treatment

tldr; Anyone have tips on where to learn how to administer saline IV drip at home? Hi all, I'm posting on behalf of my very severe partner. For about 4 months, my partner did 2 liters of IV hydration at home (with glutathione, B12, magnesium, and vitamin C) and methyl B12 IM injections twice a...

Related thread: The Corrupt History of Medicine | John D. Rockefeller

https://meassociation.org.uk/wp-content/uploads/Management-Treating-M.E.-Including-New-Experimental-Approaches.pdf

I detailed in my first thread how I came down with severe ME/CFS symptoms starting in November 2022 which for the next year or so would continuously evolve in intensity to the point of me being relieved of most of my major bodily functions by summer 2023. I however found a lifeline solution in...

hey folks anyone use the applo Neuro device? seems to claim that it can increase heart rate variability, improve sleep, all sorts of good nervous system stuff. have seen on reddit pretty mixed reviews, but wanted to know about peeps with ME.

🔍 𝐍𝐄𝐖 𝐀𝐑𝐓𝐈𝐂𝐋𝐄 𝐏𝐔𝐁𝐋𝐈𝐒𝐇𝐄𝐃! 𝐔𝐧𝐫𝐚𝐯𝐞𝐥𝐢𝐧𝐠 𝐭𝐡𝐞 𝐂𝐨𝐧𝐧𝐞𝐜𝐭𝐢𝐨𝐧𝐬 𝐁𝐞𝐭𝐰𝐞𝐞𝐧 𝐄𝐁𝐕, 𝐋𝐨𝐧𝐠 𝐂𝐎𝐕𝐈𝐃, 𝐚𝐧𝐝 𝐌𝐲𝐚𝐥𝐠𝐢𝐜 𝐄𝐧𝐜𝐞𝐩𝐡𝐚𝐥𝐨𝐦𝐲𝐞𝐥𝐢𝐭𝐢𝐬 🧬 After months of meticulous review and analysis, I am proud to present a study that explores the deep connections between Epstein-Barr virus (EBV), Long COVID and Myalgic...

Hi All, I have found this super easy to read paper about MCAS treatment, i believe it was shared by a Doctor in US familiar with MCAS and how to treat it. As you go through the pages it actually has alot of natural benifits for a range of other symptoms aswell. Ofcourse our MECFS bodies while...

More information:

Since depression is usually the first what doctors have on their minds when we tell them about our symptoms, I wonder if prescription antidepressants helped anyone here with their fatigue or pain? Some take them to improve their mood, sleep or anxiety, but do they really help with ME/CFS...

I recently read an article on the Phoenix rising blog about the scientific research being done into the effectiveness of Low Dose Naltrexone (LDN) as a treatment for M.E. I'm interested in learning more and am wondering if anyone can recommend any further information on it? I'm particularly...

Hello! I saw Adrafinil mentioned on another thread because it metabolizes into Modafinil, but is said to be over the counter/easier to obtain than Modafinil. I used to take Modafinil, so I'm curious to know if anyone has experience with Adrafinil and, if so, if it helped.

i was able to get whitney to respond to me in one of his most recent instagram posts. he said that he has been feeling worse recently, the worst he has in a year. reason being because of a test that ron had him do for a new medication. i had asked him if the test he was doing would lead to a...

A 2020 study gave spironolactone 25 mg daily to sixteen Epstein-Barr virus ME/CFS patients, and found that 31% achieved full remission from their illness, and the other 69% observed improvements in their ME/CFS symptoms. Spironolactone is a diuretic drug, which is also prescribed for high blood...

Betahistine has been mentioned in passing in various posts but I thought it would be useful to make a dedicated thread to discuss pharmacology and possible effect on ME symptoms. Betahistine is typically prescribed for vertigo and other vestibular disorders. But in general it’s a strong H3...

Hey everyone, I want to know if some of you had a run with covid-19 and ended up with post-covid 19 syndrome (which I really think is CFS). I want to know if you have seen any recovery naturally over the months. I can work only for 3 hours a day before I get fatigued now and I've had covid-19...

I just gut diagnosed MCAS from IMD Berlin laboratory and started a treatment two weeks ago. I am wondering what medications helped you most and what combinations did you end up taking? IMD Berlin officially recommends the following possible cocktail: Brands might be specific for Germany or...

Has anyone experienced this reaction from being on Valtrex to treat Ebstein-Barr Virus? Has anyone had any luck with this treatment option?

Hi all! I have just received prescriptions for mestinon and LDN (yay!!). Has anyone taken both of these medications? Should I start them at the same time or try one for a few months and then add the other? If I do that, which should I start with first? I would also appreciate any information...

Hello All. I'm looking into all my options as best I can after a fruitless search diagnostically. Still considering connective tissue disorder and looking at getting a second opinion from a rheumy, but have to start somewhere with treatment to try to get my life back on track (and even if the...

I am wondering if attenuating sensory input would help your brain rest. Is it a good idea for those with mild sensory sensitivity to use sunglasses and/or ear protection? How is resting from sensory input different from not exercising. I understand for most conditions there would be concern...

Dear All! First sorry for my English, I’m not a native speaker, but I try to express myself as I can, I think you could understand. Let me write about a method, which could make me a full recovery from this terrible illness. It’s a cognitive behaviorical active imagination technic, what I try...