mecfs

Do we know why symptoms happen? Since this started, I have joint cracking and occasional joint pain, also anxiety and my body sometimes feels heavy like it's made of concrete. I am not hyper mobile nor have family history of it, I didn't had any health issues before and all of my autoimmune and...

How is it possible that a vaccine fucked me so bad? And how is it possible that science has no explanation and solution for this? The crippling anxiety, feeling like your body is made of cement, the cold and flu feeling... Nobody really know why it's happening. It's been a year and a half for...

Hello everyone. I’ll need to undergo major surgery in a few years, and I’m concerned because I know that surgery can be a potential trigger or aggravator of ME/CFS. I’m afraid that it could worsen my current symptoms or even push me into a severe state. My ME/CFS symptoms were triggered by a...

Lifelong - 25yrs - mild to moderate MECFS. Brain-fog, Intermittent extreme fatigue brought about by many things, Sleep issues, Hearing distortions and sensitivities, pain, tingling and loss of feeling, migraines, chemical and food sensitivities etc... 20 years of blood tests showed nothing...

🌟 𝐍𝐞𝐰 𝐚𝐫𝐭𝐢𝐜𝐥𝐞: 𝐭𝐡𝐞 𝐜𝐨𝐧𝐧𝐞𝐜𝐭𝐢𝐨𝐧 𝐛𝐞𝐭𝐰𝐞𝐞𝐧 𝐋𝐨𝐧𝐠 𝐂𝐎𝐕𝐈𝐃, 𝐌𝐲𝐚𝐥𝐠𝐢𝐜 𝐄𝐧𝐜𝐞𝐩𝐡𝐚𝐥𝐨𝐦𝐲𝐞𝐥𝐢𝐭𝐢𝐬 𝐚𝐧𝐝 𝐩𝐨𝐬𝐭-𝐯𝐚𝐜𝐜𝐢𝐧𝐚𝐥 𝐬𝐲𝐧𝐝𝐫𝐨𝐦𝐞𝐬 𝐥𝐢𝐞𝐬 𝐢𝐧 𝐭𝐡𝐞 𝐝𝐞𝐯𝐞𝐥𝐨𝐩𝐦𝐞𝐧𝐭 𝐨𝐟 𝐚𝐧 𝐀𝐮𝐭𝐨𝐢𝐦𝐦𝐮𝐧𝐞 𝐇𝐲𝐩𝐨𝐜𝐨𝐫𝐭𝐢𝐬𝐨𝐥𝐞𝐦𝐢𝐜 𝐒𝐲𝐧𝐝𝐫𝐨𝐦𝐞🌟 🌐 I am excited to share with you our latest paper entitled "𝐇𝐲𝐩𝐨𝐜𝐨𝐫𝐭𝐢𝐬𝐨𝐥𝐞𝐦𝐢𝐜 𝐀𝐒𝐈𝐀: 𝐀 𝐯𝐚𝐜𝐜𝐢𝐧𝐞- 𝐚𝐧𝐝 𝐜𝐡𝐫𝐨𝐧𝐢𝐜...

Does anyone with experience in the condition CIRS able to assist ? I personally hate illnesses that have the “95% diagnosis and success treatment rate” that is always told to you as a disclaimer. I believe- If you have MECFS, and do CIRS diagnostic tests, you will likely be positive. This is...

Stay away from r/cfsme & r/mecfs It's full of misinformation & harmful treatments. (Like brain retraining)(CBT) The moderator deletes all comments negative about his/her beliefs so you will only find positive one sided opinions. This is what brain retraining pages do. Remove anything negative...

Hi- just wondering if anyone with MECFS has done a QEEG brain function scan and following treatments? (Image attached) There is a clinic near me that mentions healing Pain/ Fibromyalgia- with some links to CFS Can Trans-Cranial Direct Current Stimulation really change the brain to remove pain...

Doesn't 2023 feel wholly different with respect to covid? While the country was obsessed with this virus for almost 3 years, especially that first year with lockdowns and 24/7 news coverage, etc, 2023 just has a very different feel. On some days I even forget about it. Offices are calling us...

Christoph Ströck: "if #mecfs is a chronic nervous system infection by one or more of the Herpes viruses, AAV gene therapy might be our best chance." My question would be, is it affordable? Two years after scientists showed that an experimental gene therapy for herpes can knock out most latent...

Genetic and epigenetic regulation of Catechol-O-methyltransferase in relation to inflammation in chronic fatigue syndrome and Fibromyalgia Abstract Background Catechol-O-methyltransferase (COMT) has been shown to influence clinical pain, descending modulation, and exercise-induced symptom...

Orthostatic Intolerance in Long-Haul COVID after SARS-CoV-2: A Case-Control Comparison with Post-EBV and Insidious-Onset Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients Abstract Background: As complaints of long-haul COVID patients are similar to those of ME/CFS patients and as...

This is my first post here (save for the introduction one). Apologies in advance, if I am asking in the wrong forum. I’d love to hear your experiences about being pregnant with ME and while on Benzodiazepines. I am also interested in your experience of withdrawing Benzodiazepines while...

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and fibromyalgia are indistinguishable by their cerebrospinal fluid proteomes Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and fibromyalgia have overlapping neurologic symptoms particularly disabling fatigue. This has...

Cortisol could be used with other biomarkers for diagnosis Research identifies three potential causes of chronic symptoms Striking decreases in the stress hormone cortisol were the strongest predictor for who develops long Covid in new research that identified several potential drivers of the...

Just an announcement. No details yet. Minnesota's Mayo Clinic Internal Medicine doctor Stephanie Grach, MD, MS, @StephanieGrach is doing a clinical rotation at the Bateman Horne Center! Very exciting to have a new doctor taking focus on #MECFS! Especially for us Minnesotans. CC: @MinnesotaMECFS

Hi all I'm working on a website about Walter koroshetz, Sort of continued off the #notenough4ME campaign from a couple years back that focused on koroshetz failure to do the right thing for ME/CFS funding at the NIH I need help with web design and even writing copy I already have the domain...