pots

Abstract Introduction: While the diagnosis of postural orthostatic tachycardia syndrome (POTS) is based on heart rate (HR) and blood pressure (BP) criteria, the pathophysiology of POTS is not fully understood as multiple pathophysiological mechanisms have been recognized. Also...

Some of you may remember me blabbing on about a new(ish) method for measuring blood volume becoming available as an off-the-shelf device. This paper uses the research version of the device to look at blood volume in POTS. The medical version of the device is approved and for sale in Europe...

I have constant 24/7 cardiovascular discomfort generally from bounding pulse but other similar symptoms, like inability to relax. It never goes away, not when I lay down, nor when I sleep. It just varies in intensity based on factors like heat, exertion, etc. Do other people experience constant...

If you have the time and stamina, I highly recommend watching Dr. Galland on YouTube, where he extensively explains how COVID-19 damages organs and tissues, and how ME/CFS differs from it. Long Covid Mechanisms, Spike Protein, Detox, Nattokinase, MCAS, POTS, Autoimmunity, ACE2, Dr Galland

Introduction: Also for patients diagnosed with ME/CFS, Fibromyalgia, Lyme, EBV, Morgellons diseases, Asthma, Allergies, MCS, Tinnitus, POTS, Dysautonomia, Ehlers-Danlos Syndrome (EDS), Small Fiber Neuropathy (SNF), Restless Legs Syndrome (RLS), Burning Mouth Syndrome, Panic Attacks, Anxiety...

I have POTS which results in vasoconstriction caused by my sympathetic nervous system being jacked up all the time. I think this has been giving me problems when trying to enter ketosis. When I get in ketosis I notice my POTS is worse, particularly mornings and after meals. What I think may be...

Hi! Midodrine helps me a lot (I have POTS). But unfortunately, I don't live in the USA. Tell me, are there any ways to buy midodrine inexpensively? On services like costplusdrugs, for example

MCAS (episodes of symptoms of histaminosis/anaphylaxis) activated by Long COVID or MIS-C or by Post-Vax Syndrome: CRITERIA FOR CLINICAL DIAGNOSIS. https://www.researchgate.net/publication/377384635 Also for ME/CFS, Fibromyalgia, MCS, POTS, Dysautonomia, Ehlers-Danlos Syndrome (EDS), Small...

Hi Everyone, I've been reading this forum off and on for years. There are so many knowledgable and helpful people here. My introduction post was just approved (from May), but I have other issues, and am hoping someone can help me with them, or point me in the right direction. A couple months...

Head-down tilt reduces the heart rate in postural tachycardia syndrome in acute setting: a pilot study By Peter Novak, dysautonomia specialist at Brigham and Women's Hospital. https://pubmed.ncbi.nlm.nih.gov/37919442/ Has anyone tried this "head down tilt", maybe on an inversion table? I...

I hear some different opinions on an inversion table for POTS sufferers. I'm thinking bloodflow to the head might always be helpful, but I've read one or two people not recommending an inversion table. Any comments ?

This is the first complete research that confirms my long-standing theory. This is a long paper, though reading is worth it. ME/CFS, FM, RA, SS, POTS, PVACS, Lyme: THERAPEUTIC TEST AND FIRST TREATMENT REGIME, WITH FIBRINOLYTICS AND FAMOTIDINE FOR PATIENTS WITH CHRONIC FATIGUE AND/OR PAIN TO...

As a POTS sufferer I am trying to maintain a good level of acetylcholine to help boost cognitive function. I've found Acetyl-l-Carnitine plus a source of choline to be really helpful. However, my body seems to have developed a tolerance for it, even though I do 3 days on, 3 days off to avoid...

Not another thread from me complaining about my ongoing thirst, frequent urination and dehydration....but at this point I am certain my general symptoms are caused by low blood volume or some for of autonomic dysfunction that causes fluid loss and low blood volume. Call my condition M.E./CFS or...

Abstract This is the first case report of a patient with post-COVID-19 postural orthostatic tachycardia syndrome (POTS) with multiple persistent antiphospholipid antibody (aPL)-positivity more than a year after illness onset who also meets Global Consensus-2 criteria for mast cell activation...

This is very much a layman’s question. I’ve read that blood volumes in ME/CFS patients with POTS can be substantially lower than normal. I would like to know whether reduced blood volume directly reduces the effective “dose” of agents that are carried in the bloodstream, such as thyroid...

Mast cells are found throughout the body and play a complex and critical role in immune response and keeping people healthy. However, when these cells become altered or activate inappropriately to specific triggers, they can create symptoms throughout the body. While mast cell activation...

31:00 onwards Dr Grubb explains which autoantibodies are found in POTS and suggests they are driven firstly by the innate immune system, including mast cell mediators and other cytokines, which then triggers the adaptive immune system to make autoantibodies . He argues it can't be coincidence...

Hi, does anyone know if there is anywhere in the UK that offers IVIG privately? I'm looking to try it out as a POTS treatment which seems to be autoimmune in my case. It seems it is only offered on the NHS for immune deficiency and, whilst I know i'm immune deficient (low white blood cells and...

I just read a good overview article covering all the basics of orthostatic intolerance: Common Syndromes of Orthostatic Intolerance (Stewart, 2013) https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC3639459/pdf/peds.2012-2610.pdf (or https://dx.doi.org/10.1542/peds.2012-2610) This paper starts...

Article Along with fatigue and nausea, pain has been one of the defining symptoms of my daughter’s illness. After she was diagnosed in 2018-2019 at age 14-15 with hypermobile Ehlers-Danlos syndrome (EDS), chronic fatigue syndrome (ME/CFS), craniocervical instability, Chiari malformation, occult...

Hi all! For every time you longed for a non-drug, no-side-effects, zero-cost way to take back a little more of your life and not pitch forward when you try to stand and not feel starved for life-sustaining oxygen... try smiling. No, I'm not crazy - this really works, and it has significantly...

Comparison of the Active Sitting Test and Head-Up Tilt Test for Diagnosis of Postural Tachycardia Syndrome in Children and Adolescents (Cai et al, 2021) Hong Cai, Shuo Wang, Runmei Zou, Ping Liu, Fang Li, Yuwen Wang, Cheng Wang https://www.frontiersin.org/articles/10.3389/fped.2021.691390/full...

This 1-hour lecture is a well spend time for everyone still searching for answers.

Published: 23 September 2021 Authors: C. Linda M.C. van Campen, Peter C. Rowe, Frans C. Visser doi: 10.1016/j.cnp.2021.09.001 Highlights Abstract

So I agree with david bell's work about low blood volume in ME/CFS and also how the disease resembles a less emergent, slower sepsis or septic/hyoovolemic shock with adaptations that make it barely livable. Not just low blood volume, there is often high Lactate especially after activity, and...

Hello, I hope this is the right place to post my question. I fell ill in March 2020 with what seemed to be a virus and I have not recovered. Taking into account the date of the onset, long covid was initially considered. Nevertheless, all the covid tests (PCRs and antibodies) came back...

A 54 yo nurse from San Diego describes how her previously fit-and-healthy life has been impacted by POTS, following COVID-19. The long time to diagnosis is discussed, along with helpful treatments (Ivabradine), as well as lifestyle modifications. In particular: fluid loading extra salt small...

Hello, I have a question for those patients that have to deal with the Ontario Health System. I have POTS, and my GP agreed to refer me to a cardiologist that specializes in that condition. He practices in a Hamilton hospital, but I do not live there. To my surprise, my request was denied by...

Sometimes it seems like all I ever do is chase rainbows. With each new diagnosis and corresponding treatment, supplement, diet --fill in the blank, comes a glimmer of hope for significant and lasting improvement. But it always ends up being just another small piece of the puzzle leaving me...