mecfs

  1. SWAlexander

    Researchers refine experimental gene therapy for herpes

    Christoph Ströck: "if #mecfs is a chronic nervous system infection by one or more of the Herpes viruses, AAV gene therapy might be our best chance." My question would be, is it affordable? Two years after scientists showed that an experimental gene therapy for herpes can knock out most latent...
  2. C

    Genetic and epigenetic regulation of Catechol-O-methyltransferase in relation to inflammation in chronic fatigue syndrome and F... (Polli et al, 2022)

    Genetic and epigenetic regulation of Catechol-O-methyltransferase in relation to inflammation in chronic fatigue syndrome and Fibromyalgia Abstract Background Catechol-O-methyltransferase (COMT) has been shown to influence clinical pain, descending modulation, and exercise-induced symptom...
  3. C

    Orthostatic Intolerance in Long-Haul COVID after SARS-CoV-2: A Case-Control Comparison with Post-EBV and Insidious… (van Campen & Visser, 2022)

    Orthostatic Intolerance in Long-Haul COVID after SARS-CoV-2: A Case-Control Comparison with Post-EBV and Insidious-Onset Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients Abstract Background: As complaints of long-haul COVID patients are similar to those of ME/CFS patients and as...
  4. A

    Benzodiazepines and Pregnancy

    This is my first post here (save for the introduction one). Apologies in advance, if I am asking in the wrong forum. I’d love to hear your experiences about being pregnant with ME and while on Benzodiazepines. I am also interested in your experience of withdrawing Benzodiazepines while...
  5. C

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and fibromyalgia are indistinguishable by their cerebrospinal fluid prote… (Schutzer et al, 2022)

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and fibromyalgia are indistinguishable by their cerebrospinal fluid proteomes Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and fibromyalgia have overlapping neurologic symptoms particularly disabling fatigue. This has...
  6. SWAlexander

    Striking Drop in Stress Hormone Predicts Long Covid in Study

    Cortisol could be used with other biomarkers for diagnosis Research identifies three potential causes of chronic symptoms Striking decreases in the stress hormone cortisol were the strongest predictor for who develops long Covid in new research that identified several potential drivers of the...
  7. SWAlexander

    Minnesota MECFS

    Just an announcement. No details yet. Minnesota's Mayo Clinic Internal Medicine doctor Stephanie Grach, MD, MS, @StephanieGrach is doing a clinical rotation at the Bateman Horne Center! Very exciting to have a new doctor taking focus on #MECFS! Especially for us Minnesotans. CC: @MinnesotaMECFS
  8. frozenborderline

    Website about koroshetz, need help

    Hi all I'm working on a website about Walter koroshetz, Sort of continued off the #notenough4ME campaign from a couple years back that focused on koroshetz failure to do the right thing for ME/CFS funding at the NIH I need help with web design and even writing copy I already have the domain...