• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. L

    How best to contact #MEACTION

    Hi friends, I wrote to #meaction 's contact form on Samuel's behalf but never heard back. Have just submitted another request but thought to ask here if anyone has a direct email contact for anyone at that organisation? He is looking to hire a local person to find him a suitable apartment...
  2. frozenborderline

    MEAction protest at whitehouse

    I'm surprised to see this hasn't been discussed more. And I'm disappointed to see so little coverage. These protestors risked major crashes and arrest to do this. And they weren't rewarded with great media coverage or even a lot of support from those of us who couldn't make it, on social media...
  3. frozenborderline

    Great Direct action /civil disobedience by ME/CFs patients at the NIH

    https://openletteropenmedicinefoundation.com/brave-me-cfs-patients-protest-and-are-arrested-at-the-nih/ I wish I knew the full names of the patients to help publicize. I think one of them was whitney something. This is inspiring. I do wish it had more views though.
  4. frozenborderline

    What outlets do we have to publish pieces of art or writing about this illness and theology or spirituality, or just any art about it?

    What outlets besides our own blogs can we publish art specific for ME/CFS peolle or people with chronic illness? Omf rejected a poem I wrote for supposedly being too dark, it made me very sad and made me think I cant really connect with people in the me/cfs community. Bc this particular poem...
  5. frozenborderline

    Website about koroshetz, need help

    Hi all I'm working on a website about Walter koroshetz, Sort of continued off the #notenough4ME campaign from a couple years back that focused on koroshetz failure to do the right thing for ME/CFS funding at the NIH I need help with web design and even writing copy I already have the domain...
  6. Pyrrhus

    Video: #MEAction "M.E. and Long COVID" 25 March 2021

    #MEAction Press Telebriefing: M.E. and Long COVID 25 March 2021