JasonPerth
Senior Member
- Messages
- 136
Does anyone with experience in the condition CIRS able to assist ? I personally hate illnesses that have the “95% diagnosis and success treatment rate” that is always told to you as a disclaimer.
I believe- If you have MECFS, and do CIRS diagnostic tests, you will likely be positive.
This is because the symptoms we have are just about identical to the ones a CIRS patient will have.
This is what confuses me, some CIRS practitioners say “CFS” is CIRS and that their protocol will cure us with removal of whatever got you sick.
And some say its , its own unique illness.
Is this just BS?
The only reason why i find suspicion, is because they have a diagnostic test. Although its not a biomarker, they claim 95%-98% accuracy if you fail the VCS, have a HLA gene, and an elovated Biotoxin like MmP9.
I did the protocol they had me go on, they said i would be better in 3-6 months, $10,000 later im no better and did everything they asked of me and then they were starting to question me asif i did something wrong?
I guess what im wondering, is. How many of us with MECFS, would fail the VCS test, have the HLA suspect Gene for “cfs” “cirs” and have an elovated marker like MMP9.
If that answer is many of us. does it mean they need to find a new biomarker diagnostic tool as the current one includes MECFS patients? Like me
Just seems so wrong for a MECFS patient to see a practitioner who practices CIRS therapy, for them to tell you “no you dont have mecfs, you have Cirs” and then for their protocol to not work at all whilst you wasted $$$$!?
I believe- If you have MECFS, and do CIRS diagnostic tests, you will likely be positive.
This is because the symptoms we have are just about identical to the ones a CIRS patient will have.
This is what confuses me, some CIRS practitioners say “CFS” is CIRS and that their protocol will cure us with removal of whatever got you sick.
And some say its , its own unique illness.
Is this just BS?
The only reason why i find suspicion, is because they have a diagnostic test. Although its not a biomarker, they claim 95%-98% accuracy if you fail the VCS, have a HLA gene, and an elovated Biotoxin like MmP9.
I did the protocol they had me go on, they said i would be better in 3-6 months, $10,000 later im no better and did everything they asked of me and then they were starting to question me asif i did something wrong?
I guess what im wondering, is. How many of us with MECFS, would fail the VCS test, have the HLA suspect Gene for “cfs” “cirs” and have an elovated marker like MMP9.
If that answer is many of us. does it mean they need to find a new biomarker diagnostic tool as the current one includes MECFS patients? Like me
Just seems so wrong for a MECFS patient to see a practitioner who practices CIRS therapy, for them to tell you “no you dont have mecfs, you have Cirs” and then for their protocol to not work at all whilst you wasted $$$$!?