treatment

  1. 20somethingspoonie

    What is your experience with Adrafinil?

    Hello! I saw Adrafinil mentioned on another thread because it metabolizes into Modafinil, but is said to be over the counter/easier to obtain than Modafinil. I used to take Modafinil, so I'm curious to know if anyone has experience with Adrafinil and, if so, if it helped.
  2. dylemmaz

    it seems ron davis may have a new potential treatment

    i was able to get whitney to respond to me in one of his most recent instagram posts. he said that he has been feeling worse recently, the worst he has in a year. reason being because of a test that ron had him do for a new medication. i had asked him if the test he was doing would lead to a...
  3. Hip

    Study found 31% of EBV ME/CFS patients achieved full remission on spironolactone 25 mg daily

    A 2020 study gave spironolactone 25 mg daily to sixteen Epstein-Barr virus ME/CFS patients, and found that 31% achieved full remission from their illness, and the other 69% observed improvements in their ME/CFS symptoms. Spironolactone is a diuretic drug, which is also prescribed for high blood...
  4. L

    Betahistine

    Betahistine has been mentioned in passing in various posts but I thought it would be useful to make a dedicated thread to discuss pharmacology and possible effect on ME symptoms. Betahistine is typically prescribed for vertigo and other vestibular disorders. But in general it’s a strong H3...
  5. D.Rabbie

    Post-covid 19 syndrome

    Hey everyone, I want to know if some of you had a run with covid-19 and ended up with post-covid 19 syndrome (which I really think is CFS). I want to know if you have seen any recovery naturally over the months. I can work only for 3 hours a day before I get fatigued now and I've had covid-19...
  6. mitoMAN

    MCAS: What meds helped you most?

    I just gut diagnosed MCAS from IMD Berlin laboratory and started a treatment two weeks ago. I am wondering what medications helped you most and what combinations did you end up taking? IMD Berlin officially recommends the following possible cocktail: Brands might be specific for Germany or...
  7. morgan_25

    Jarisch–Herxheimer reaction

    Has anyone experienced this reaction from being on Valtrex to treat Ebstein-Barr Virus? Has anyone had any luck with this treatment option?
  8. tiredgirl928

    mestinon vs LDN

    Hi all! I have just received prescriptions for mestinon and LDN (yay!!). Has anyone taken both of these medications? Should I start them at the same time or try one for a few months and then add the other? If I do that, which should I start with first? I would also appreciate any information...
  9. M

    Melbourne members: Treatments - Neuro rehab group, Zebras, CFS in-hospital programs, any advice?

    Hello All. I'm looking into all my options as best I can after a fruitless search diagnostically. Still considering connective tissue disorder and looking at getting a second opinion from a rheumy, but have to start somewhere with treatment to try to get my life back on track (and even if the...
  10. C

    Is wearing sunglasses and ear protection a helpful form of rest?

    I am wondering if attenuating sensory input would help your brain rest. Is it a good idea for those with mild sensory sensitivity to use sunglasses and/or ear protection? How is resting from sensory input different from not exercising. I understand for most conditions there would be concern...
  11. J

    solution for me

    Dear All! First sorry for my English, I’m not a native speaker, but I try to express myself as I can, I think you could understand. Let me write about a method, which could make me a full recovery from this terrible illness. It’s a cognitive behaviorical active imagination technic, what I try...