an ME patients quality of life and possibly lead to healing.
I do agree if we stick together and we can promote knowledge of the testing that Dr Mirza recommends and create a ripple effect, it could help a lot of people. As I pointed out in posts in this tread to Firestormm, people are making very large amounts of money out of CFS and have a lot of prestige at stake. It is not necessarily in their best interests to turn round and say CFS is not real, just test people properly and the right diagnosis will be found.
But there are two very powerful groups that it is very much in their best financial interests to promote correct testing with the right reference ranges to get the right diagnosis for people. One of these is insurance companies, they do not want to be paying out money to people for the rest of their lives because of CFS. It costs them millions of dollars, if people sent Dr Mirza’s articles to the heads of insurance companies, I could see them including his testing in what they demand people get before they will pay out for people diagnosed with CFS. Sure their motives are most likely to be money not compassion, but that is the way of the world at the moment, if it gets people the right diagnosis who cares? Some of the insurance companies are multibillion dollar organizations they can have considerable influence over government policies.
Another avenue is the government departments in charge of paying sickness benefits in countries round the world, they are paying out fortunes to people with CFS diagnoses who could often be cured if they were tested properly and their right diagnosis found. I could see these departments being very interested in information that could save them millions of dollars.
I think people here are often extremely kind and caring, and can struggle to realize what a nasty world it can be, many of the people and organizations that could help are not necessarily motivated by compassion, they are often motivated by money and prestige, so it is a matter of playing the game, and identifying who has something to gain by getting people correctly tested, and giving them the information and pointing out to them just how much they could gain by doing it. Sadly this is the unfortunate reality of how the world works in the majority of cases.
You are right in the end it will be controlled by the likes of Big Pharmos, they are the ones that will ultimately solve the problem of ME. The problem at the moment is that we have all these CFS patients who really have all sorts of other known diseases mixed up with the ME patients. This leads to their being no real science being done because of mixed cohorts in research. Some drug companies are making money pushing various treatments to CFS patients which doesn’t really help. But the problem for the big pharmos is, a lack of good science means a lack of dollar signs.
If the wrongly diagnosed CFS patients can be diagnosed with the diseases they really have, and are removed from research. Then real research can be done on ME patients, when this finds the cause the Big Pharmos will suddenly become are best friends, they will see that there is a clearly defined market with a known cause, all they have to do is develop a treatment and maybe a vaccine and they will be rolling in it. All the Big Pharmos will suddenly be spending a fortune to develop these drugs which will in the end help the patients. But while we have all the misdiagnosed CFS patients mixed up with ME patients in research, we can’t get any real science to find the cause, so the clear cut market with big dollar signs attached to it is not there for the big Pharmos so they just focus on other things like treatments for cancer were they know they can make billions, unfortunately at the end of the day it’s all about the money!!
Thanks for reposting my article hopefully we can get more people to get the ripple effect going.
All the best
